what's up with you?

[Anonymous]

Kayleigh is still suffering from reflux and has good days and bad. She attended pre-school 2 days a week this last school year and loved it. We are still gluten free and will be for awhile I believe. We planted our first garden this year and she loves helping me pick some vegetables for dinner when they are ripe she also has a great love for zucchini bread and grilled zucchini! Yeah! as I thought those first few months of feeding therapy really had me thinking we would never see the day she would eat anything of great substance. I recently had another miscarriage but we are still going to try and give her a little brother or sister and we are working on our budget so that I can stay home from work when this happens (fingers crossed). At this time Kayleigh and I are enjoying being home for the summer and having girl days!

Thanks Christine, good idea! How’s Kevin and the kids doing?

[Anonymous]

Most of you probably either don’t know me or don’t remember me, but hope some of you do, I see some of the old friends that I used to chat with, but most other usernames are new to me … I am just amazed, but certainly not surprised, that Laura is still around keep a watchful eye on all teh newbies, you deserve some sort of an award for that!!!!! That’s just awesome.

It’s been a looooong time since I’ve been here, and I’m not even sure what made me think about it today, but I’m here. Although I don’t miss Colin’s GERD days, I do miss the friendships I made on this forum. Being the only male on the forum for a long time sure made for some interesting conversations, but all of you certainly made me feel welcome, and your help got us through a lot.

Anyhow, Colin is absolutely incredible and beautiful, he’s 3 and half and has been off of Prevacid for a couple oyears with no relapses.

Well, I hope to hear from some of the old friends, I’ve been reading up on some of your news today, just wanted to stop by and say Hi!

Rony.

[hellbennt]

Hi there Rony!!

I’ve wondered about you!!!

Time flies!

3 & 1/2 wowzers!!!

[Anonymous]

rony!!!! you have appeared out of no where!!!! it was really cool to scroll down and see your name. i could hardly believe it.

as for the heiner family…….none of my children are having reflux problems anymore. the girls’ celiac diet seems to have finally eliminated their reflux. my reflux, however, is horrible. the girls ped gi told me that he thinks i should take a “road trip” if i am going to have a fundo done—–don’t quite trust the local surgeons to do this one. i also may be needing to have carpal tunnel surgery done on both wrists—-tests are borderline, but my hands keep cramping and my fingers go numb at night sometimes. (i am such a whiner!!)

BUT…..my fibro is doing a lot better right now!!!!

sylvia will not be going to college in diapers—-she has finally potty trained these last 2 weeks. she is a ball of fire and still pretty skinny, but she is healthy. she will go to pre-school this fall. (thank you, grandma!)

sammie thinks that life is a social event and hardly knows what to do with herself if she doesn’t have a friend to play with—-family doesn’t count. she goes to 2nd grade this fall.

elliot manages to be all boy, even though he is surrounded by so many girls. he sleeps in a closet—good thing he is 9 yrs old because he thinks it is neat. he will be in 4th grade.

molly is a very crafty child, she has recently started water color painting. she loves to model with clay. she has made some beautiful dragons. she made me a nativity with mary, joseph, baby jesus in a manger, 3 wisemen, a shepherd, a sheep and a star—-all of this was in half of a walnut shell—–and there were details like black pupils in the eyes and a band of different color around mary’s robe—–don’t ask me how she does work this detailed and small…….she is going into 7th grade.

tianna just started driver’s ed this morning. she is maintaining her weight, although she continues to have small relapses with her eating disorder every so often. she is a very calming influence in our house—-i am so greatful that her depression is under control.

kassie has had her license for quite some time and has a part-time job at a fast-food joint. she and tianna will both be playing soccer in the fall for the high-school. they will be juniors. they are pretty girls with long, dark, wavy air and big eyes….but VERY skinny.

ian is built like a brick house. he works out all the time. he has a job this summer working at the fair grounds which keeps him really busy. he will be a senior this year. he has hair like nobody’s business—when he was little, i used to say it was the only thing on him that grew. he has a girlfriend—-she is delightful, but we’re not particularly happy with him dating steady while he is still in school.

dasiy is enjoying her mission and has just been transfered back to the visitor’s center in oakland, california. she is such an amazing person—-i can’t believe i gave birth to her. she will be 22 in august.

leif is adored by all women, but he struggles immensly with self-esteem and depression. he is brilliant, but has been diagnosed with ADD and bipolar ll. he is adorable, and hopefully we will get him to like himself as much as everybody else likes him. he is 24.

kraig has an adorable little boy.

javonni also has a little boy, but we have only seen him once.

we are putting our house on the market. we are hoping to buy my mother’s house. we need more space!!!! i have mixed feelings about this. we have lived in this house for 18 years and have a huge yard, but only 4 bedrooms and a small family room. my mother’s house has 6 bedrooms and an extremely large family room. her yard is smaller, but still a pretty decent size.

i tried to condense this, but it still turned out to be a book, sorry.

i would love to post some pics—–if someone could help me figure out how to do it!!!

kevieb2007-07-09 17:09:30

[Anonymous]

Christine,

I don’t know how you do it. I feel like my house has been taken over by just one child…

It was great to hear how your children are doing.

[Anonymous]

Christine,

I am humbled in reading your message. I can hardly handle two children most of the time, I honestly don’t know how you do it. Your children sound amazing.

[Anonymous]

Rony, it was great to hear from you!

Christine, as always, I’m amazed by your ability to handle everything that comes your way! It sounds like you have a wonderful family!

[Anonymous]

Good thread!

Where to start… so many things have happened lately.

