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Topic: Formula
I am a proud grandmother of a beautiful 6 month old boy who has had problems with digestion. The colic improved with gripe water but now he is doing a lot of spitting up. I believe he is starting teething although there is no sign yet of teeth. My point I want to bring up is this! Our grandmothers and great grandmothers didn’t have Zantac, doctors who didn’t listen and formulas! They had breastmilk and if that didn’t work they used diluted cow’s milk! I seriously believe that the formula industry has gotten our babies into all this trouble! There is too much iron in it (they were trying to stave off anemia but now are rethinking this issue!). Is there anyone in this country brave enough to question what is in the formulas we are feeding our children? Read the label moms! It’s not milk!
proud grandma 2012-08-24 18:41:18 We see the GI doctor tomorrow for a follow up visit. (See 23 months and no hope post). Ds is drinking his Elecare better now and has stopped screaming all day after stopping the Carafate (he was on it a month). I think the Carafate may have helped in that he is drinking now, but also slowed his lower gut (even with the extra Miralax) so much it caused extra pain there. He is still uncomfortable some, more in the evening and some nights are still restless. He does seem to have some good nights (sleeping several hours in a row without screaming), which is a new to us. I think I may have noticed a pattern (testing it again now) of increased restlessness and pain at night when he has his Elecare at 4pm (we cut out the 7pm Elecare) . When I don’t give him formula at that usual evening time (9 oz of liquid) his night seems better. He eats solids at dinner around5:30pm and then maybe some Cheerios around 7 if he is still hungry. Just water with dinner or cheerios.
So, I wonder if it is the extra fluid causing more reflux in the evening/night or if it is the corn in the formula? He has never had soy other than what was in my breastmilk early on before I took that out of my diet. This is the first time we have been doing without Elecare after lunch. So, reflux b/c too much fluid near bedtime (yes he sleeps elevated) OR corn problem OR both. Corn is the one thing I never cut from my diet when breastfeeding or from a formula. He went right from breastmilk to Elecare. I have never tried rice milk with extra fats added b/c rice use to really bother him too.Ds is starting therapies with ECI (speech, feeding, etc) and they recommend a swallow study. I plan to ask the GI. Hope she will do it. They want to make sure he is currently not refluxing so much he could aspirate. He has never had an URInfection.So, is there a way to try ds without corn? Right now he seems to somewhat tolerate 2 1/2 oz of turkeyor beef (stage 1 baby food), pasta about 1/2 cup, 1 cup Cheerios a DAY. If I take away the Elecare what could I use to replace it? Just try to increase solids (in the past has made things worse) or try some soy milk and take away the corn.I am so nervous to try anything since it seems like every time I try something it gets worse.
Can you think of anything I need to ask the GI doctor this go round? Would be nice to know for sure if it is the reflux or the food intolerances that is making him so uncomfortable. I know it may be both. Just want to feel like we are getting somewhere. I don’t think you should have to feel nervous about feeding your child, but sometimes I guess you just do.BlessedMomHi everyone
Please help me, I am stressed and exhausted and feel like I am just surviving and barely coping anymore!
I am a Mummy of 2 lovely babies – DD is 21months old and a former silent reflux baby which was managed with 15mg omeprazole (10mg morning, 5 at night) and neocate. This combination worked for her from 5months old ish and by 10months she was on regular formula and solids and had been weaned from omeprazole.
DS is 6 weeks old and appears to be suffering more severely than DD ever did. He was born at 36 weeks and has had problems feeding since day one. I initially tried to kid myself that it was only a problem with breastfeeding and moved him over to formula at 10 days. Things have gotten progressively worse with feeding.
He is not a colicky or easily upset baby. When fed and his tummy is settled he is an angel baby and sleeps well and is a content and happy little man. But his tummy issues are so bad that he spends 90% of his time fussing, crying and extremely hungry but unable to feed.
