my guy has always been on the low side for weight and fluid intake. He is breastfed so I don’t know for sure what he was/is getting but I know we are on the low side of normal. He is over a year now and eats solids like a mad man. If your baby is small, they require less (not substantially but less). I am not surprised he refuses solids at this age. Did you other babies eat this early? All of mine did better with solids after 6mths, though I certainly kept trying. Keep on eye on it. You should be going in for a well check soon. My last two have been low on the growth chart and had one feeding problem or another. It is so hard not to worry so I won’t tell you not to 😉 And that would be hypocritical of me since worry is all I do.AnonymousInactive
Oops, I goofed trying to post this the first time. Sorry. Anyway, Does anybody out there have a little GERDling who is surviving on only an average of 15 ounces of breast milk or formula a day??? For the last week my five month old boy (REFLUX on Prevacid) will only eat and keep down an average of 15 ounces of his feedings each day. He refuses solid foods, but I do add some cereal to two of his bottles each day. I’m worried because he used to consume about 25 ounces per day and he kept a lot more of it down. For the last week he will only drink 2 or 3 ounces at each feeding and pukes most of it up. Twice a day on average he’ll keep down 4 ounces. My doctor says as long as he’s gaining, not to worry. O.K. But how long can he continue to thrive on so little food? Do any of you have babies who get by with so little? Please let me know. It may calm my fears. Thanks.AnonymousInactive
Thanks for your link your thread about this — hellbennt posted the info I found and posted on the yahoo reflux breastfeeding list. Small world, thank heavens!
Sharon’s IgA was .1 G/L, and the Dr said normal range was .17-2.04 (no mention of age, though), and the lab sheet showed the normal range as .2-1.10 (again, no age range mentioned). When I asked the Dr to check Sharon’s results a year ago, her IgA was .06 G/L back then.
In the research I did, I found info about IgA in food absorption really interesting, and wonder if this explains Sharon’s continuing intolerances (still all grains, most fruits and veg, and rice). We did a celiac screen too (results invalid because IgA low), but my sense is that Sharon’s problems are different, since she still can’t even handle rice.
ok, I don’t know what, if any medication you lo is on…I would FAX the doctor and TELL what medication you are requesting, state symptoms- if noah is exhibiting Sandifer symptoms, by all means list those, and THANK dr
then call to see where is prescription(s)?
also if you are breastfeeding have you tried the elimination diet and if you are formula feeding are you feeding an elemental formula? sorry if you’ve said all this but I just can’t keep trackAnonymousInactive
Krista ~ We have gone through so many feeding “stages” with Hailey. Try to just go with the flow and offer him things he can eat himself. I think by 12 months, Hailey would rarely let me feed her at all (for sure by 15 months). How about wheat/gluten free pancake mix? I’ve been making Hailey little silver dollar size pancakes for a long time. You can do all sorts of things with them and they are a huge hit. You can add ground up veggies to the mix. Pumpkin and mashed banana is good to add too.
I would be nervous about weaning to just rice milk in your case. You said he’s in the 5%, right? Rice milk just doesn’t provide much fat, you would have to be able to replace it with other sources…It’s really not for kids at all that are under a year and certainly not a suitable replacement for breastmilk or formula until well after a year (unless the baby is a great eater). I don’t think it will hurt to supplement with the rice milk at this point. Seems like lots of 10-11 month old babies only nurse 1-2 times per day anyway, right? How much does he nurse?
I know it’s tough. Try to stick it out a few more months and then you’ll have a few more possibilities.
I think that before you wean him from breastmilk you have to get him to drink something like neocate (which probably will be hard?) or, have him eating more…I wish I had some more positive upbeat words to share with you…this sounds very very difficult;
here’s a bigHUGfor you…
I’d also go post over at the yahoobreastfeedingreflux board- those mamas know a lot about diet, etc…
I think that at a year you can have him drinking rice or potato milk (we were just discussing this- https://www.infantreflux.org/forum/forum_posts.asp?TID=4735&a mp;PN=0&TPN=1 )
what happens with solids? is he gagging and vomiting? just not interested?
