Search Results for 'celiac'

[Anonymous]

if your son has gone from the 40th % to the 5th% in only 3 months—-there is definitely a problem. just my opinion—-but i don’t think that even a child genetically predisposed to be small should be dropping that much on the charts in such a short time.

two of my kids have had esophageal thrush. after sylvia had her fundo she started eating worse rather than better and was not gaining weight. she would refuse food after a bite or two and she did an awful lot of chewing her food and then spitting it out instead of swallowing——she would nurse fine, though. she also would make a funny noise like she was clearing her throat. the ped gi put her on diflucan based on her symptoms (we didn’t scope her for it) and she started to eat, sleep and gain weight. kassie had a scope a few months before she was diagnosed with celiac and you could see raised white spots all over her esophagus. i thought that esophageal thrush was rare, but our ped gi told me that it is not as rare as people think it is, especially in someone with a chronic condition such as reflux.

i’d really recommend getting to a ped gi.

[Anonymous]

I adjusted a recipe for waffles (found at http://www.bobsredmill.com/recipe/detail.php?rid=750) and have thoroughly enjoyed having a ‘bread’ these past few days.

If you are on basic TED and can have rice, potato, rice milk, xanthan or guar gum, baking powder, baking soda, sugar, salt, and oil, you should give these waffles a try. If you can’t do potato or you can’t do rice, you could try other flours and starches – tapioca, amaranth, arrowroot, sorgum, etc.

I’ve been playing around with various rice/potato/amaranth flour mixs and have definitely found it much better to use a combination of flours than just one flour. Based on advice from a Celiac baking forum, I make a batch of about 3 cups of various flours as my “all-purpose flour” and then pull from that bin the specific amount that the recipe calls for. Here’s what I used for my 3-cup bin of “AP flour” for these waffles:
1 cup white rice flour
1 cup sweet rice flour (I finally found this at an Asian grocer)
1/3 cup potato flour
2/3 cup potato starch

NOTE: I also tried making the waffles with an AP flour mix of:
2/3 cup white rice flour
2/3 cup sweet rice flour
2/3 cup brown rice flour
2/3 cup potato starch
1/3 c amaranth flour
but I found that this combination was too strong tasting for me. It was probably due to the brown rice flour and the amaranth flour. So I tried the combination above and liked the flavor of the waffles better.

Almost-basic-TED Waffles Recipe

• 1-1/2 cup All Purpose Flour mix (see above)
• about 2 teaspoons xanthan gum (I’ve been advised to use 1-1/2 teaspoons per cup of flour in my baking since I’m not using any of the normal proteins – gluten, egg, or milk. The xanthan gum really helps to keep the baked goods intact!)
• 1 Tablespoon sugar
• 2 teaspoons baking powder
• 1/2 teaspoon baking soda
• 1/2 teaspoon salt
• 1 egg (or substitute*)
• 1-1/2 cup milk (I used rice milk)
• 1 Tablespoon oil

1. Blend all ingredients in blender or whisk vigorously in bowl until thoroughly blended. Let batter sit for five minutes.

2. While batter rests, preheat waffle iron according to manufacturer’s directions. (Adjust temperature setting after cooking first waffle.)

3. Lightly oil hot waffle iron, if necessary. Pour 1/4 of batter (or manufacturer’s recommended amount) onto heated waffle iron. Close and bake until steaming stops and waffle is deeply browned, about 4-6 minutes. Repeat with remaining batter. Makes 4 waffles, 8 inches each, depending on waffle iron size. Serves 4 (1 waffle per serving).

*I used the Ener-G egg replacer for these waffles but I’ve also tried using other egg substitutes. Here’s a great link for info on what you can use in place of eggs. http://www.dummies.com/WileyCDA/DummiesArticle/id-1081.html

Toppings

I put some Smart Balance Light margarine on the waffles and then a bit of brown sugar. Once the margarine and the sugar melted, it was a bit like syrup. (I don’t happen to have any syrup in the house at the moment, plus I haven’t trialed it so I went with this as an option I know is OK.)

I also put a bit of apple butter on them and that was good, too.