We got back from Kennedy Krieger about a month ago. Matthew was sick for a while but is back to eating what he was eating at KKI, so we are doing pretty well. This boy loves cheese and chocolate milk… he would be happy to only be fed that at every meal. Have not used his tube in what… maybe 7 or 8months? we will leave it in this winter and if he continues to do well, it will be coming out next spring!!

Found a great speech therapist that confirmed he has dysarthria — which is a neurological condition that affects muscle – ie it is really low muscle tone and muscle weakness… so we are starting a treatment program to treat it for both feeding and speech and looking for a therapist able to implement it. He is doing amazing regardless and is the sweetest, cuddliest and best behaved little kid around LOL… never ever complains, never cries and sleeps really well these days!! He even asks to go na-na (which is night night) after dinner most nights… His stomach si still producing a ton of acid… they were amazed at KKI and now we have zantac to supplement should we need it.

I am now 22 weeks… with a BOY!! We have a scare a while back but everything is back to normal we hope. Matthew’s GI is wonderful and will take care of this kid from day 1. We are starting with either Alimentum or Neocate and the GI will be ready to do some tests right after the baby is born if we notice any little thing (we are hoping not)… the GI is hoping to catch anything really early… and even talks to my belly asking the baby to be good LOL. we will also do a speech eval hopefully by one of the people that treat preemies in the hospital… with Matthew’s current muscle weakness, the speech therapist thinks that someone should have noticed this at birth… it would have been pretty evident because he was unable to breastfeed (i learned a lot about what type of suck you need to breastfeed vs bottle feed, which is pretty different)… so hopefully if there is some weakness we can start treating it straight away.

Ok… i think that is it? been really busy – nice to see everyone’s updates

[Anonymous]

Hi everyone! Lucas and I were at my parents house for two months this summer and no internet….I missed seeing all of you! Lucas is nearly three, mostly reflux symptom free, but on 40mg of zegerid each day to keep it that way. He’s getting his last two teeth and still waking on average once a night, but so much better than it used to be!! He is still off dairy, soy, gluten and beef and a host of highly acidic foods (but we’ve given a few of these in small doses and he’s been okay– like a bit of orange juice or some tomato). I really got crazy and gave him a few bites of homemade dairy ice cream recently and those few bites didn’t seem to affect him. We’re waiting on the teeth to do formal food trials. He LOVES to talk, is very inquisitive and a normal fun great little boy to be around. He went to a preschool program at our local community college’s child development center last year and this fall starts going four mornings a week and I go one morning with him.

I think I must be going insane but I’m actually thinking of having another child…??? Have I LOST my mind? I’ve only been sleeping since late April (my definition of “sleeping” is only waking once and sometimes — maybe twice a week– making it the whole night with no wakings).

We hope everyone is well and it’s great to see everyone’s update!

[Anonymous]

Wow — it’s great to read so many updates from people! I haven’t logged onto the forum for months and wasn’t sure where to start, so it was nice to *see* so many familiar *faces* here!

Palmer’s doing really well. He’s still as big and as athletic as ever. He never stops growing — at 43″ tall now and not quite 4 years old. But unfortunately his weight is still at only 36 lbs. His ped is talking about increasing his prevacid to 30mg/day if his weight isn’t up by his 4 yr appointment, but I really don’t want to do that. He eats a lot (says he’s hungry & eats 6-8 times a day), but he’s constantly on the run & I just think he has really high metabolism. He loves his preschool, and is still totally into sports. He played t-ball & basketball for parks & rec, but he’ll have to move up to the 5-6 year old league next year (even though he’ll only be 4) because his skill level is so advanced. Besides that he’s as fun and playful as ever!

I’ve loved staying home with Palmer since we moved to Indiana in January. Sometimes I miss my work and the challenge of the classroom — and I definitely miss my great colleagues, but the rewards of being more involved in Palmer’s development more than balance that. We’ve had our ups and downs of course, but all in all it’s been a great year!

[Anonymous]

It’s great to hear from you Christine! It sounds like Palmer is an amazing little boy!

[Anonymous]

I can’t believe that Palmer is going to be 4!!!!! Great to hear from you, Christine! He will be a professional athlete some day!

[Anonymous]

christine, i have thought about you a number of times—but i didn’t know what had happened to your e-mail address. i have wondered how the celiac diet is going for you. it is good to hear that palmer is doing so well. sylvia is about as wild as a march hare. she turned 4 in october and still only weighs about 35 lbs and is just barely over 39 inches tall. i keep worrying that she might have celiac like the other kids—–especially with the enamel problems with her teeth. she also seems to have circles under her eyes these days. it is time to test the other kids blood levels again—so i think i need to test sylvia again. now that she is over 4, the test should be more accurate than when she was younger.

we have just moved into a large house with 6 bedrooms and a large family room—-it is nice to have more space for the kids to spread out.

[hellbennt]

waving hello christine!!

So good to read your post!!!

go Palmer, go!

~laura

[Anonymous]

Thanks for all the great hellos Kim, Ann Marie, Christine, and Laura!! I can’t believe that most our little kids are already (or almost) 4! I hope everyone had a wonderful and happy holiday!

Christine — Sylvia’s weight seems pretty good for her height, but I definitely understand your concern about weight and about celiac. I haven’t been great about the diet and I know that I need to do better. Generally I feel pretty good just doing a mix of grains, but I’m sure I could cut out a lot of my sinus/cold issues if I went cold turkey on gluten. I’d love to “talk” with you more off forum. The best email address for me these days is attached to my profile. If you can’t get me through that let me know here. Congratuations by the way on the bigger house! It must be nice having more room for everyone.

[Author]

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