AnonymousInactive
I have been dealing with and struggling with my first little baby boy and reflux and milk protien allergy. We have been to the GI a ton of times and went from breastmilk to alimentum to nutramigen, to neocate. We also have gone from zantac to prilosec to prevacid. I have felt so sad and depressed by this because i feel like we can’t ever get a handle on this. He is now 3 months and 1 week. Once he started neocate he seemed to be doing better. He then, all of a sudden, started to develop a feeding aversion, feeding became such a struggle. He was eating so little, luckily all the while he has been gaining weight. He was born 6lbs 10oz and is now 12lbs 3oz. I suggested last week changing his medication from prilosec to prevacid. In doing that he is eating much better which is such a relief but it seems his spitting up has increased. He spits up so much 3/4 sometimes 5 times after a feeding with varying amounts, usually there is is a lot coming out. I wonder if the prevacid could be causing the increased spit up. either way it is definitely more. The doctor suggested mixing oatmeal in his bottle but if the prevacid is causing this will that help? I am so frustrated, he spits up a ton and i feel like i cant go anywhere without worrying about it. It seems we fix one thing and something else goes wrong. I would love some advice. thanks so much
Daniela
AnonymousInactive
Hi! I haven’t posted in a long while. Ryder my youngest was a reflux babe and was on Zantac and Prevacid until around 9 months. Since then he had been fine. For two weeks now he has had some loose (not diarrhea) just not his norm bowels and lots of night wakings, crying and gas. I thought it might be something and called last Wed they had me put him on cullterell (probiotics). It hasn’t really done anything. He is not a big milk drinker but does do minute maid kids could that be causing issues? Only other thing I give him is water and whole milk. He weaned completely from breastfeeding at 14 months. He will be 16 months on the 19th.
AnonymousInactive
you said ur breast feeding..
breast milk has a natural laxative built in…
but i’d also would check with ur dr. as well ur baby may b sensitive to something ur eating
hope this helps
natural mother of 2 plus stepmother of 6 and grandmother of 6
AnonymousInactive
Thanks for the response! To clarify, I’m not giving up breast feeding, I had already been supplementing with formula (similac sensitive) due to supply issues and the dr recommended using a different one for the supplementing (we are trying nutramigen). I am trying hard to get my supply up and reduce formula actually, sorry for the confusion.
I will check out Mylanta and now that we are thinking reflux I will be starting lots of the basics, 30 minutes upright after eating, etc. I was mostly curious to hear if this does indeed sound like reflux, it seems so extreme and pronounced, but after reading others’ stories, clearly we aren’t alone.
I will read all of your info, thank you again. I’m sure I will be back with questions, this is so hard already and he’s not even a month old.
Edited to add: re: Zantac dosing–Nate is 10 lb, we are doing 1ml twice a day. That seems to be about right, we are thinking of giving it in three doses–any recos on that?Lauren8132011-12-09 20:18:36
I don’t want you to give up breastfeeding! but if you’re going to give hypoallergenic formula, then you must make your milk like hypoallergenic formula, too & this is done by your diet.
why does the dr say it’s from the milk?
before you go this route, resesearch all you can!
Reasons a breastfeeding mother might think her baby is reacting to something in her milk:
*poop that is not ‘normal’ mustardy yellow, seedy breastfed baby poop
*mucous in poop; mucous can look like: snot, jelly, cottage cheese, stringy like the inside of a banana
*foul-smelling poop
*stinky, foul-smelling painful gas
*straining and grunting to poop and, when baby finally does poop, it’s soft
as for why the intermittant crying- in my son’s case he had an immature LES (lower esophogeal sphinctor) and he’d reflux at any time, it didn’t have to do w/ when he ate…
a lot of the time, reflux is from mspi (milk soy protein intolernace/allergy) as well as an immature LES…
in the meantime, for immediate relief you could use
some mylanta cherry supreme. it’s the one variety of mylanta that does not contain aluminum. it’s hard to find, but you can find store brand equivalents try rite-aid, cvs brand, walmart, target, etc- just look for one that does not list aluminum in the ingredients. you can give 1ml up to 5 times a day- it’s safe, even for newborns. if you see loose stools back off.
rantidine is zantac and you can also give this w/ the mylanta, to help it go down better
check the zantac dose! how much does baby weigh?
