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Topic: HELP
I have a 10 week old that was diagnosed with Reflux about a week ago. he was breastfed until he was 6 weeks old then he was put on a soy formula. He was on that for about 2 weeks then he started vomiting that up and was screaming with and after feeding. He was then put on Zantac which did nothing. So he was switched to prevacid. This seems to help a little. He has been on Enfamil AR for about a week and now is starting to vomit it up and scream with each feeding as he did with the soy. I have no idea what to do now. HELP
Hello!
I am so thankful that I found this site! I had my daughter Emmie on 9/10/11 @ 33 weeks. She did really well and was released from the NICU at 35 weeks and 3 days. I noticed while she was in the NICU that after I would feed her, she would arch her back, turn her head to the side, and flex both arms and legs. She seemed to be in pain, but being a new mother, I thought I was just not burping her correctly. After 2 weeks being home, she started to scream at night (not cry, but scream!). The doctor told me that she was just overstimulated. Then she started to cry during the day and night – even while she was in a deep sleep. She also started to scream/cry after feeding and she started to take less expressed breastmilk. I did enough research and thought she had reflux. I bought the book “Colic Solved” and insisted that the doctor put her on PPI. After listening to me, he put her on Prevacid (7.5mg every day – suspension form) and gave me a referral to see a ped GI doctor.
I went to the GI doctor and he was a JERK! He asked me one question – why was we were there. When I answered that we were there due to reflux, he said that all infants had reflux. When I said that she screams in pain after eating and she is now eating half of her normal amount, he said that was “normal”. He also told me that infants do not have pain with reflux, I was horrified! I went on Vitals.com and found that he had 1.5 stars out of 5! Gee, go figure.
Anyway, my ped doctor was pretty horrified about my appt as well. He said that he could just treat her. He seems willing to give me whatever medication that I want and whatever form I want it in. My daughter seems to be doing better on the prevacid, however I will admit that I started giving her 6mg twice daily, not the 7.5mg once a day. Is this too much? She weighs 6 pounds 10 ounces. Do you think I should keep her on the suspension or the solutabs? Maybe the Zegerid powder packets??
Also, do you think I should go to another GI doctor? I live in the Chicago area and there are plenty of doctors to chose from (not that I now which one is the best). I just want to do what is best for my daughter!
Thanks so much in advance! I can’t begin to tell you how much I appreciate any response!
Aimee
Topic: Choking on granules
Hi all
Sorry if this has been discussed at length, feel free to just point me towards the relevant threads!
I have a 10 week old breastfed baby with moderate reflux. Im in australia so meds are different here. He was originally taking a compounded omeprazole suspension, but due to stability, cost and flavourings etc, I switched him to the capsules (probitor). I put half the granules in his mouth and follow with breastfeeding (30min thing just wouldnt work as he only feeds well when he just wakes up). Usually most of the granules get down, but sometimes I am so scared he is choking on them before he attaches to feed. Very concerned that some might get inhaled!
I am really reluctant to give applesauce- I know it’s not considered “solids” but it still isn’t breastmilk.
I don’t know if the granules are bigger than the ones you have in the states? They are about 1mm diameter.
Any tips? I don’t want to switch back to suspension (especially now he’s on a higher dose) but maybe that’s the only safe way?
My 4.5 month old LO has been on BB with prevacid the last 7 weeks and is doing GREAT. Huge change – an new baby! She has, however, had a big decrease in appetite since starting the prevacid. She is gaining – but slowly – has dropped 10% on her weight curve since last checkup. Doc wasn’t terribly worried – but I sorta knew she wasn’t gaining super fast as she wasn’t eating more then 3-3.5 ounces at any time…and sometimes not even that. She seems to eat the best at night time when she is half asleep. The rest of the time she just isn’t very hungry and if she eats will only “snack”.
I was able to get her down to only 1 or 2 doses of prevacid a day (8mg to 15mg a day) vs the 3 doses of 7.5mg I had been giving per marci guidelines with BB. She was doing good – maybe a flare at night which mylanta would take care of…but I was trying to wean her down to see if that would help with the appetite. It didn’t. I decided after talking to David from BB that it might be worth trying omezaprole (prilosec) instead of prevacid to see if that would help with appetite.
Well today was the first day of the BB with omezaprole…I dosed her at 6:45am after breast feeding her. They gave her a bottle at 915am after her nap and she downed the whole 4oz bottle(great and unusual for her to finish it!)…she had a good morning…went down for a another nap around 10:45am. Woke up at 11:30 (she only ever sleeps 45min) and they gave her a bottle…she only drank 1oz…didn’t want anymore….then was hiccuping, and has been sorta grouchy/wiggly…and not happy since. I just got home and put her down for a nap at 1:15pm. She went down easy enough – but was still hiccuping.
