AnonymousInactive
ARG! I just typed a HUGE response and it was erased! Anyway, mostly it was about OAL. Your description sounds like my daughter EXACTLY, and her weight issues were largely because I didn’t realize I had OAL. She would only nurse for short times too. I knew what to do with my son though, and he has always been a BIG boy. Anyway, I’m in a rush. please PM if you have questions!!!
shelby posted this;
& here’s (part of) what I wrote:
I always like to recommend to breastfeeding mothers to seek all the help they can manage to find such as:
la leche league:
The La Leche League Breastfeeding Helpline w/access to toll free breastfeeding help 24 hours a day. Just call 1-877-4-LALECHE (1-877-452-5324).
& to find a local internationally board certified lactation consultant (IBCLC):
I would get to a IBCLC as soon as possible- they have sensitive scales & weigh baby before & after feeding so you can know exactly how much baby is getting from you
if you’re worried about supply:
I’ve read on ‘the boards’ to take: fenugreek & blessed thistle
take 3 capsules of each, 3x/day &
don’t panic if you smell like syrup!
oatmeal should help too!
AnonymousInactive
I’m sorry you’re going through this. I’m at the same stage you are so I can’t answer your questions, but I just wanted to give you a hug and some support.
Remember breastfeeding is so much more than just food. It helps with ear infections, and with many other immune system things too. Pumping and having some EBM available for nights sounds like it might be helpful to you, then you’d only have to the the burping dance during the day.
Maybe its worth waiting to see if the meds help it, they did help us some.
AnonymousInactive
is so so hard
I don’t look forward to the nursing sessions
It is so stressful. It feels like a wrestling match
He pulls away, arches, gets off the boob, relatches, cries. He poops while nursing and looks to be in so much pain and is never cotent at the end of the nursing. I also have to burp him like 3 or 4 times and it is so hard to get him to burp.
At this point, I am so ready to throw in the towel. I can’t deal with the stress and I am getting depressed about the whole thing. That compounded with the fact that when he is nursing, I am not sure he is getting enough. I don’t want him to stop gainign weight like my DD. I nursed her for almost two years. She refused to take the bottle. She had severe acid reflux and it was a nightmare. Once we got her on the right meds, she still didn’t out on weight adequately. SHe would nurse all night but only until I have a let down, then she didn’t want it. SO she would wake me up every hour, nurse for 4 minutes until I have a let down and then go back to sleep. We co-slept for a year.
My doc waanted me to put her on formula or whole milk as soon as she hit one year. He said she was only using me as a pacifier and not really gaining any weight because she wasn’t getting enough.
I am so worried that this will happen with this baby too. I really don’t enjoy breastfeeding him. I am sad to say because he seems to be in so much pain and it is never peaceful. I am tempted to pump and give it to him in a bottle. It is just so hard to wake up every couple of hours at night and nurse him and the whole process takes more than an hour between burping him, re-latching him thousands of times, trying to comfort him and keeping him upright for at least 20 minutes, it feels like I will never get any sleep. He seems to be happier when I give him the bottle too.
Any advice, please help

Does it get better when the meds start kicking in? Also why does he always seem to be in so much pain when he is pooping and it always seems to happen when he is nursing?
AnonymousInactive
Hi-
I have not been on this forum for a few months. My almost 8 mos old Brian has reflux but it has been under control the past few months with Prevacid and Carafate. He has been on Good Start formula since his first week as a supplement to breastfeeding and we switched over to 100% formula around 2 mos of age. We introduced solids around 5 mos of age and started with rice cereal, the stage 1 fruits and veggies. At 6 mos, we added oatmeal and some additional fruit and veggie combos. At 7 months, he developed a pretty bad rash around his mouth that wouldn’t go away. It is not there when he wakes up in the morning but it starts to appear during the day and gradually gets worse. At first, we thought it was from his pacifier so we gradually weaned him off that but he still had the rash. Then I thought it might be pears since it always seemed to get worse when he ate pears so I stopped pears but still the rash. I’ve also stopped oatmeal and sweet potatoes but no change. The past few weeks, he has also been wheezing and come down with a double ear infection. He is always congested now. The pedi says it’s just the time of year and chalks up his rash to the cold weather. But it gets very red with little bumps and blotches all around his mouth and on his chin but nowhere else. He has also become increasingly irritable and he hasn’t gained weight in about a month (he is 75th% for weight so I’m not overly concerned right now but I will be if this keeps up). I made an appt with a pedi allergist but it is over a month away. Does this sound like a food allergy? Any thoughts for tests I should ask the allergist to run? I know allergy testing can be unreliable in babies this young. Any suggestions for how to treat the rash in the meantime? I’ve been applying vaseline to it several times a day and putting a little hydrocortisone on it at night. Thanks for any input or advice! Kelly
AnonymousInactive
Tracy,
We saw a peak with both of our kids at the 4 month mark. Actually, that’s when we finally were able to diagnose what was going on with Claire. She was silent refluxer too, and the doc. just thought she was nursing so poorly and arching because of a supply issue. HA! Ben, however, was a HUGE spitter, and his also peaked around this time too. I didn’t really notice more spit up, but he was definitely more uncomfortable. We increased his Zegerid dose at the 4 month mark and haven’t had to do it since. (He had RSV at the time too, UGH!) Anyway, I was breastfeeding, so not on elemental formula, BUT I was on the elimination diet and his reflux still peaked at that time.