He acts hungry – rooting etc. and eager to latch on to the bottle but the trouble either starts immediately or after an ounce. He starts to choke on the milk, comes off the bottle and cries, coughs, splutters, squeaks, gags and cries. Then latches on and takes another few sucks and does it again. After 10/15mins of this he is quite distressed. After about an hour he is getting so distressed but still willing to suck I end up giving him his dummy and cuddling him to sleep. He wakes hungry again 45mins or so later. This goes on all day generally with him managing 1-2oz every 2-3hours (this has regressed from 3-4oz every 2-3hours at 2-3weeks of age) until eventually at some point early evening he is just too tired to protest at feeds anymore and easily takes 3oz every 2hours. He feeds really well from about 6pm – 2am and is then back to his tiny amounts every hour with screaming 🙁 His usual milk intake is 18oz on a bad day to 25oz on a good day.
His feeding fits the description of infant dysphagia (I think he has a problem with swallowing which may be because of pain in his throat from refluxing) but I have mentioned to his paediatrician who dismissed it and said that it’s just a general term for difficulty feeding and most reflux babies have trouble feeding.
We have seen a few paediatricians in the local hospital but the trouble is we live in a small area of Scotland and I don’t think the paediatric team have too much experience with reflux.
He has been on omeprazole (LOSEC MUPS) 5mg for a couple of weeks with no difference. I upped the dose to 10mg on Friday and think he may be a little less irritable between feeds but his feeding has not improved at all.
We tried Carobel thickener which made a HUGE difference to his swallowing (able to finish 5oz bottles) but it causes eczema, extreme diarrhoea and colic/wind within a few hours and ends up with DS then screaming and refusing feeds during the night as well. The longest we managed to stick with Carobel was 10days before I had to admit defeat. I have tried other thickeners – baby rice cereal which goes grainy and makes DS choke and splutter even worse and cornflour/starch which doesn’t have the creamy, sticky easy texture of the milk that Carobel does and wasn’t helping him.
I have tried infant gaviscon, SMA Staydown milk (anti reflux formula that thickens in the stomach) but these don’t do anything at all except give DS severe constipation.
He hardly ever projectile vomits (only when I have laid him down too quick or haven’t got all his wind up or if I try to use wind drops) and some days he barely brings up any milk at all. Other days his milk seems to stay in his stomach all day and he just doesn’t get hungry and constantly brings up mouthfuls of curdled milk. Other days he is starving all day and constantly spills mouthfuls of watery milky sick.
He is prone to constipation but I manage to keep this under control by giving a little extra water each day and a tiny dose of lactulose if he has gone more than 24hours ish.
Apart from the feeding difficulties DS just does NOT sleep at ALL. He cluster feeds to late night, has a good 2hours after midnight then starts the fussing and upset at 2am again every night without fail. In his sleep he is restless and grunts, strains, back arches, cries out, gulps, coughs and chokes and mouthfuls of sick constantly from one feed to the next. In between all this he gets hungry and demands (screams!) for his bottle but can only manage 0.5oz – 1oz and then finally settles down and sleeps 45mins max before waking again. It is literally a living hell because I have my almost 2 year old to get up with during the day. I’ve had to stop driving because I’m so sleep deprived I can’t concentrate on the road.
It is extremely difficult to get help as his paediatric team barely know anything about reflux at all. They won’t increase his dose beyond 5mg omeprazole (I have increased it against their advise) and when I asked about adding ranitidine as well they told me that they generally don’t use that medicine here. I have asked about domperidone but they have said it is only used for babies who forceful vomit.
I asked about alternative thickeners since this helped his feeding so much but I was told that there are NO alternatives for babies under age 1. DS feeding is getting progressively worse with average intake dropping every week and I feel that it is only a matter of time before his weight gain slows or stops – at the minute he is gaining brilliantly 6-8oz a week (5lb9 at birth, 8lb8.5oz today). I asked what would happen if the feeding difficulties continue and was told the next step would be tube feeding if his weight was affected 🙁
I have heard of something called Xanthan Gum so have ordered some and hope to try it as a thickener.
I have considered Neocate (I’m sure I would be able to get a prescription for this) but I don’t feel that DS shows any intolerance symptoms except when we have used Carobel.
I have tried everything and am running out of options. I cannot go on like this for months and months, feeds are hellish and I end up in tears with DS. And it breaks my heart because he is constantly hungry and eager to take the bottle but he tries so hard and he just can’t get enough milk down him.
