- This topic has 65 replies, 1 voice, and was last updated 7 years, 4 months ago by Anonymous.
July 28, 2013 at 7:05 pm #72507AnonymousInactive
Please help, this is my second time around with silent reflux and it’s not any easier. Here is what’s happening. I could really use your help.
- Daughter born 6 weeks early (now 1 week adjusted)
- On breast milk but via bottle (I pump exclusively)
- Supplemental formula (Neosure, milk based) per the NICU to catch her up with weight gain. Stopped formula after 4.5 weeks.
- At 4.5 weeks she started crying during some feedings; arches back, goes for the nipple and seems hungry but after swallowing pulls back and screams, loud gulping and squirming (previously she would eat very peacefully and loved the bottle).
- Can only take 1 – 2 oz before the screaming and crying starts (previously she ate about 4 oz per feeding, comfortably)
- Stool is yellow but seems very water, previously was ‘seedy’
- Stool went from several times a day to once every couple of days
- Some gas (smells bad)
- Some yellowish patches of eczema between her eyes and on her ears (not much but enough for me to notice)
What I’ve tried
*I stopped dairy completely and stopped giving her the Neosure since it’s milk based. She is now getting all breast milk for the past 3 weeks.
*Zantac 0.3 ml every 12 hours
*Had stool tested for blood, it was negative
*Tried different bottles and nipple flows
*Lactation consultant – tried breast feeding her (she falls asleep and won’t feed)
*My son had the exact symptoms in 2010 and had failure to thrive. He was diagnosed with MSPI and GERD. It took 14 months to get things under control largely due to Neocate and Prevacid.
My daughter’s feeding problems are escalating. Nearly every feeding seems painful for her now. She went from eating 28 oz a day to about 14 a day.
1. Does this sound like an allergy to anyone or something else?
2. My health insurance said that in Feb 2013 the FDA no longer approves Prevacid or other PPIs in babies younger than 12 months. I can’t switch health insurance and all the Doctors are under the same constraint. Prevacid really helped my son – any ideas on what I can do?
4. Is she too young for Prevacid considering her age and being a preemie?
5. Any other ideas?
6. If you are kind enough after reading this post, would you please say a quick prayer for us?
NatalieJuly 31, 2013 at 8:10 am #72508
I was away!
Research more about these FDA findings bcse from what I understand, no meds are really approved for infant use?
No one wants to test meds on babies…
There’s info here about difference b/t allergy & intolerance
Use search button & go BACK
Sounds like intolerance
Find post about finding ped gi near you
More later 🙂July 31, 2013 at 1:48 pm #72509AnonymousInactive
Ok talked to doc and getting a GI specialist who will give us Prevacid if the higher dose of Zantac doesnt work. i just started it yesterday. I also found The eczema is actually cradle cap on her forehead and brows so I’m not sure if she is reacting to something. I will read up on intolerance.
Thanks for your reply. NatalieJuly 31, 2013 at 4:22 pm #72510AnonymousInactive
In my experience, most “regular” pediatricians will not venture into giving Prevacid to an infant. If you can find a good pediatric gastroenterologist, they may work with you to “off-label” prescribe Prevacid based on the fact that the benefits outweigh the risks…and the sooner the better…the longer you wait, the higher the chance you will be dealing with more feeding aversions. Having said that, age/weight/health of your child play a big role in how much intervention doctors are willing to do. My daughter also had cradle cap…it’s pretty common with infants and, at least with her, completely unrelated to reflux issues.July 31, 2013 at 5:10 pm #72511AnonymousInactive
Thank you for your reply. Do you know how long before feeding aversion usually sets in? The doc seemed to think it was way too early for that. However this is the same doc who thought cradle cap was eczema…July 31, 2013 at 7:39 pm #72516
some links (that’s what I do
is vital that the young child receive proper medical diagnosis and treatment Feeding Aversion:
The role of reflux in developing unusual eating patterns
It is clear that many infants and children with GERD develop negative associations with feeding due to the reflux pain that feeding has caused them. If their pain is not managed adequately, the infant or child may develop secondary behavioral symptoms of food refusal, selectivity and oral sensitivity which can negatively impact growth and maturation and can lead to delayed acquisition of feeding skills. Infants and children with GERD may be hypersensitive to tactile sensations therefore do not explore objects with their mouths, which can lead to a lag in the development of the oral sensori-motor skills required for feeding. Introduction of spoon feeding may be delayed due to lack of readiness skills or noted increase of symptoms with introduction of solid foods. Young children also may have difficulty advancing to textured foods and may gag or choke while feeding. These symptoms (i.e., food refusal, selectivity and oral sensitivity) put stress on the feeding relationship between the young child and caregivers and may lead to counter-productive feeding practices.