My theory is that ALL babies even non-refluxers start to spit more at that age because they are moving around more, becoming more active. Thus, for refluxers, the extra spit, is just too much for the previous meds. to control, pain wise that is. Don’t know if that makes sense.

Ben was also a BIG BOY! So much for the supply issues the doc. thought I had.
All that to say, maybe it wouldn’t hurt to try to increase the Prevacid, or maybe add in some Zantac?
As for the doc. that really stinks. I don’t think they realize how much eveything they say can really affect us. It seems odd to me that he suspects this for Ian when he is doing so well right now, eating anything and no reflux…
Bensmama2008-01-04 10:56:51
AnonymousInactive
Sorry, I just found one of my other posts about the same thing and I’ll post it here. There is a post above yours called sleep and napping or something like that and that mom was also having trouble and was getting the no cry sleep solution. You could always pm her too and see what worked for her.
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Joined: 06 June 2006 Location: United States Online Status: Online Posts: 938 |
 Posted: 09 July 2007 at 9:30pm |
I wish I could remember in detail what I did, but it basically went like this. I slept in the room where I wanted Justice to sleep. I wanted him in his room and in his crib. So, we put a matress on the floor in that room and that is where I slept. At his bedtime and once he was tired, I would sing him a song. Our song is Jesus loves you, then we pray. After that I put him in the crib. Here is where you can do what you think is best. You can either let them cry a little or just lay them back down once they sit or stand. With Justice I did both. Everytime Justice would sit or stand I would lay him back down. He is very determined so sometimes, I would just sit there and let him look at me and cry and then I would eventually go to him and start the laying him down thing. Once he would lay still for me I would rub his lower back in large circles. You will also want to keep a sleep journal so you can see the progress. I would have never known it was working if I hadn’t kept mine. With it I could see the amazing progress that he was making. I don’t like the cio method, but was okay with some crying. I think there was a big difference in Justice’s cry when I was in the room and when I would leave. When I was in the room with him he would cry like he was mad. If I left he got frantic. I have a friend that is big into no crying and she agreed with the whole plan. It takes much longer than crying it out does, but was worth it to me. Dr. Sears talks about how if your baby becomes very clingy when doing the cio method that you need to stop doing it. He does not agree with cio, but says if you decide to do it that is a sign that you should stop. I wouldn’t call what I did cio since he was never alone and I tryed to help him. I am still amazed to be honest that it worked.
A few other things are if you are breast feeding, you need to use your judgement on when or if to feed the baby. With Justice the first few nights I did fed him a few times because he had been eating all night long and I was very full and in a lot of pain. If any of this does not make sense please let me know. I feel like I am leaving some stuff out, but I think that was the basics. Oh, if you get aggrivated, LEAVE THE ROOM!!!!!!!!!! Even if for that night your baby has to cio. I would get very angry at Justice and just needed to leave. That is where my husband would step in or I would get on this site and vent. I would try not to stay away for too long, but wanted to be calm before going back. I hope something works for you soon. Please keep us updated. Oh, one more thing. My older son and husband slept in the same room together and they had a sound machine in the room with them also so that they were not being woken up all night long. It is tough, but so worth it!