you could see dried blood w/o seeing fresh bcse the blood could be from somewhere inside and by the time it gets pooped out, it’s ‘old’…
you could bring a stool sample in & demand for a test of what’s called occult blood…I think this would tell you for sure…
mucous can be a sign of allergy or intolerance- there’s a difference…but basically it means baby is reacting to something in diet& since you’re breastfeeding, it most likely is due to something in your diet- most common is to milk and/or soy proteins
I did a search for you- please read the posts (don’t know why this is bold _ I can’t seem to undo it, sorry): https://www.infantreflux.org/forum/search.asp?KW=blood&SM =1&SI=TC&FM=0&OB=2
Here’s about mspi and related issues: https://www.infantreflux.org/forum/forum_posts.asp?TID=2697&a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;PN=1&TPN=1
I’ll email her- meanwhile I found this that I’ve sent to her recently:
not sure if this pertains to you and your family or not but this was posted on the yahoobreastfeeding group:
some general info at the link below:
“IgA normally stands guard at the body entrances, intercepting bacteria,
viruses, toxins, and certain food components. The cause of IgA Deficiency is
not known, and it may differ from one person to the next. In fact, NIH says
some people with IgA Deficiency may not have symptoms. Others may experience
recurring ear, sinus or lung infections. IgA Deficiency itself seldom causes
serious trouble. However, people with IgA Deficiency are very likely to have
any of a variety of other problems. They are especially prone to allergies,
asthma, autoimmune diseases such as rheumatoid arthritis and diabetes;
diseases of the gastrointestinal tract, and neurologic diseases.”
I also found this info interesting, though don’t have the link handy:
“IgA deficiency is 10 times more common in coeliac patients than in the
general population. Patients with coeliac disease and selective IgA
deficiency often have circulating antibodies to food proteins; they also
have circulating immune complexes, suggesting that absence of an intestinal
barrier might allow the absorption of antigenic material from the gut.
Antibodies to some antigens might cross react with the host’s
self-components and might indirectly produce autoimmune disease.”
– And –
“Antibodies to food antigens, especially cow’s milk, are common and may be
related to the high incidence of malabsorption.”
coffee grounds is a ‘classic’ description of dried blood coming out in the stools…sorry to alarm you…sounds like mspi and or/allergy, especially along with the mucous…
not what you wanted to hear…
I see you posting over at the yahoobreastfeedingreflux board- they can help you too…AnonymousInactive
I missed this yesterday, thanks for posting! I am getting ready to wean from breastfeeding and have been so confused on what to give him. I would keep on nursing but my supply is dipping and he is just too busy during the day. I am encouraged to see your guy will take the alimentum in the rice milk. I might just have to try that!
We had the same issues with Sandifer’s. Once we got her reflux under control with prevacid, the symptoms disappeared. Whenever they came back, we knew she needed a med increase.
Jonah had Sandifer Symptoms before he was on the right medication & dose. It’s symptoms like back arching, stiffening a leg, twisting the head in one direction, & can also include seizure type episodes…i always use the symptoms as a barometer- as we got the meds figured out, the symptoms pretty much disappeared…AnonymousInactive
Elaine, yes, Allison had Sandifer’s Syndrome. We had severe episodes that included arching, screaming, and turning red. They persisted until her reflux was properly treated. It sounds as though this is what you are dealing with. We tried Zantac first and it didn’t do anything for us. We then switched to Prilosec, a PPI, and it made a world of difference.AnonymousInactive
Welcome – Zach was started on Zantac to but did not do much for
him. He would constantly arch his back and pull away from the
bottle too. Once he was put on Prevacid, he was a different baby.
laura, i just started to skim your info: sorry if this is in there, and tomorrow i’ll go through it all, but: the “mystery” to all the thousands (seemingly) of baffled lactation folks and professionals was why my daughter would systematically turn her head to one side, and push off the nipple then go back on, wishing to eat, then this behavior would dissipate during most night feedings. i read one study today that saniford’s is masked at night. i thought breastfeeding would be impossible forever and that i’d give it up after all my efforts and accept her “style” as some suggested. does this behavior sound to you like saniford’s? this ofcourse was accompanied by reflux-y behavior and an increasing dose of zantac. the first symptom i saw maybe two months ago (she’s three months now) had disappeared, that was the arching back and screaming. this was replaced about three weeks/ a month ago by the head turning,stiffening, etc.
so so grateful for your response..-elaine and ruby
Topic: How can 15 oz be enough?
Oops, I goofed trying to post this the first time. Sorry. Anyway, Does anybody out there have a little GERDling who is surviving on only an average of 15 ounces of breast milk or formula a day??? For the last week my five month old boy (REFLUX on Prevacid) will only eat and keep down an average of 15 ounces of his feedings each day. He refuses solid foods, but I do add some cereal to two of his bottles each day. I’m worried because he used to consume about 25 ounces per day and he kept a lot more of it down. For the last week he will only drink 2 or 3 ounces at each feeding and pukes most of it up. Twice a day on average he’ll keep down 4 ounces. My doctor says as long as he’s gaining, not to worry. O.K. But how long can he continue to thrive on so little food? Do any of you have babies who get by with so little? Please let me know. It may calm my fears. Thanks.