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welcome! I understand you don’t want to medicate your baby! The medications address the pain, not spit up…I understand you want to look into the root cause of the reflux, as well you should! It might be a reaction to a protein in your breastmilk. Or, it might ‘just’ be an immature LES (lower esophogeal sphinctor). In my baby’s case it was an immature LES. How did I know this? Because I did the TED (total elimination diet) and because he really didn’t have any symptoms of MSPI (milk/soy protein intolerance). He didn’t have any poop issues or gas issues or skin issues…However, I did the TED bcse I was DESPERATE. And, I DID learn some things that I could not eat…
SO: you might want to looking into something ‘mild’ for bedtime, but you said you already tried zantac. maybe axid or tagament? ask your doctor. or don’t. I’m just trying to think of things to help you all get some sleep. one more medication to consider is carafate. this is NOT a long-term solution! it’s a coating for the esophagus. when my son’s reflux was at it’s worst (he shrieked/howled for so long he LOST HIS VOICE!), carafate helped him….
I get it if you just don’t want to try medication again…it’s rare for babies to be ok w/ only changes in diet and ‘natural’ methods, but rare does not mean never! I believe in everything!as far as your diet goes, there is something you can try. it’s called the Dr. Sears Elimination Diet (TED). The TED takes two weeks and then you start adding foods in to see what you CAN eat.
Research all you can! You are your baby’s best advocate!I did the diet. So, I *do* know it can be done
Reasons a breastfeeding mother might think her baby is reacting to something in her milk:
*poop that is not ‘normal’ mustardy yellow, seedy breastfed baby poop
*mucous in poop; mucous can look like: snot, jelly, cottage cheese, stringy like the inside of a banana
*foul-smelling poop
*stinky, foul-smelling painful gas
*straining and grunting to poop and, when baby finally does poop, it’s softSomething else you can do, that’s not medication, is for you (& baby) to try probiotics & digestive enzymes.
TED and success also using probiotics
https://www.infantreflux.org/forum/forum_posts.asp?TID=15293&PN=1probiotics, brands used:
https://www.infantreflux.org/forums/topic/probiotics-70/erin posts that mentions enzymes:
https://www.infantreflux.org/forum/forum_posts.asp?TID=12781&KW=enzymehttps://www.infantreflux.org/forum/forum_posts.asp?TID=12610&KW=enzyme
https://www.infantreflux.org/forum/forum_posts.asp?TID=12227&KW=enzyme
Post from me:
https://www.infantreflux.org/forum/forum_posts.asp?TID=12200&KW=enzymesomething else to try is slippery elm
(this doesn’t mention dosing- you’d have to search around – the link I had doesn’t work anymore) http://www.herbalencounter.com/2011/08/18/slippery-elm-ulmus-fulva-for-colitis-upset-stomach-food-poisoning-acid-reflux-and-other-gastrointestinal-problems/here’s a link to a mams story about slipper elm; I can’t ‘vouch for this particular link
and also aloe vera juice (organic)
anne mentions this in her posts, I believe:
Great anne post: https://www.infantreflux.org/forum/forum_posts.asp?TID=9242
ok, that’s a lot for now!
so glad you found us!
laurahellbennt 2013-06-22 17:31:11 Topic: hello!
My name is Heather. I just gave birth 3 weeks ago to my second beautiful daughter…with reflux. Not only does she look like her sister but her reflux is almost identical to hers as well. At least this time I knew exactly what was going on from the start. I didn’t have to wait for a Dr to tell me what was going on…I was able to tell the Dr. I knew from the first day in the hospital that Mallorie had reflux. She kept gulping like she was swallowing something even when she wasn’t eating. I asked the nurses about it because I suspected reflux and they would just say she was practicing swallowing. I knew better. When we got home the arching and screaming in pain began. Just like her 3 1/2 year old sister Emerson she has silent reflux. We were discharged from the hospital on a Saturday and had a appointment with her Dr on Monday and she was started in prevacid at 4 days old. The Dr didn’t even try zantac since it did nothing for my oldest. My oldest was on solutabs and after a short period of breast feeding began gentlease. Mallorie was prescribed a compound and I began her on gentlease after another failed attempt to breast feed. I cane home and began researching and found all the info about compounds being unstable. I decided I would give it a chance. After 2 weeks we returned to the Dr where I expressed my concern about the compound. I asked if we could try the solutabs since I had experience with them with my oldest and had success with them. She said she had no problem with that. She only wanted to do half a 15 mg tab once a day since she is so small. I also had been noticing that Mallorie had been very gassy and seemed to be having stomach discomfort not related to the reflux. The Dr was actually able to see one of her poops while we were there. It was very bubbly and Dr said it was from gas. She thinks baby may have a slight milk intolerance and suggested we try soy. I tried soy with my oldest and had problems with constipation so I was leery to try it. She has been on it since Thursday and has not been as gassy but she also hasn’t pooped which concerns me. The solutabs are costing me $115 a month! But if it helps I do not care. So far I have noticed no difference with the change in formula besides her not being as gassy but she actually seemed to has more discomfort yesterday…so who knows. Its all trial and error until you find the right combination!