I tried –
Homeopathy (no difference!)
Charcoal which didn’t make much difference but really helps gas
Various gripe waters (no difference?)
Ginger and fennel (no difference?)
Making DS wait longer between feeds (makes him worse)
Every combination of bottles and various teats I can find
Keeping him upright (helps a bit)
Propping upright for sleep (helps a bit)
Tummy sleeping (helps the most)
Please make suggestions on what I can do next for my brave little boy x
you’ve found a great place to research & (hopefully!) find some answers!
I would NOT trust a compounded PPI, nor would I even consider a low dose, However, I am not YOU & you must research to decide:Prevacid 101:
scroll to the last page of this post, (it’s actually also about other PPIs like prilosec, too)
https://www.infantreflux.org/forum/forum_posts.asp?TID=1936&PN=0&TPN=1there’s A LOT of info…I don’t mean to overload you, but it’s important to read & learn all you can to best understand everything and to help your baby (& your whole family, especially YOU, sleep-deprived mama!)here you go, to start, lol!Reasons a breastfeeding mother might think her baby is reacting to something in her milk:
*poop that is not ‘normal’ mustardy yellow, seedy breastfed baby poop
*mucous in poop; mucous can look like: snot, jelly, cottage cheese, stringy like the inside of a banana
*foul-smelling poop
*stinky, foul-smelling painful gas
*straining and grunting to poop and, when baby finally does poop, it’s soft
the TED takes two weeks and then you start adding foods in to see what you CAN eat.
Research all you can! You are your baby’s best advocate!
Look for all posts by Erinntx! (be SURE to read her ‘sticky’ – the link is below)
here’s some more light reading for you
: MSPI ‘Main’ page:
https://www.infantreflux.org/forum/forum_posts.asp?TID=2697
best EXPLANATION OF FOOD ALLERGIES/INTOLERANCES and their RELATION TO REFLUX that I have found, to date: 2nd post: https://www.infantreflux.org/forum/forum_posts.asp?TID=2697&PN=2
Misconceptions about how Neocate & Elecare work: https://www.infantreflux.org/forum/forum_posts.asp?TID=6013
THIS IS REALLY IMPORTANT:
Erin‘s sticky: https://www.infantreflux.org/forum/forum_posts.asp?TID=12948&PID=105126#105126
More Erin: https://www.infantreflux.org/forum/forum_posts.asp?TID=13175&PID=106395#106395
Erin post: https://www.infantreflux.org/forum/forum_posts.asp?TID=13576
Great anne post: https://www.infantreflux.org/forum/forum_posts.asp?TID=9242More recent post – TED and success also using probiotics
https://www.infantreflux.org/forum/forum_posts.asp?TID=15293&PN=1
Exposure to foods & blood testing: https://www.infantreflux.org/forum/forum_posts.asp?TID=12993
Sheri’s allergy/intolerance explanation: https://www.infantreflux.org/forum/forum_posts.asp?TID=10223&PID=87638#87638
Another Sheri explanation- intolerance/allergy post:
https://www.infantreflux.org/forum/forum_posts.asp?TID=11579&PID=97442#97442
Accuracy of allergy testing & great post by sherri explaining IgE and IgG (intolerance/allergies) https://www.infantreflux.org/forum/forum_posts.asp?TID=10815
(sue again, replying to gina- breastfeeding info to (TED)https://www.infantreflux.org/forum/forum_posts.asp?TID=11324&PN=1probiotics, brands used:
https://www.infantreflux.org/forum/forum_posts.asp?TID=8970&PN=1
erin posts that mentions enzymes:
https://www.infantreflux.org/forum/forum_posts.asp?TID=12781&KW=enzyme
https://www.infantreflux.org/forum/forum_posts.asp?TID=12610&KW=enzymehttps://www.infantreflux.org/forum/forum_posts.asp?TID=12227&KW=enzyme
Post from me:
https://www.infantreflux.org/forum/forum_posts.asp?TID=12200&KW=enzymeTopic: New
I’m Melinda, im 24. I have three awsome kiddos.