read this:
Zantac dosing– my/other’s question (has axid & pepcid doses, too):
https://www.infantreflux.org/forum/forum_posts.asp?TID=8288&PN=1
I have a LOT MORE to say and most of it’s here, in a link called ‘groupie intro.‘
it’s looong but TRULY will help you- read through it, refer back to it, scroll through it/skim through it. You’ll find yourself coming back to it!
https://www.infantreflux.org/forum/forum_posts.asp?TID=853
hellbennt2011-12-09 19:52:40
AnonymousInactive
DS is 3 1/2 weeks old. He has been “fussy” since day 1, but in the last week we are seeing more severe symptoms of something going on. After he eats–anywhere from immediately to maybe 30 minutes later–he will start intermittently screaming in pain for about 1-2 minutes at a time. It can happen once or twise or it can last for up to 2 hours at which point he usually passes out. He gets red and shrieks in pain, grabs at his face a bit and me/my shirt and kind of waves his arms around and clenches up his legs.
This has gotten to the point where all he does is feed, cry or sleep after passing out from the pain. It’s awful.
We went to the dr yesterday and they said to try a hypoallergenic formula in case it’s an allergy and gave us a prescription for ranitidine in case it’s reflux.I do breastfeed as well, but have a low supply, so he eats about half and half.
I would assume from the relationship to feeding that reflux is a fair guess, but the 2 hours of intermittent screaming in pain? does that sound possible?
please help, thank youLauren8132011-12-09 19:08:33
AnonymousInactive
Hi! I’ve been lurking on and off for a while and thought maybe someone might be able to help steer me in the right direction or just give me some reassurance.I am so stressed and at my wits end!Just not sure what to do at this point.
My daughter is 10 months old and was diagnosed with reflux and dysphagia with aspiration at 6 days after several choking/turning blue episodes and was hospitalized for 5 days.For the first 2 months I breastfed and supplemented with milk based formula.She was on .5 ml Zantac during this time with bottles thickened with rice cereal 1 tsp per 2 oz.She had some constipation and a really bad rash that I was told was baby acne(but only was there after being fed)during this time.At some point between 2 and 3 months we saw GI who upped her Zantac to .8 three time a day and had us trial neocate.Her reflux worsened with neocate but the rash was gone after 2 days as well as the congestion.After 2 weeks most of her bottles would come out her nose so w stopped neocate and tried soy.There was an instant improvement with congestion and slightly less spit up but horrible gas and constipation along with dark circles under her eyes.Went back to milk based enfamil and kept dealing with her symptoms.At 5 months she had these horrible screaming nights and days,stopped sleeping through the night or at all for that matter.6 months they finally found that she had an ear infection which came back 5 more times and tubes were placed at 8 months.The sleeping thing never changed.During all the ear infection stuff we had feeding therapy which didn’t help her aversions.They only suggested I turn her spoon sideways to feed her.Also had another swallow study which showed she still aspirates slightly.
So a few weeks ago her reflux symptoms seemed to really flair and her rash came back. The constipation worsened and she’s been having firm black poops for quite a while(negative for blood)I took her to her ped who said she now felt there must be an allergy so we were sent to an allergist.Allergist says she has the classic textbook symptoms of an allergic child-allergic shiners,slight eczema,severe dermagraphia,slow weight gain,colic as he put it and restless sleep when she even does sleep.He did a blood test for banana,milk,soy,peanut(oldest dd is allergic),egg white/yolk and total ige.All of these were negative and the total ige didn’t even get done because of not getting enough blood.He ended up saying no more testing,she probably has food intolerances,take 1/2 tsp Zyrtec for the congestion and call him back in 2 months.Now I’m aware these tests may not be accurate.
I am totally unsure what to do.We have done Zantac, Prevacid,omeprazole,carafate and literally every kind of formula.
Currently she’s on enfamil,.8 ml Zantac,2ml carafate every 6 hrs as needed and the zyrtec.Her reflux is SO bad right now and she isn’t sleeping longer than a few hrs and she’s very restless and sleeps with her rear end in the air.lol.She sleeps that way from discomfort I think.
What I’m wondering is should I maybe try a different formula,different meds,or any other things?I feel helpless and her GI hasn’t been any help.I just want her and everyone else in my house to be happy and rested.
Thanks for taking the time to read this exceptionally long post!