Well that’s our story so far. I look forward to getting to know everyone I know I will find great advice and support here!
here’s about enzyme dosing – I forget, are you breastfeeding or formula feeding?
I think this is for breastfeeding mamas? https://www.infantreflux.org/forum/forum_posts.asp?TID=12781&KW=enzyme
from the links above, if there are brand names- contact the company itself for infant dosing
you can’t ‘make’ your own prevacid- you can ‘make’ your own liquid using zegerid and prilosec (zegerid has prilosec in it) – it’s in ‘prevacid 101’
Prevacid 101:
scroll to the last page of this post, (it’s actually also about other PPIs like prilosec, too)
https://www.infantreflux.org/forum/forum_posts.asp?TID=1936&PN=0&TPN=1
Reasons a breastfeeding mother might think her baby is reacting to something in her milk:
*poop that is not ‘normal’ mustardy yellow, seedy breastfed baby poop
*mucous in poop; mucous can look like: snot, jelly, cottage cheese, stringy like the inside of a banana
*foul-smelling poop
*stinky, foul-smelling painful gas
*straining and grunting to poop and, when baby finally does poop, it’s soft
the TED takes two weeks and then you start adding foods in to see what you CAN eat.
Research all you can! You are your baby’s best advocate!
best EXPLANATION OF FOOD ALLERGIES/INTOLERANCES and their RELATION TO REFLUX that I have found, to date: 2nd post: https://www.infantreflux.org/forum/forum_posts.asp?TID=2697&PN=2
I linked in another post- I have to go- use the ‘active topics’ button located in the upper right-hand corner of the page- you’ll see all the links
ok here it is- croll down to the purple
https://www.infantreflux.org/forum/forum_posts.asp?TID=21488
hellbennt 2013-06-09 21:29:46
ok, links!I have a LOT to say and most of it’s here, in a link called ‘groupie intro.’
It’s looOong but TRULY will help you-
read through it, refer back to it, scroll through it/skim through it.
You’ll find yourself coming back to it!
https://www.infantreflux.org/forum/forum_posts.asp?TID=853Reasons a breastfeeding mother might think her baby is reacting to something in her milk:
*poop that is not ‘normal’ mustardy yellow, seedy breastfed baby poop
*mucous in poop; mucous can look like: snot, jelly, cottage cheese, stringy like the inside of a banana
*foul-smelling poop
*stinky, foul-smelling painful gas
*straining and grunting to poop and, when baby finally does poop, it’s softthe TED takes two weeks and then you start adding foods in to see what you CAN eat.
Research all you can! You are your baby’s best advocate!Look for all posts by Erinntx! (be SURE to read her ‘sticky’ – the link is below)
here’s some more light reading for you :
MSPI ‘Main’ page:
https://www.infantreflux.org/forum/forum_posts.asp?TID=2697best EXPLANATION OF FOOD ALLERGIES/INTOLERANCES and their RELATION TO REFLUX that I have found, to date: 2nd post: https://www.infantreflux.org/forums/topic/mspi-what-i-have-learned-allergy-info/#post-11630
Misconceptions about how Neocate & Elecare work: https://www.infantreflux.org/forums/topic/misconceptions-neocateelecare/
[working on broken links….use the search and find Erinntx and look at all her posts…very helpful!]