DS is 4yr11mo DD1 is 2yr9mo DD2 is 4moThey keep me on my toes but i like it. We live in massachusetts and i will be homeschooling this year. I practice self weaning with breastfeeding. Both the girls are still nursing. I practice extended rearfacing and extended harnessing, both the girls are rear facing and DS is harnessed. I find that i have alot of similarities with the attachment parenting lifestyle but don’t neccessarily label ourselves as an AP family. I prefer to do things the natural way and i’m not big on medical interventions as a whole. That being said I’m a nurse and we all see our drs for wellness checkups in addition to seeing a chiropractor monthly and a naturopath as needed. We cloth diaper, wish we had the finances to eat organically. Starting to make my own cleaning supplies. I like being crunchy. lolYoungest has ?reflux? and we’re trying to make a plan of action for her.Thanks ladies.hi & welcome!
what are poops like?yellowy/mustardy/seedy breastfed baby poops?if not…read belowReasons a breastfeeding mother might think her baby is reacting to something in her milk:
*poop that is not ‘normal’ mustardy yellow, seedy breastfed baby poop
*mucous in poop; mucous can look like: snot, jelly, cottage cheese, stringy like the inside of a banana
*foul-smelling poop
*stinky, foul-smelling painful gas
*straining and grunting to poop and, when baby finally does poop, it’s soft
the TED (Total Elimination Diet) takes two weeks and then you start adding foods in to see what you CAN eat
.Research all you can! You are your baby’s best advocate!
best EXPLANATION OF FOOD ALLERGIES/INTOLERANCES and their RELATION TO REFLUX that I have found, to date: 2nd post: https://www.infantreflux.org/forum/forum_posts.asp?TID=2697&PN=2THIS IS REALLY IMPORTANT:
Erin‘s sticky: https://www.infantreflux.org/forum/forum_posts.asp?TID=12948&PID=105126#105126
More Erin: https://www.infantreflux.org/forum/forum_posts.asp?TID=13175&PID=106395#106395
Erin post: https://www.infantreflux.org/forum/forum_posts.asp?TID=13576
Great anne post: https://www.infantreflux.org/forum/forum_posts.asp?TID=9242My DS is 11 weeks and has suffered from constant gas pains since about 2-3weeks old. He grunts, squirms, cries until he farts and then begins the whole process again. He also only poops every 3-4 days unless I give him pear juice ( 1 oz diluted with 1oz of water) . We started the pear juice about 2 weeks ago. I have tried gripe water, simethicone…. with very little success. He barely sleeps at night because his farting routine wakes him. During the day, he cries/fusses unless I carry him upright. We live in a small remote city with no access to Specialists. We did see a Pediatrician and he said that my son is probably just colicky and is therefore hyper-sensitive to bodily functions such as farting. He also said it may be silent reflux and prescribed Nexium. I think the only reason he prescribed the Nexium is because my son cried during the entire appointment. Nobody seems to believe me that he only cries when he needs to fart – which is a good part of the day. Could it be silent reflux? Should I try the Nexium?
I should mention that I am breastfeeding and cut dairy out of my diet when this all began.
HELP!!!!
I would get to a lactation consultant and la leche league & get to breastfeeding? (or not! whatever you want
! continue to pump?) The La Leche League Breastfeeding Helpline w/access to toll free breastfeeding help 24 hours a day. Just call 1-877-4-LALECHE (1-877-452-5324)to find a local internationally board certified lactation consultant (IBCLC) click here:
Anyway, I would say not to give formula too, if you can help it, because Anyway, you can control what you’re eating & take notes and see how it affects baby…you can make your milk like elemental formula (for food intolerances/allergies)…if you do give formula, you might want to give neocate?
please read thisand please read this:hellbennt2012-08-03 11:21:38
hugs!
dashing out the door-I would start taking digestive enzymes/probiotics and cut out ALL dairy, not just some (since your daughter had issues)12lbs = 5.4kiloshighest zantac is 10mgs per kiloso 10 x 5.4 = 54mgsthat’s 54 mgs total for the day of zantacyour bottle of liquid zantac says 15mgs/ml
this means that for every 1ml of liquid you give, there’s 15mgs of the medicine zantac in that 1ml of liquid
so you take the 54 & divide by 15 = 3.6mls total for the day of zantac
you can give in uneven doses – more in the evening, etcReasons a breastfeeding mother might think her baby is reacting to something in her milk:
*poop that is not ‘normal’ mustardy yellow, seedy breastfed baby poop
*mucous in poop; mucous can look like: snot, jelly, cottage cheese, stringy like the inside of a banana
*foul-smelling poop
*stinky, foul-smelling painful gas
*straining and grunting to poop and, when baby finally does poop, it’s soft
the TED takes two weeks and then you start adding foods in to see what you CAN eat.
