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Topic: Anemia….BF/Formla ? AGAIN.
Just when I think we are finally making progress things get turned upside down again!
At nine months, David was finally having normal diapers while breastfeeding and a little mucus in them with solid food. (still plenty of reflux though). Solid food seemed to precipitate a lot of night waking.
I was terribly happy just to have his diapers normal with breastfeeding and no other major allergic reactions going on. I have stressed so much over the months about his intestinal irritation that has led to mucus and blood in his diapers. I was glad he was able to finally digest something well (I can’t tell you how lovely those normal diapers looked to me) and the only reason I was continuing with solids that his digestive tract didn’t seem ready for was because of pressure from the Ped. GI and Ped.
At his nine month checkup he tested as Profoundly Anemic. He had fallen from the 50th percentil weight wise to the 5th. (He started out at the 5th at birth. At his last check up he had been down to the 15th). He showed positive for occult blood when his stools were tested. The Ped. GI said that was the only way he could be so anemic.
I’m stunned! Good Grief! I wonder how much blood they would have found in his diaper had they tested a couple of months ago when they were just mucus globs. (I haven’t seen any visible blood since March.) I have been asking about and pointing this out at every appointment!
We got started with iron suppliments 2X/day right away and the ped. GI said to get him on as much hypoallergenic formula as possible, make sure I am having no milk for the Breastmilk he’s still getting. The assumption is that he must be allergic to the breastmilk and that is causing the bleeding. They want to minimize the amount he’s getting but he hasn’t been willing to take formula previously so they are hoping mixing works or they talked about having to put in a G-tube to get the formula in him. It would also allow them to count calories which they would like because of his weight.
Our Pediatrition did say though that his weight might just be his genetics and that 50% of the kids he sees show a growth curve like that. The big concern comes in because of the reflux/allergies/anemia as to whether that is normal for him or not.
So now, on iron and partial formula, his diapers are totally full of mucus again. Surely that is not healing his GI tract but obviously he needs iron.
Now I’m back to the “breastfeeding/fomula” question and which is really better in unusual circumstances. I have read everything I can get my hands on over the last 6 months and of course what is on this site. I find that there are studies and experts to support either view point with highly allergic kids and really no difinitive answers.
It is all so confusing to me when I try to sort it out. Even the theory that the allergies are a reaction to the proteins in foods and if you break those down to amino acids, you solve the problem doesn’t hold water with what I’ve observed in David. Before we started NMT allergy treatments, he reacted to oils/fats, corn syrup solids and other things that do not contain protein although I’m sure he was reacting to plenty of proteins as well. His face broke out when I tried him on Neocate just like when I ate something else he had a problem with. Olive oil caused blood in his stools.
I don’t know what to think any more. My first response to all of this was that if they want to do surgery on something and are concerned about his weight gain, maybe they should be thinking about fixing his reflux since even on 8mg prevacid 3X/day and Pepcid in between when needed, he’s been a fussy boy and had plenty of continuing reflux problems. We haven’t really seemed to have it under control this summer. but that was before his stool test came back poitive for blood. How do I know whether that is caused by breastmilk, or the solid foods he was struggling to digest? Now that his diapers are full of mucus again, how can I tell anything?
Sorry for running on! I feel like it is so important for David’s health to make the right choices but it is just so difficult to know what those are! I am weary!

Kara
my daughter is now on 20mg losec mups in the tablet form you dissolve in water and then mix with applesauce.I’ve been told to give her two doses of 10mg. The first question is the dr has given me the 20mg tablets so i am having to cut them in half is this ok?
Also I give them 30mins before a meal on an empty belly but i worry that as she is still uncomfy sometimes she doesn’t eat much and as i am breastfeeding i cannot tell how much she gets!! (she won’t take a bottle
would this be a problem if she doesn’t eat enough?Also how much water/applesauce should i mix it with? it says 2 teaspoons for 1 tablet of 20mg.
I don’t feel the mups have been working as well as the suspension did but i would rather use them as they taste nicer for her and are easier to get from the pharmacy also they stay stable whereas the suspension had 2-3 days at the end where it didn’t work which seems pointless as then she is back to square 1 again!!
I feel i may not be using these mups correctly and as the drs don’t tell you anything any advice would be good as to what you do??!!??

Topic: Zegerid
I am new to this site and was wondering about Zegerid. I am a breastfeeding mother and wasn’t sure how to the meds are delivered exactly. I know that everyone is on a different dose but does everyone take it 3 times a day. And how does one get in touch with Dr. Phillips. Is he online or just some of his patients are on this site. My ped and GI are pretty much worthless. I am not trying to be ugly, but I have found out more from this site and others than the combined info I got from all the docs. Anyways I would really appreciate some information on it. Thanks
Benjamin 2006-9-1 23:33:41


I hope he does great with him.
I’m still spoon feeding him breast milk, formula and juice becuase he won’t drink anything.
I’m just so tired I don’t remember.
I know for experience that it is really hard to breastfeed to reflux baby. I ended up giving up with my first, but wouldn’t give up with my second. I think it has helped him so much. Breast milk is so good for reflux babies. I’m not saying anything wrong about anyone that doesn’t breastfeed. Like I said I didn’t with my first.