Does this mean that the prilsec is not working? I’ll try to breast feed her when she wakes around 2pm and also give a 2nd dose of omezaprole…but I’m starting to think I should have just left things alone with the prevacid.
I guess I didn’t think there would be any reflux problems since it was just switching from one PPI to another? Does it take another 2 weeks to kick in? The dose of omezeprole is lower then prevacid – is that normal (3 dozes of 7mg vs 3 doses of 8.5mg of prevacid)? If over the next 48 hours if she isn’t doing well on the omezaprole should I just switch her back to prevacid? Any help/thoughts would be appreciated.
lynnedays 2011-10-14 13:55:54 I’m so sorry you are going through this! I hope finding this forum has helped that feeling of “gosh am I crazy?”…
I know it certainly did for me. I am happy to answer your questions but sometimes hearing some anecdotes is helpful, or at least knowing that you arenât the only one who has gone through this and that others have actually come out of it with sleeping children, and intact marriagesâŚimagine!So I apologize ahead of time for the long reply. My first child sounds a lot like yours, he woke every 45 minutes until he was 18 months old and I think we had one four hour stretch of sleep during those months, and a few (maybe 5? Thatâs probably generous!) stretches of between 2-4 hours of sleep without waking. I thought I was going to lose my mind. I looked terrible, I felt terrible, it was just awful.So I can fully relate to what you are describing! My husband was also not excited about medicating, at all. I think one strategy for you is to explain that doctors are all over the map with babies and meds. As you might have noticed on this forum, docs give everything from nothing to healthy and appropriate doses of meds.There is a great website but it’s currently being rebuilt, http://www.marci-kids.com. They had such wonderful dosage info, and hopefully will be up and running again soon (laura, the moderator of this site, might have some of their old info?). The dr who invented zegerid (a ppo drug like prevacid/prilosec) recommended dosing babies three times a day and always recommended appropriately healthy doses.To me, the medication spectrum of what some docs are willing to dose, is very similar to the differences you find in sleep recommendations. Some folks want babies to cry it out from nearly day one, and others have you sleeping with your baby in the family bed until they are toddlers or older. These recommendations vary so incredibly widely that in the end you have to find what works best for your family and your particular child with their temperment and health issues.With my own children we struggled with dosing, and I pushed my ped gi to try the three doses a day with my second child (by this point weâd been going to him with my son for 4 years already, so he knew me.) He agreed to it when I gave him all the printouts from marci-kids institute (Mid-West Acid Reflux Childrenâs Institute). He even thanked me several months later out of the blue and said that heâd tried the three doses with some other infants and had been successful. I was over the moon happy to think that weâd helped my little baby, but also some other little babies and their moms.There are so many reasons for parents to be concerned about medicating their babies and many are totally legitimate. I was fortunate that although my husband wasnât keen on the meds, he wasnât going to try to stop me when I explained all the research I had done and all that the docs had said. I was going on instincts, gut feelings, documented observations of the children (both our children were on reflux meds as babies) and research. He was going on, âI donât want our kids on medicine, it doesnât seem good.â He was a very legitimately concerned father but for him there was a lot more wrapped up in the reluctance: seeing his wife so distraught, seeing his child not thriving and in obvious pain, seeing his life go so differently from friends of ours who had children who slept through the night at 8 weeks or 3 monthsâŚ..and being a first time parent its tremendously difficult to see everything go so differently from what you imagined prior to bringing home your screaming refluxer. I am certainly more compassionate to his difference of opinions now, now that everythingâs basically okay with the children. At one low point with our second baby, he suggested I stop breast feeding âjust to try itâ because he wondered if the problem was my milk. I was completely mortified. And he is a really good guy, concerned father, involved fatherâŚ.but coming from a completely different place and opinion about parenting than I was at the time.We have had to work hard at negotiating our parenting from day one. Thankfully, he has seen the success of many of my strategiesâso the proof is in the pudding eventuallyâand hopefully it would go the same for you. But itâll take you a bit to get there. The important thing is to outline your priorities together. Sometimes to get to point C or D, you have to move through some other phases A and B or try some things you thought you might never try.And sometimes parenting is scary. You put faith in doctors, you put faith in vaccines (or not), you put faith eventually in school systems, or home schooling