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AnonymousInactive
Sorry to hear that you are dealing with this! I can relate! My baby is 4 months and woke me up every 2 hours last night. Your baby could certainly be on a PPI! You could try to go to a family doctor if it takes too long to get into a specialist. We got our healthy prevacid dose from a VERY kind family doctor who did a great deal of research on our behalf and called a specialist to get information regarding dosage. As for your doctor’s advice about giving a bottle, I think that you need to carefully consider. For the vast majority of women, supply is not an issue. So, it is only logical that frequent breastfeeding would lead to a healthy milk supply. I would guess that your milk supply is just fine and I encourage you to keep breastfeeding. That being said, 4 months is a common time for mothers to have problems with supply. I had a supply issue early on and Jackson was screaming CONSTANTLY! I thought that it was reflux related because he was also showing reflux symptoms. Also, I had been breastfeeding AROUND THE CLOCK so I did not think that it was possible to have a low supply. He refused to be put down and insisted on sleeping on me at all times. He would nurse for 5 or 6 hours at a time and cry the entire time. I thought he was comfort feeding. The doctor said that he was just hungry and that I should try a bottle. I did not believe her because I was convinced that he was comfort feeding. Reluctantly, with tears in my eyes, I gave him a bottle. He smiled and cooed for the first time! He truly was hungry. Since that day, he has had bad reflux days, but he does not scream like he did when he was not getting enough to eat. There is a dramatic difference in his behavior. I am sad when I think about the fact that I was not successful with breastfeeding, but I do not regret giving my son the food that he needed. Every situation is different and I hope that you can keep breastfeeding. I am definitely not trying to discourage you. I just think that it is important to hear from people who successfully breastfed and people who had breastfeeding problems. Chances are, you do not have any issues and breastfeeding really is best for reflux babies (all babies, for that matter). But, for me, it was better to give my baby formula than let him go hungry. I am just an example of someone who really did have a supply issue- it can happen. If you decide to experiment with a bottle, be sure to pump a lot to keep your supply up. Good luck with breastfeeding and good luck getting a PPI. Hope you get some relief and sleep very soon.
marci-kids ‘invented’ chocobase, so if your doctor in the past was ok w/ you using chocobase, then you can use this as a reference when explaining marci-kids. the ‘inventor’ of chocobase is dr philips (he’s a dr of pharmacology) and he and marci-kids are at the forefront of researching the use & dosing of PPIs in infants. he will actually even correspond with your dr if you ask him!
as for early onset of reflux, my son was born with it, so yes, it can happen even at birth…
as for the solutabs- I would see about getting chocobase (or caracream)again as you don’t have to time around feedings…in the meantime, yes, I’d get solutabs- there are many here who use a pill cutter to split them, so yes you can use the higher dose tablets…
I would also highly recommend you get to an Internationall Board Certified Lactation Consultant:
and also contact la leche league: The La Leche League Breastfeeding Helpline – US began on June 1, 2007. Everyone in the U.S.A. will have access to toll free breastfeeding help 24 hours a day. Just call 1-877-4-LALECHE (1-877-452-5324).
if you think you have Overactive Letdown, yes, this can exacerbate reflux…
and here:
as for asking the dr about mspi, I don’t think there’s any kind of ‘test’ for this- there’s a difference b/t intolerances & allergies, and there’s an amazing article linked from the ‘main’ mspi page that explains it all really well:
I hope this helps!
I don’t mean to overwhelm you…
~laura
Shelby,
this is one of the (many) reasons why I cannot seem to leave this forum; there are too many people who are told things by their doctors that simply aren’t true!
I have learned that there are very few times where it is best for a mother to stop breastfeeding. This thread should really help clear this up- it’s the Misconceptions about Elemental Formulas thread:
I was fascinated to learn that:
This statement is correct as of 2004: 1 out of every 10,000 babies is allergic to breastmilk.
“1 out of every 10,000 babies sounds like nothing, but what it amounts to is approximately 22,000 babies every year in the U.S. alone who are allergic to breastmilk. It isn’t really that “out there” and unfortunately, according to a study published in the New England Journal of Medicine in August of 2004 it is rapidly on the rise.”
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
anyway, there are a lot of resources to help a breastfeeding mother of a refluxer, although it can seem like there’s no help in sight if you’re the one in the middle of the nightmare and your esteemed doctor is telling you it’s “your milk (or not enough of your milk).”
I always like to recommend to breastfeeding mothers to seek all the help they can manage to find such as:
la leche league:
The La Leche League Breastfeeding Helpline w/access to toll free breastfeeding help 24 hours a day. Just call 1-877-4-LALECHE (1-877-452-5324).
