Our first daughter had silent reflux and Abby was doing the exact same thing (arching, crying/screaming, resisting drinking, grunting) and also would not swallow her formula – would just let it run down her face. It was so discouraging. We noticed it right when she was born and she had her upper GI done at only 1 week old. Our oldest daughter was able to have her symptoms controlled with Pepcid so we tried that with Abby which didn’t work – then tried Prevacid which also did not work (looking back, it was probably the dose, not the medication, that didn’t work as she was only on 7.5mg 1 time per day). Once I did a lot of convincing to our family doctor, he agreed to let us try the Zegerid at the dose recommended. Now he prescribes it a lot.
Good luck Wendy – I’m not on the board as much as I used to be but always happy to answer questions if I can!!
Robin