THIS IS REALLY IMPORTANT:
Erin’s sticky: https://www.infantreflux.org/forum/forum_posts.asp?TID=12948&PID=105126#105126More Erin: https://www.infantreflux.org/forum/forum_posts.asp?TID=13175&PID=106395#106395
Erin post: https://www.infantreflux.org/forum/forum_posts.asp?TID=13576
Great anne post: https://www.infantreflux.org/forum/forum_posts.asp?TID=9242
More recent post – TED and success also using probiotics
https://www.infantreflux.org/forum/forum_posts.asp?TID=15293&PN=1Exposure to foods & blood testing: https://www.infantreflux.org/forum/forum_posts.asp?TID=12993
Sheri’s allergy/intolerance explanation: https://www.infantreflux.org/forum/forum_posts.asp?TID=10223&PID=87638#87638
Another Sheri explanation- intolerance/allergy post:
https://www.infantreflux.org/forum/forum_posts.asp?TID=11579&PID=97442#97442Accuracy of allergy testing & great post by sherri explaining IgE and IgG (intolerance/allergies) https://www.infantreflux.org/forum/forum_posts.asp?TID=10815
(sue again, replying to gina- breastfeeding info to (TED) https://www.infantreflux.org/forum/forum_posts.asp?TID=11324&PN=1
probiotics, brands used:
https://infantreflux.org/forums/topic/probiotics-70/[try searching the forum- I’m working on broken links]
erin posts that mentions enzymes:
https://www.infantreflux.org/forum/forum_posts.asp?TID=12781&KW=enzymehttps://www.infantreflux.org/forum/forum_posts.asp?TID=12610&KW=enzyme
https://www.infantreflux.org/forum/forum_posts.asp?TID=12227&KW=enzyme
Post from me:
https://www.infantreflux.org/forum/forum_posts.asp?TID=12200&KW=enzymeWondertime article, Colic Solved:
https://www.infantreflux.org/colic-vs-reflux/page 2 of the article tells what probiotics help babies
Topic: Thumbs down pediatric GI
So…I have 5 1/2 month old twins (adjusted age 3. 1/2 months). They have mspi and I have eliminated dairy and soy from.my diet as I.am breastfeeding and there has been some.improvement with the crying(they are still unhappy most of the time, just less so) They were on zantac which didn’t seem to do much. I took them.to the pediatric GI who saw them.cry and spit up and and arch and DL what they do, and he switched them.to.pepcid and gave me a talk about how the PPI ‘s are infested in children and he doesn’t want to.go there, etc etc. (This was Tuesday) since the switch they have been getting more miserable/scream and spit-uppy. I switched them.back to the zantac today…but not sure where to go from here since we are in a small state and I went to the only Pediatric GI practice in the state and if he isn’t gok g to put them on a PPI…who will? I am.about to.look at info here about making my own.PPI infant medicine since apparently that will be my option other than live with the screaming (x 2) for the next t 7 months). Rather go.rogue than go.to.jail
hellbennt wrote:
post in the breastfeeding forum or the mspi – browse around, lol! I’m always in a rush…
THANK YOU!!
you’ll help others who don’t know what to do- by reading what YOU did and what helped YOUR baby, others will have some direction
okie dokie ! i promise i havent forgotten !! im hoping to get this up and done/finished within the week !
My baby is almost 7 weeks old, and has been having signs of progressing silent reflux. He cries and arches his back during breastfeeding, (I’ve already cut out dairy) he winces and coughs and chokes. He produces gnarly wet burp and cries/winces in pain. I can hear him swallow at night and whimper and I know something is coming back up!
We started on zantac which did nothing (we had about 1 good morning) and the doc prescribed prevacid. I cannot for the life of me get him to take it! Yesterday I tried and he choked and threw up his whole feed! Although I notice that when he actually throws up there is no pain, while when he gets the silent it hurts him a lot.
Any ideas on how to give him the meds? Isn’t he too young for apple sauce? those damn beads don’t dissolve and when mashed it forms a thick paste! I’m so desperate as he is literally crying all day and sleeping very poorly at night.
Another note, He is constantly wanting to feed to comfort his throat. The ped says to “let him” but he is gaining weight like crazy! I was wondering if there was anything else (water, juice) that I could give him that would help to soothe his throat without having to be his personal pacifier. Oh, and he doesn’t take a paci.
I am soooo desperate as I literally cannot put him down or else he’ll cry and choke. When I pick him up and he’s in pain he’ll scream in my ears and that adds up after a few hours I’m in tears too. I fear damage in his throat and the doc doesn’t really call me back. Please somebody, give me some advice. I can call the doc again, but my hubby doesn’t want me appearing to be a crazy calling mom. He’s finally come around to admitting our boy has reflux but he’s not as supportive of it as I’d like.
Sorry for the essay but please someone..
Jen
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