& to find a local internationally board certified lactation consultant (IBCLC):
I also found that the Dr. Sears Elimination diet
really helped me to know what exactly it was that I was eating that affected my baby & his reflux
I hope this helps,
~laura
AnonymousInactive
Hi everyone,
I am new here. My baby boy Gavin is two weeks old and is already starting to show signs of acid reflux. I know it is acid reflux because my DD had severe acid reflux and by the time we found the right medication/dosage, she had dropped from 75% weight below 25%. It was hell living that experience. I prayed so hard that with this baby will not have to suffer through this but no luck. He has been fussing and crying at each feeding. He is breastfed and I pump and give him the milk in a Dr Brown bottle once or twice a day. He seems to lose interest in eating during the day. He will nurse for at most 5 minutes and then fall asleep. He is very squirmy and gassy. Arches his back and pulls away and sometimes starts crying as soon as he starts nursing. I am so worried that he will stop gaining weight and want to find a solution as soon as possible so he doesn’t suffer any more. We have inclined his little portacrib. He seems like he is hungry every hour on the hour. My boobs are so soar from latching and re-latching.
I am also worried that my milk will go down because he is not eating well.
I called his pediatrician and he prescribed Zantac 0.5ml twice a day and he told us to call back in a week if it is not working. Zanatc did nothing for my DD and we had to put her on prevacid and have it compounded with that chocobase stuff. It was very expensive because we had to get a new prescription filled every couple of weeks.
My son weighs about 8lbs and I looked at the chart on Marcikids for the appropriate dosing and the chart gives data after 1 year of age. WHat about below that? The doc said that he will put him on prevacid if Zantac doesn’t work after a week so I need to calculate the dosing to make sure that he gives him the right dose. Also, can Zantac make the baby sleepy? My son hates it because of the alcohol taste but we have noticed that as soon as he takes it he is so leepy. I am also going to order the tucker sling.
I feel like we are living this awful nightmare all over again. Having a newborn is supposed to be a beautiful experience. Acid reflux is making it so stresful and I am so depressed about the whole thing.
Thanks for listening

AnonymousInactive
I know you were not at all saying FF moms are bad moms, that is some great info. I wanted so bad to BF Landon, but I couldn’t. I was told it was due to him having reflux, but I think it really had more to do with him being premature. The 1st time we tried to BF, he turned blue, I pummped for him for 4 months and he got my milk mixed with AR to thinkin it until he was 8 months old. I did try more than the one time to BF him, he turned blue each time. I wonder now if I would have tried after we got home and he was past his due date if he would have done better. I never tried once we got home I was too scared of him turning blue from the reflux. I am not planning on another baby but if I ever do I will have more info. Thanks
AnonymousInactive
First thing I will say is, I am in no way saying that any mom that decides to formula feed is bad. I am in no way trying to make anyone feel guilty for their choice. I am trying to arm moms with the correct info. Too many of us have been told by our child’s dr to stop breastfeeding for one stupid reason or another. Some of the reasons even sound very logical, but when you really look into it it’s just not logical at all. My personal opinion is these drs. need to be sued for the pain and anguish that not only baby, but mother have to go through. By the way, I’m not into sueing people at all, but want drs. to stop using their medical degrees to scare mothers into stopping breastfeeding their babies. Here is some info from Dr. Sears about how breastmilk is better for a reflux baby.
I know shocking right? Because we are lead to bellieve that formula will fix it all. Breastfeeding not only helps baby, but mom too. There are hormones that are released that help mom with the stress. Sorry if any of this sounds harsh, but I am so sick and tired of hearing one mom after another being told to stop breastfeeding her baby because they have reflux. It’s just not right. If they would give our babies the correct meds, the right dose, and right info on how to give it most of them would be just fine. Even the ones with mspi. My son is mpi and still breastfeeding and doing fine. I just don’t do dairy. Sadly most drs. first thing they want you to try is not breastfeeding and giving a formula. By time you realize your baby is not doing well on the formula your breastmilk has dried up. Then your sad about that and you still have an unhappy fussy baby. Got to love those drs.
Breastmilk is known as the “easy in – easy out” food. It’s easier to digest and makes easier- to-pass stools. Whey, the predominant protein in breastmilk, forms an intestine- friendly, soft, easy-to-digest curd, unlike the rubbery, harder-to-digest casein curd formed in the digestion of most formulas. Tiny tummies like breastmilk. It’s digested more quickly, and is less likely to come back up. It doesn’t leave permanent stains on clothes either.