Dianne2007-4-3 16:46:19

[Anonymous]

This article states food intolerances can lead to frequent ear infections http://www.lifedynamix.com/articles/pdf_version.php?id=71

Allergies and sensitivities seem to be on the increase, more and more people seem to be suffering from them nowadays. Food allergies and sensitivities seem to especially be on the increase and many health problems are associated with them.What are the reasons for the increase in food allergies and sensitivities over the past few years? The leading theories are that a combination of consuming high amounts of similar foods on a regular basis, consuming food with preservatives, consuming foods with added food colourings, consuming foods with added flavour enhancers, the use of antibiotics during rearing of food, the use of herbicides and pesticidesin production of food are all playing havoc with our immune systems. The adulteration of the food we eat by the food industries is making our immune systems react to every day food.It is believed that the average person eats the same ten foods per week; this is a major facture in the increase of hypersensitivity in todays modern society. Our digestive systems are becoming insufficient which is allowing food particles to retain their antigenicity and to enter our systemic circulation which provokes our immune system to react to them as they were a foreign protein. Food allergy and sensitivitivies can cause health problems such as aches and pains, ADHD, anxiety, arthriti, asthma, bloating, Celiac disease, chronic fatigue, chronic infections, dizziness, eczema, enuresis (bed wetting), fibromyalgia, hyperactivity, Irritable Bowel Syndrome, lethargy, migraine, nausea, PMS, psoriasis, recurrent ear infection, recurrent sinus infections, Rhinitis Sinusitis and Urticaria.Food sensitivities and allergies cause the body to be constantly combating what it sees as a foreign invader, the immune system expands large amounts of energy trying to defend the body. This constant battle against what should be harmless food proteins can lead the body to let in via the back door more serious health problems such as cancers and autoimmune conditions. Life style and environment also plays a large part in the body’s susceptibility to allergies. Atmospheric pollution which is high in busy cities has a detrimental effect on human health. Examples of sources of pollution are burning fossil fuels, agricultural spraying, smelting and waste incineration. Many people find that their food allergies get better when they leave city life. People are not only effected by outdoor pollution but also indoor pollution, our homes are full of pollutants such as formaldehyde, tobacco smoke, carbon monoxide, nitrous oxide, asbestos, dust mites, toxins from plastics, xylene from paint, toluene di-isocyanate from varnish.The human body is constantly working in harmony; it?s regularly systems stopping trouble before it ever happens. Health problems only occur when the body?sdefences become over run. This is called body overload, it is important to understand body overload to understand allergies. The human body can cope with small amounts of different stressors such as stress, environmental pollution, alcohol and nutritional deficiency all of which are common in modern life. The problem comes when the body tries to cope with more than one stressor and it reaches its threshold level, it can only take one allergen and the threshold will be reach causing all sorts of health problems. This explains why someone who has a food allergy can eat that food on holiday whilst they are relaxed and in a cleaner environment, for example a beach holiday but when they come back to their stressful city job they become unhealthy again. When the human body gets affect by an allergen it will show up in its weak organ, this is an organ that will show an allergic reaction first. For example; someone with hay fever may well get a runny nose? their target organ.The human body is finding it hard to cope with life in the 20th century because it has not really changed that much since the Stone Age. On the other hand, life in the 20th century is very different to that of what a Stone Age man would be used to. Our ancestors did not eat grains or dairy foods, their diets consisted of vegetables, fruits, nuts and water. In contrast, our modern day diet consists of wheat, dairy products, processed foods, refined foods, foods with additives and preservatives, high amounts of salt within our food, foods sprayed with pesticides, fungicides and herbicides, microwave foods, foods with high amounts of sugar, smoked meats and fish and stimulants such as tea, coffee and alcohol. With this nutritional bombardment upon our stone aged bodies it is no wonder why allergies and sensitivities are on the increase.Some scientists think that man has not adapted yet to tolerate grain products as we only started to be cultivating grain ten thousand years ago, a short time in evolution. This may explain why allergies to wheat are very common.Another modern day invention which was not around a lot in Stone Age times is heat. Stone Age man eat a lot of raw food, cooking destroys a lot of valuable nutrients and enzymes. Raw food also needsa lot of chewing which not only breaks down the food but also mixes essential digestive enzyme when it is in the mouth enabling proper digestion of the food in the stomach. Today; most processed and fast food is soft which does not help with proper digestion.In conclusion, modern day food that is produced by the foodindustry is high in fat, high in sugar, highly process, high in salt, high in chemicals and dowsed in pesticides,fungicides and herbicides. Although our bodies have not changed much since the Stone Age our diet is farfrom the simple foods that our ancestors consumed. Adulterated food together with environmental pollutionand modern day stress that we endure in our city has lead to the increase of allergies and sensitivities in the20th century.Stewart Hare C.H.Ed Dip NutThBespoke consultations for a healthier natural lifewebsite:

http://www.newbeingnutrition.com/Get a free initial nutritional therapy diagnosis now…

The Increase of Allergies and Sensitivities by StewartH

[Anonymous]

Carson had an endoscopy and biopsies done at the same time he had PE tubes put in his ears. He did not have to have an enema. We did not learn much except that the biopsies showed he DID NOT have celiac disease (my grandmother had it) and we also learned that his esophogus was not red and inflamed. It was pink but the pe tubes were put in and the doc said that he had been under for a few minutes while the pe tubes were being put in and that can make the esophogus pink and eventually red. Although it was not cheap at all, it did thrill me to know we didn’t have to deal with celiac and that his esophogus was fine. I call it my peace of mind procedure!