Research all you can! You are your baby’s best advocate!
Look for all posts by Erinntx! (be SURE to read her ‘sticky’ – the link is below)
here’s some more light reading for youMSPI ‘Main’ page:
https://www.infantreflux.org/forum/forum_posts.asp?TID=2697
best EXPLANATION OF FOOD ALLERGIES/INTOLERANCES and their RELATION TO REFLUX that I have found, to date: 2nd post: https://www.infantreflux.org/forum/forum_posts.asp?TID=2697&PN=2
Misconceptions about how Neocate & Elecare work: https://www.infantreflux.org/forum/forum_posts.asp?TID=6013
THIS IS REALLY IMPORTANT:
More
Great anne post: https://www.infantreflux.org/forum/forum_posts.asp?TID=9242Exposure to foods & blood testing: https://www.infantreflux.org/forum/forum_posts.asp?TID=12993
Sheri’s allergy/intolerance explanation: https://www.infantreflux.org/forum/forum_posts.asp?TID=10223&PID=87638#87638
Another Sheri explanation- intolerance/allergy post:
https://www.infantreflux.org/forum/forum_posts.asp?TID=11579&PID=97442#97442
Accuracy of allergy testing & great post by sherri explaining IgE and IgG (intolerance/allergies) https://www.infantreflux.org/forum/forum_posts.asp?TID=10815
(sue again, replying to gina- breastfeeding info to (TED)https://www.infantreflux.org/forum/forum_posts.asp?TID=11324&PN=1probiotics, brands used:
https://www.infantreflux.org/forum/forum_posts.asp?TID=8970&PN=1
https://www.infantreflux.org/forum/forum_posts.asp?TID=12781&KW=enzyme
https://www.infantreflux.org/forum/forum_posts.asp?TID=12610&KW=enzymehttps://www.infantreflux.org/forum/forum_posts.asp?TID=12227&KW=enzyme
Post from me:
https://www.infantreflux.org/forum/forum_posts.asp?TID=12200&KW=enzymebabywearing SAVED US!
https://www.infantreflux.org/forum/forum_posts.asp?TID=1044&PN=1Topic: Back Again
So I am devastated to be back on this forum with child number two. My daughter had GERD and was intolerant of milk, egg, nuts and soy. With a combo of Elecare and Prevacid, she outgrew everything but the asthma by the age of two. We were thrilled.
We finally had the courage to try for number two and the reflux is back in the house. My son is 7 weeks. To give you some background, he started refusing to nurse around 3 weeks and I have been exclusively pumping since 4 weeks. He gets mostly breastmilk and I have cut out most of the dairy from my diet as a precautionary measure.
He has started crying at feedings. He will eat two ounces, burp, try to get back on the bottle and then scream some more. He is hungry. He is also a very gassy baby. He burps fine after eating (which is a welcome change from my daughter) but he seems uncomfortable with the gas and only poops about twice a week.
The doctor prescribed Zantac, .75ml 3 times a day which we started today. I know that this is not enough– he is a big baby- probably about 12 pounds right now. We are also using the Dr. Browns bottles, he sleeps on an incline in a rocker or the bouncy seat and I give him as much tummy time as he will tolerate.
How long before I can expect the zantac to work? What are the next steps? Please help me get armed for our next peds appointment– the sleep deprivation is making me so emotional about this. I am just so sad that he has to go through this. I am not sure that I can handle a second round.
thank you
melissa
Leah 1/15/09
Gerd Free since 2011Benjamin 6/12/12
Zantac 1.5/ 3x dayleahsmom 2012-08-02 14:32:00
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