While all babies spit-up a bit, some regurgitate excessive amounts of milk, because of a condition called gastroesophageal reflux (GER). Normally, the circular band of muscle where the esophagus joins the stomach acts like a one- way valve, keeping milk, food, and stomach acids from backing up into the esophagus when the stomach contracts. When it doesn’t do its job and these acids enter the esophagus, the result is an irritation that adults would call “heartburn.” In many infants, it takes six months to a year for this muscle to mature enough to prevent this regurgitation, or reflux. GER occurs less often in breastfed infants because breastmilk is emptied twice as fast from the stomach and because breastfed babies tend to eat smaller meals that are more appropriate in size. It’s less likely to be regurgitated than slow-to-digest formula with its tough casein curds.
“At age five months and four pediatricians later, Jacob was diagnosed with gastroesophageal reflux. I am forever grateful I did not give up! The goal of one of Jacob’s reflux meds was to help digestion, so he would not reflux. What could be better for him than the most easily digested food for babies…mom’s milk! When the specialist first met Jacob, he was shocked to see him looking so happy. He told me that most babies with that degree of reflux failed to thrive and were very sickly. I am convinced that Jacob did not fail to thrive because he was nursed.”
AnonymousInactive
Well I thought I would provide an update since it has been a while. I thought we had turned a corner. After having tried the Prevacid for 10 days (with no Zantac) and things getting worse, we went back to the Zantac. We also went to a breastfeeding doctor – Dr. Newman. This was about two weeks ago. Dr. Newman noticed that Cole had a tongue tie so they cut it. This was also now at day five of being back on the zantac. Well the next day, the feeding improved dramatically..it was like he was now a breastfeeding pro. He would stay on for 10-20 minutes. This stayed pretty constant till about last Friday. We went to our pediatriction appointment and Cole had gained about 16 ounces in two weeks – amazing. Well, it was too good to be true. Our peditriction did adjust the Zantac to 1.8 2x a day (from 1.6). Although he had gained weight, he had stopped sleeping well at night – waking every hour. My wife thought he might have had an ear infection so took him to a walk in clinic three days prior to our pedi appointment. The walk in doc thought that an infection was starting and put him on amoxicllian. However, at the pedi appointment she saw it was clear and told us to stop using it. Well, ever since Friday, the feeding has gone downhill again. He was back to the old pattern of only staying on the breast a short time and then pulling off crying. He just won’t feed during the day – breast or bottle. His intake is now on the decline again. He seems to be taking oatmeal and some solids well but not interested in breast or bottle. I wonder if he as plateaued on the Zantac even though his dosage had increased to account for the weight?? We are starting to feel so helpless and worried again about his lack of eating..especially since he seems hungry. How could it all get bad again so quickly?? I am running out of answers.
Thanks for listening.
Adam
AnonymousInactive
We went to GI last week and he was worried about my little DD’s feeding aversion. She is 7 months and weighs 6.8K.G. . He decided to give her a barium test; it went very well. He also said that an endoscopey was necessary, so I reluctantly agreed and she had it done last Friday.
They discovered that my DD has an unusual thing (1 in 800) where the first part of her small intestines is vertical instead of horizontal! The GI said that many people , who have it, live normal lives but it could affect her reflux. They also did a biopsy and found that she did have oesophagites but it seems to be healing. Finally, she had no allergies.
My DD has been on medication ever since she was 6 weeks. She started with Zantac, then motilium, then zoton (prevacid) and finally losec ( granules). The GI decided to put her on LOSEC MUPS 15 mg 2times a day ( we just dissolve it in water).
My DD stopped breastfeeding at 6 months due to her horrible feeding aversion so we put her on neocate, but the GI suggested that we switch her to Enfamil AR. Ever since her barium, she started feeding better ( 3 solids per day + 4-5 bottles of 120 Ml). However, in the last 2 days her feeding got worse. She is refusing the milk at all times and would only eat solids (with no milk added).
We are so confused and don’t know why the sudden change in appetite? She seems to be happy but would only take water and solids… She needs to take at least 500 mls of milk per day; I heard that yougurt is a god alternative, is it? The GI said that we will have days like that. Our last alternative is to operate to fix her small intestines , but we really don’t want this …