WOO HOO for Christian and our family. Given all of Christian’s eating /reflux /sleeping issues lately we did it. We went for a car ride that was supposed to take an hour that ended up lasting 2 hours. We spent the entire day at Disney World – where he used his sippy cup for water/juice/drinkable yogurt, ate spoon foods for breakfast/lunch/dinner…even ate a bottle at the part while watching the parade and fireworks. We THEN stayed an entire night in a hotel feeding tube and all. The next morning ate his pears at the table in the restaurant, ate french fries and drink yogurt at McDonalds for lunch and managed another 1 hour car ride …..
ALL WITHOUT INCIDENT! I am so excited. And to top it all off when we got back we found out he qualified for early intervention where we will receive ot, st, audiology support, nutrition guidance ALL AT OUR HOME!!
Oh – and he is walking about 5 steps before realizing he can go more quickly crawling and is now clapping his hands.
Thanks for listening!