Infantreflux.org | what would you do?

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January 31, 2006 at 6:45 pm #399

Anonymous
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Hailey has her appointment with the psychiatrist on Monday at 1pm- My ped made special arrangements to get her in, and even though I don’t really think it will help, I agreed to go b/c I’ll do anything to help her.

Today I got a call from a feeding therapy program saying that they’ll squeeze hailey in on Monday morning at 8:30 am. Otherwise we have to wait another month as they are booked.

I really don’t know what to do. My gut tells me that it’s too many appointments for her in one day. She gets really overwhelmed and freaks out if she’s overtired. If we go to both then she’ll miss her morning feeding, and the psych appointment takes over 1 hr to get there and then is a 3 hr appointment so she’ll miss her afternoon feeding too. That means no food all day.

I told them that I couldn’t come on Monday to the feeding appointment though I’d really rather cancel the psych one but I think I’d have to find a new ped if I did that after all the effort he put (so he says) into getting the appointment. I’m just second guessing myself, if maybe I shouldn’t do both. Basically it would be a whole day of long appointments but I hate the idea of being left like this for a whole month. I just know that she’ll LOSE IT in the afternoon. What do you think?

January 31, 2006 at 7:05 pm #403

Anonymous
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It sounds like you aren’t really up for the psychiatrist anyway so
maybe you should just try the feeding therapy first. If after the
appt you don’t feel that you’ve gotten some of the info you were hoping
for, then maybe onto the next appt. I’m being optimistic here,
but maybe Hailey will surprise you?!?!
I know it’s easy for me to make that decision as I don’t live it
everyday but hope it helps!!! Keeping my fingers crossed that
Hailey gets some help soon! Happy 8 month birthday to Hailey
too!!!!!

January 31, 2006 at 7:29 pm #405

hellbennt
Keymaster

I say go for the feeding therapy. maybe make up some white lie why you can’t go to the psychaitrist appt…good luck!

January 31, 2006 at 8:06 pm #408

Anonymous
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I think I would go to both. It may be good for the psychiatrist to see her at her “worst” so to speak, and then may be able to give you really good input.

January 31, 2006 at 8:56 pm #412

Anonymous
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I’d go to both. Hopefully, the feeding therapy will give you some answers and it will be interesting to see what the psych. says (as well as keeping you on the good side of your ped). While feeding is always an issue, she’ll be okay if she misses one day, and it probably would be good for the psych. to see her at her worst.

January 31, 2006 at 9:13 pm #413

Anonymous
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Thanks guys. I’m leaning towards doing both but my husband is really against it b/c it means that she will be out all day from 7am to 5pm due to travel time, and 4 hours of that will be appointments. I thought of cancelling the psych, but because it’s less than a week away I would have to pay a hundred dollar cancellation fee.

January 31, 2006 at 9:33 pm #416

Anonymous
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I would go to both of the appts so both the therapist could see Hailey at her worst just to see what they think of things. When we did Alexis’ speech therapy they came when she was having a wonderful day so needless to say that they felt that there was nothing much they could do for us. I would have love for her to come to a crazy day where Alexis is just upset at everything to see her at her best with reflux maybe I would have gotten a better response to her feeding issues.

February 1, 2006 at 3:01 am #425

Anonymous
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Actually, I don’t think we’re going to do them both. Logistically it’s just not possible. They are about 3 hours away from each other, and we live somewhere in the middle. I don’t even know that I can make it back from the first one in time to then head on downtown for the next one because we’d be finished at the feeding clinic at 9am and would have to head towards downtown on the highway during rush hour. I also think that it’s a good idea for the psych to see Hailey at her worst (so to speak), but I want them to see her at her worst reflux-wise, and not freaking out crazy- nuts because she’s been trekked all around town to appointments all day without any food in her stomach. I just think that’s setting her up for a very difficult situation because of her temperament (she usually goes crazy at these appointments even when she’s fed and rested), and they’re just going to see a realistic picture of what she’s like. I’m still not 100 percent sure about this decision but right now that’s what I’m leaning towards. I have to let them know by the morning. I think we might go private in the meantime until we can be seen for a public appointment (100 dollars per appointment out of pocket).

February 1, 2006 at 10:18 am #452

Anonymous
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lie about the psych. go to feeding therapy instead. i think that it’s ok to lie a little to protect hailey !

February 1, 2006 at 11:24 am #454

Anonymous
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Lori, sorry about your dilema! We finally got an appointment with the speech pathologist for feeding therapy. She actually is learning to eat with a spoon and responds well to the therapist. Once we got the intial appointment, it was easy to set up a regular schedule with them. Go with your gut instict about this one. I’m at the point where I don’t let anyone pressure me anymore, I so hard to plan even 1 outing during the day! Good luck! Sarah

February 1, 2006 at 6:37 pm #482

Anonymous
Inactive

I’d personally try to do both but if that’s not possible, I guess do
the psych visit since you’ve already been to feeding therapists without
much help? Really hard decision though.
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