We had an upper GI with lower bowel follow through. That showed definate reflux but did NOT show delayed gastric emptying. Again – peace of mind procedure.

But we have never had to give Carson an enema.

It is nerve racking to count down the days til the procedures are here but when it is over, so nice to know the results. Good luck! Be brave! It was harder on me than Carson! I think the hardest thing is that the little ones can’t eat before the procedures! Good luck!

[Anonymous]

yes, celiac blood tests are not very accurate on young children. they don’t always produce the antibodies when they are young—i don’t know why, though. i have heard people say it alot on the celiac board, but our ped gi also told me that the tests are not accurate under 3 yrs.

[Anonymous]

Hi,

I was just wondering the best celiac cookbook you’ve come across? I guess I have been in denial on some level as I haven’t yet bought a specialized cook book. But Lucas isn’t outgrowing these intolerances and I need some new ideas. He’s also got dairy/soy and beef problems, and can’t do acidic things like tomato– so we’re limited in a lot of ways. but I think it’d be worth it at this point to find some additional recipes.

thanks!!

[Anonymous]

Christine….did you mean that celiac blood tests are’t very accurate on young kids? Lucas was tested at around 18 months of age. Did you read that somewhere? I’ve asked our allergist, but he said he felt the results were reliable.

[Anonymous]

I hope you find some answers. i know I felt the same way when we had Lucas’ ph probe and endo. I was so happy to learn that there was a REASON for all this we were going through.

That said, my son is gluten/wheat (and several other things)intolerant. He’s had the blood test for celiac which came back negative, yet really can’t tolerate foods with gluten and wheat in them. We have no known family history of food allergies or celiac. His allergy tests actually showed that his tendency toward food allergies was very low. Our allergist says to try reintroducing foods every 6 months. I hate doing it, but he is hopeful that Lucas will tolerate some of these foods by age 4 or 5. So we follow a diet that someone with celiac would be on, and we’re very strict about it. I treat it as if he had celiac or a full blown allergy because his reactions are so severe. His reactions, however, are very behaviorial and involve not being able to sleep and I assume severe gi upset. No rashes or raspy breathing or other obvious signs– just a lot of screaming and crying and writhing around for many many hours.

Again, I hope you find some answers and that your little one is feeling better soon!

[Anonymous]

Christine–that’s fascinating. I agree that I wouldn’t let this totally go yet, especially if you aren’t sure if his reflux meds are high enough. Also, in our case with reflux paired up with multiple protein intolerances — even though our child grew well– it seemed his gut just wasn’t right from day one (reminds me of Christine and teh celiac kids in her family). So, if some kids eat less because they don’t feel good, then it’s something to htink about. If they are just small because you haven’t mentioned that you are four foot 2 and so is your husband….well, maybe genetics can play a role as well. Sleep trouble and weight gain are both classic reflux problems, I would say because their esophagus’ get damaged and they are in pain adn sometimes associate pain with eating and there starts the problem. Are you nursing? Does he look healthy to you? Does he seem happy generally?

[Anonymous]

i don’t know how long my kids have actually had celiac disease—-but whenever i said anything about the size of my children, people always said, “oh your kids are just small”, or, “you and kevin aren’t very big.” kevin was skinny as a child, but i was around the 65% when i was in junior high. i always thought of myself as a big girl. i don’t think i was as big as i imagined myself, but i was still above the 50%. i’m not sure what i am trying to say here, except that it can’t hurt to check things out before totally resigning yourself to the idea that your kids are just small. sylvia was failure to thrive before she had her fundo. even after her fundo she was failure to thrive for another year, but it was because of sleep apnea. you produce most of your growth hormone in the deepest stage of sleep—if you don’t get the deep sleep, you don’t produce enough hormone.

[Anonymous]

did your doc mention that celiac tests are not very accurate on really young children? do you know what tests he ran? kassie had a biopsy before we suspected celiac, but it did not show celiac, tianna’s test showed no damage, but it did show one area of increased intraepithelial lymphocytes, the ped gi did not biopsy molly. my girls were all diagnosed with the Ttg blood test. when the doc tested our whole family, he ran a total IgA serum and a Ttg IgA.

i really hope your daughter does not have celiac, but if you HAVE to have an autoimmune disease, celiac is the only one that can be controlled completely with diet.