or whatever choices you make. There are a LOT of leaps of faith. Or I should call them, educated decisions where you arenât certain of the outcome. Itâs very difficult marrying two distinct opinions together, let alone when there is a traumatic event going on (babies who scream in pain all day!) and also when everyone is lacking humane levels of sleep.In the end, I ended up feeling like I was crazy a lot of the time (unless on this forum) because even friends and family begin to wonder why your little angel canât be like all the other happy babies. We ended up doing testing on both children and found out they both had unusually loose esophageal openingsâŚ.in other words, all my observations and concerns had been totally legitimate for a physical anatomical reason.My children also did markedly better on restricted dietsâtaking out gluten, dairy, soy and beef for my son (who is now 7 and can have dairy occasionally and is still gluten free) and my daughter did much better without dairy, corn and nuts. Neither of them are allergic to these foods, they just had major stomach issues, skin rashes and night waking when they ingested them.We began solids with my son at 7 months, and stopped from 8-11 months and went back to exclusive b-feeding because there were too many variables causing potential problems and I couldnât figure out what was going on. My daughter began solids at 7 months and was a very reluctant eater for a long time. She also wanted pureed foods for quite a long time, but by age 18 months and definitely by age 2, they were both eating a wide variety and eating well, eating on their own, etc. Both breastfed until they were 2, pretty much on demand until they were past 18-20 months.I hope something in here has been helpful! If you have more questions, please post again. Sometimes venting is all people need, other times they really want to get some ideas, strategies, and answers to questions. Let us know what you need and hopefully as a community we can help. Another helpful site with reflux info: http://www.askdrsears.com, http://www.kellymom.com, search for reflux or GERD on each one. Hang in there
]hellbennt2011-09-18 20:31:26
Hello –
I posted under the help forum too – but wanted to further my understanding over in this thread. I have a 11.10 lb baby boy who is 7 weeks old. After an upper GI scan he was diagnosed with significant acid reflux (which we obviously already knew based on his symptoms). We are giving him .8 ml of Zantac twice daily and it is not working. He is comfort feeding ALL the time, thrashing, crying, screaming, spitting up large amounts at every feeding, displays symptoms of Sandifer’s, and generally an unhappy little guy. We tried Reglan but that was terrible. It caused him extreme pain and thrashing (I couldn’t even hold him) and gave him explosive
diarrhea.
We stopped Reglan after 5 days but continued Zantac. Now we are starting Prevacid. I believe, after looking at your info on dosage, that he is on too low of a dose. If I am reading the chart right then he should have 1.5 mg per kilogram. He is 5.27 kg so he should be taking 7.9 mg three times a day. Our ped only prescribed 7.5 once a day – which appears to be too low. I’m fine with upping his dose on my own – but I’m unclear on how to space it with the Zantac. If I have to space them 4 hours apart and the prevacid is given three times a day – when do I give Zantac? If I give Prevacid at 8 am, noon, and 5 pm, – can I give Zantac at 9 pm? And then I can only give Zantac once a day??? I’m confused. Any advice on how to administer the two meds together would be really helpful.
Also, I have not explored MSPI. I don’t want to do the elimination diet at the same time as starting Prevacid since I won’t know which one worked. I don’t think he has an allergy or intolerance since he doesn’t have mucus in his poop and no rash, etc. I’m breastfeeding during the day and giving one bottle of Enfamil AR formula at night. Should I start TED now or wait two weeks until Prevacid kicks in?
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read through Groupie Intro
it’s looong but TRULY will help you- read through it, refer back to it, scroll through it/skim through it. You’ll find yourself coming back to it!
https://www.infantreflux.org/forum/forum_posts.asp?TID=853)from there, take note of things- come back to them- post more questions-then you’ll be prepared
(take note of things such as: MSPI/formula/breastfeeding/symptoms/diapers/gas/meds- what works and what is not working- things you need to TELL doctor you want for your child)MSPI ‘Main’ page:
https://www.infantreflux.org/forum/forum_posts.asp?TID=2697
best EXPLANATION OF FOOD ALLERGIES/INTOERANCES and their RELATION TO REFLUX that I have found, to date: 2nd post: https://www.infantreflux.org/forum/forum_posts.asp?TID=2697&PN=2
Misconceptions about how Neocate & Elecare work: https://www.infantreflux.org/forum/forum_posts.asp?TID=6013
when you get a chance;please go to the top of this page, click on Settings and please then click on Edit Profile, then scroll down to
Signature & put:
baby (name if you want or nickname), age (can put month & yr of birth), meds, doses & forms of meds, breastfed or formula fed
thanks!
so glad you found us!
laura
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