I don’t know about the prilosec packets- this is the second time I’ve ever even heard of it & I’ve been on this board eight years…I’d research zegerid, because I personally (my son!) had great success w/ what is no longer available – a product called caracream-the same research team developed ZEGERID & then sold it off…long story short, I trust anything & everything that comes from the research at the University of Missouri (you may see it also referred to as marci-kids on this site)
Was your baby ever prescribed zantac? pepcid? when switching from a H2 blocker (Zantac, Axid, Pepcid, Tagament)
to a PPI it is important to KEEP GIVING THE H2 bolcker!!!! Because if you do not, it is as if your baby isn’t on ANY meds AT ALL. No one told me this and I learned the HARD WAY: my baby shrieked/howled for 24hrs straight and LOST HIS VOICE
!!! It is SAFE to give both meds, just make sure to space them 4 hrs apart.
Here is where to check the highest dose by weight:
Zantac dosing– my/other’s question (has axid & pepcid doses, too):
I would continue w/ the zantac/rantidine- just make sure you give highest dose for weight and give 4hrs from the PPI
as for the compound- theoretically it can be given at any time, not timed around meals.
check the PPI dose here:
and, if you must go the compound route, read here & TELL THE PHARMACIST how to do it:
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
also: why are you suspecting your wife’s diet? It may or may not be something in her diet. ME, yes, I did do the TED (Dr. Sears Total Elimination Diet) because I was DESPERATE. This way (TED), you eliminate all at once and not one thing here, one thing there. If your wife is eliminating dairy & soy, be sure to look at HIDDEN ingredients!
Milk protein and soy protein can hide
hellbennt2011-11-21 14:05:07
AnonymousInactive
First off I wanted to say thank you to everyone in this
forum. I have been browsing the forum
the past couple weeks and have received so much helpful information and
encouragement!
Our daughter is three weeks old today (11/21) and the
doctors (Pedatric Ear Nose and Throat, and Pediatrician) think she has GERDs/silent reflux.
My wife is breastfeeding and we have started her on the no dairy, soy,
or beef diet on 11/14. The pediatrician
suggested to skip Zantac and suggested to start her on Prilosec. We were prescribed and started giving her Prilosec
on 11/18. On 11/18 she weighed 7 lb 12
oz. Our pediatrician prescribed the
liquid Prilosec made by the pharmacy. The
prescription says Omeprazole-Sodium Bicarbonate 20-1680 MG Pack and is in a 2mg/ml
concentration. The dosage is 2 mls one
time a day, so she is receiving 4mg each day.
We are also giving the Prilosec 30 minutes prior to her feeding. After her first dosage from Friday night to
Saturday afternoon at 12:30PM, she had no reflux symptoms (no screaming in pain)
and we thought the acid production had been reduced. But that was the only time since Saturday
afternoon that we have seen improvement and the screaming after refluxing has
returned to what it was prior to taking the Prilosec. But we are giving it and the elimination diet
two weeks per the suggestions on this board.
With this said, I would love to receive your feedback/thoughts on any of
the above and a few questions I had.
I’m concerned about the dosage. It seems to be low based on the
concentrations suggested on this forum and I don’t want to spend two weeks on a
low dosage and then have the pediatrician say that the Prilosec didn’t work and
so we need to move on to a stronger medication, when it might have been that
the dosage was too low.
I’m also wondering about the frequency. Is it better to split this into multiple
administrations per day?
I read here that the tablets and solutabs require the 30
minutes rule, but does this also hold true to the liquid Prilosec?
Also, I read in one of the threads that liquid Prilosec is
not worth doing, but is there an alternative form to giving Prilosec to a three week old?
What is the best way to give her the liquid Prilosec?
She cries (probably due to the terrible
taste) and then we are challenged with preventing her from inhaling and choking
on the liquid. Right now we are giving
it to her at 4 drops at a time (so she doesn’t choke on it), hold her up to
allow her to swallow, and then give her four more drops. But since we have to give her 2 mls, it takes
about 10 minutes to give her the entire amount.
Stonecypher wrote: What is it I’m supposed to read to figure out the proper dose of prilosec?
There’s a link, from Prevacid 101 (last post on the page), that has the marci-kids dosing recommendations.
Prevacid 101:
https://www.infantreflux.org/forum/forum_posts.asp?TID=1936&PN=0&TPN=1
Here is the link directly to the PPI dosing chart:
Stonecypher wrote: Can the OTC version of prevacid be used? Could I break the capsules and give him the beads inside or is the capsule itself the part that is enteric coated
Yes you can use OTC prevacid. Use the capsules. Give on an empty stomach. Administer the beads, from the capsule, w/ 1/2 tsp of applesauce. Follow w/ a ‘meal’ 30 minutes later.