The associations that infants and children make between the pain of GERD and feeding can remain even long after the pain of GERD has subsided. Young children may also be taken off medication when the obvious symptoms of reflux disappear yet their reflux may continue silently (meaning that stomach contents go into the esophagus but does not result in vomiting) and cause continued feeding problems. Therefore it of reflux, especially pain relief, before attempting a feeding intervention program. Although feeding therapy can be effective in addressing many types of feeding difficulties, without effective pain management, oral-motor, sensory and behavioral feeding interventions may yield disappointing, ineffective results.
here’s more to help:August 1, 2013 at 5:23 am #72519AnonymousInactive
Thank you for the info. I was only able to access two links as the others said the forum expired. This is exactly what happened to my son with the feeding aversion and I don’t want a repeat! I’m going to email my doc again as 3 days on a higher dose of Zantac is not working.
NatalieAugust 1, 2013 at 7:38 am #72520
When a link-search doesn’t work, do a new one
Use key words (in this case, feeding aversion) & go back 6 months & EARLIER. If no results, go back year.
Emailing is good. Keep it short & factual, no emotions. Start w/ a thank you. Then TELL:
Ped gi dosing of Zantac is 10mgs per kilo, baby weighs X & therefore can be on Y dose. Has been on Y dose for Z amount of time, no results – list symptoms/proof- so therefore new med is needed. Tell HOW to rx ppi. (Give info on proper compounding &/or TELL to rx zegerid 40mg packets. )
Provide pharmacist name & contactAugust 4, 2013 at 12:10 am #72524AnonymousInactive
Ok got the Prevacid and its day 2. So far no improvement. The GI Specialist thinks its caused by an allergy as she has cradle cap on her ears and brows that keeps reappearing. I’m on a pretty strict diet and am having a hard time believing its allergies. I eat the same thing each day. What do you think? Here is my menu:
Steel cut oats, sugar, sausage
Turkey, bacon, avocado, tomato, white bread (organic no dairy)
Rice, chicken or pork, potato with evoo
Do you think this could be causing her such severe reflux? I can try the TED since I already don’t each much as it is.
Thanks for your help,
NatalieAugust 4, 2013 at 11:17 am #72525
Prevacid cam tale up to 14 days to see effects.
Give Zantac, too , making sure to space or 4 hrs frm the Prevacid.
Please check dose and form and administration of the Prevacid.
As for TED, yes I’d do it. I *did* do it.
It could be the pork (protein), the tomato (I discovered odd things I couldn’t eat from doing the TED: tomato, eggplant, citrus & tuna. You may find other things, even apples or peaches- just examples)
It’s only 2 wks & try to focus on what you +can+ eat 🙂
Really search the site; there’s tons of info to help you w/ the TeD (more than when I did it!)
Hang in thereAugust 4, 2013 at 12:24 pm #72526AnonymousInactive
Thank you for all your help. I will try TED and go from there! So far this has been going on 1 month and at least we caught it early this time.August 4, 2013 at 12:35 pm #72527AnonymousInactive
One question. When I add something new to my diet, how long until the symptoms would show up if she is going to react to it?August 5, 2013 at 10:11 am #72528
Plse be sure to read through stickies in the mspi forum TED forum, breast feeding forum, feeding forum – you get the idea
You’ll see posts by erinntx
Use the search button & look for all her posts ;search by username )
Ok so it depends. Introduce the new food- I would start w/ fruits, veggies – so ex: you add avocado (excellent good fat!)
Say you eat it at 8:00 am. 3hrs later = 11. So, after the breast feeding session after *that* take note of reactions. Check diaper after (not right then, milk has to get made into poop). Keep w/ the 1 new food for 4
days ( like introducing solids ) & look for rashes, mucousy poop. Etc. if all is fine, add the next food.
Erinntx explains it all
hellbennt2013-08-05 10:12:20August 5, 2013 at 2:27 pm #72529
ok, so I did some homework for you
from the MSPI main page
there’s still TONS more info on this site! this is just to get you startedAugust 5, 2013 at 11:43 pm #72530AnonymousInactive
I’m on it! Starting tomorrow. Thanks for your help and dedication to helping other moms during some. Of their hardest times.
- The forum ‘HELP!!!’ is closed to new topics and replies.