[Anonymous]

Chrisitine,

She didn’t say “deficient,” she said “low.” I’ll have to get the scoop once I talk to her on Tues/Wed b/c now I’m confused! Thanks for your feedback and I will surely keep you posted b/c if she does have celiac I will need all the resources I can get! Thanks again!

[Anonymous]

did your doc mean that she is IgA deficient? one of my kids is IgA deficient and we had to do specialised testing to know whether or not he has celiac disease. he has the gene for it, but no disease at this time. there is no history of celiac disease in either kevin’s or my families—-and 3 of our girls have celiac disease. they have been gluten free for over a year, now. only one of my girls had what you would call “typical” symptoms—-but that is not how we discovered the celiac. it was suspected in one of my twins because of some rashes she had (it was suspected because of my research on the internet). we tested the rest of the family because we knew it was genetic, and discovered the two other kids had it.

gluten is contained in ALL wheat products—including spelt. it is also contained in barley and rye. most oat products are not safe for a celiac either—they are cross-contaminated, although you can, for a price, find guaranteed gluten free oats. my girls have no problem with these. if it turns out your daughter has celiac, let me know, i can direct you to some good products, cookbooks, and gluten free companies. gluten free is not difficult, but it can be inconvenient at times.

[Anonymous]

Hi everyone,

Thanks for your feedback and for your concerns! We had the endo and the GI spec said that everything looked normal from what she could see. She did 3 biopsies and we should have the results by Tues or Wed. A part of me was relieved that there wasn’t anything serious found, but another side of me was frustrated b/c i want to know what the heck is causing all of this discomfort in Corinne!! Hopefully the biopsies will show something. The IgA test (test for Celiac disease) came back as a false negative, therefore, the biopsy will hopefully show if Corinne does indeed have a gluten intolerance. If this is the case, we would have the answer to all the problems she’s having….hopefully!!! I’ll keep you posted…thanks again for your caring hearts!!

[Anonymous]

Hi all,
i’ts been quiet a while since i visited the site. I bet i missed a lot!

We have had quite a week. We went to see the Ped GI last wesnesday and we left dissapointed. I really had high expectations; It might sounds unrialistic i know, but i was really hoping Dr. A will be solving all Kendra’s feeding problems. He took a look at Kendra and told us the same thing our ped has told us: “she has a severe oral aversion”. He wrote us a prescription for OT/SP and I left defeated and descorouaged. i had pesimistic thoughts for while “My baby is just going to have this feeding problems for ever”.
We came home and the next day (thursday March 15th) took our older dd to Disney for her 5th birthday as we have promised her before Kendra was born. It was a VERY stressful trip b/c of kendra’s feeding issues, but we manage to make it fun for Melanie. We came home early monday morning and kendra was sick with a cold and was drinking less and less. took her to the ped and found out she has lost 7 OUNCES in 4 days! i broke down in tears at the ped office. I just felt so upset. It takes us about a month to get her to gain that much, and she lost it in 4 days!
I think it wa good i cried (even though it was not intentionally) b/c the ped really paid attention to Kendra feeding problems at that point. She ordered all kind of test including allergy test (celiac, and other wird ones) and refered us to an allergist (we go to see him April the 11th). Some of the test came back negative and some she said the allergist will be discussing with us in our apppointment.
Since kendra has lost so much weight and there was no WAY of making it up, she admitted her to the hospital and placed a NG tube in. They told to stop the Breast milk and started her on pregestimil ( iam still pumping until i know for sure there is a severe allergy problems). While in the hospital they fed her every three hours around the clock. The poor thing was exhausted from no sleep and terrified of the nurses and doctors who came in to see her. She looked a t me every time , like “mommy who are these people and what are they doing? so sad. We were in the hospital for two days and while there i was taught how to feed my baby through a NG tube. Never in my wildest dreams, i thought i would be doing something like that with my child.
I know is not the end of the world and i am thankful that she can get some nurishment some how, but i was really hoping she would get better. We are meeting with a Pediatric Surgeon next wesneday to discuss a G-Button, since her feeding aversion would take time to overcome. So there is where we stand now. We have a NG tube and we start OT hopefully Tuesday, just to work with her sensory problems, but not food until they place the button.

i guess i have lost of questions for all those brave moms who children get their main nurishment thorugh tube feeding.
1.What’s the best button to get placed (Bard, Mickey)?
2.i am sure the Ped sergeon will give me some info about that, but what does this work? they get the surgery first to place the tube, then a few weeks later she get the button? what are the discomfort of this surgery? complications? ( i am researching like crazy now, but your experinces its very important to me)
what else should i be asking?
iam sorry for all the questions and thanks ahead for any advice and for the support.

__________________