Stonecypher wrote: I have read from your links that some have given mylanta when they baby seems to be in pain from heartburn. I can’t find it, do they make mylanta anymore? All I can find is Maloxx and it has the aluminum. What about tums? Could I crush one and give him a little of the powder to suck off my finger?
mylanta cherry supreme is the one variety of mylanta that does not contain aluminum. it’s hard to find, but you can find store brand equivalents- I know cvs brand makes it & you can also try rite-aid, target, etc- just look for one that does not list aluminum in the ingredients. you can give 1ml up to 5 times a day- it’s safe, even for newborns. if you see loose stools back off.
Tums is also good. There is also http://www.iherb.com/Now-Foods-Calcium-Carbonate-Powder-12-oz-340-g/480?at=0 Make sure you use the exact brand name listed in the hyperlink. These have all been tested to be lead free.
JUST TO MAKE THINGS MORE CONFUSING:
The mylanta and tums and calcium bicarbonate CANNOT be given when you’re administering straight-up prevacid. If you are giving prevacid from the capsule or prevacid solutabs, these need to be given on an empty stomach followed by a ‘meal’ 30 minutes later. You may then give mylanta/tums FOUR HOURS LATER/SEPERATE from the prevaicd.
If you’re giving ZEGERID and only ZEGERID, then you follow the instructions posted and then YES, when giving ZEGERID, you give mylanta or tums at the same time.
YOU CAN GIVE MYLANTA with the ZANTAC to help it go down better. You can give 1ml up to 5 times a day- it’s safe, even for newborns. if you see loose stools back off.
the zantac needs to be given FOUR hours seperate from the prevacid
the zantac needs to be given FOUR hours seperate from the prilosec
the zantac needs to be given FOUR hours seperate from the zegerid
You mentioned your diet…
Reasons a breastfeeding mother might think her baby is reacting to something in her milk:
*poop that is not ‘normal’ mustardy yellow, seedy breastfed baby poop
*mucous in poop; mucous can look like: snot, jelly, cottage cheese, stringy like the inside of a banana
*foul-smelling poop
*stinky, foul-smelling painful gas
*straining and grunting to poop and, when baby finally does poop, it’s soft
Dr. Sears Total Elimination Diet can help you figure out exactly what it is that might be affecting your diet. It’s something to consider, rather than cutting ourt one thing here & one thing there…I did it. It’s not impossible and there are lots of links on this board to help you….In my case, it was helpful because I found it was not milk or soy (phew!) and it was some ‘odd’ things: citrus, tomatoes, tuna & eggplant…
the TED takes two weeks and then you start adding foods in to see what you CAN eat.
Research all you can! You are your baby’s best advocate!
Look for all posts by Erinntx! (be SURE to read her ‘sticky’ – the link is below)
here’s some more light reading for you
MSPI ‘Main’ page:
https://www.infantreflux.org/forum/forum_posts.asp?TID=2697
best EXPLANATION OF FOOD ALLERGIES/INTOERANCES and their RELATION TO REFLUX that I have found, to date: 2nd post: https://www.infantreflux.org/forum/forum_posts.asp?TID=2697&PN=2
Misconceptions about how Neocate & Elecare work: https://www.infantreflux.org/forum/forum_posts.asp?TID=6013
THIS IS REALLY IMPORTANT:
Erin‘s sticky: https://www.infantreflux.org/forum/forum_posts.asp?TID=12948&PID=105126#105126
More Erin: https://www.infantreflux.org/forum/forum_posts.asp?TID=13175&PID=106395#106395
Erin post: https://www.infantreflux.org/forum/forum_posts.asp?TID=13576
Great anne post: https://www.infantreflux.org/forum/forum_posts.asp?TID=9242
Exposure to foods & blood testing: https://www.infantreflux.org/forum/forum_posts.asp?TID=12993
Sheri’s allergy/intolerance explanation: https://www.infantreflux.org/forum/forum_posts.asp?TID=10223&PID=87638#87638
Another Sheri explanation- intolerance/allergy post:
https://www.infantreflux.org/forum/forum_posts.asp?TID=11579&PID=97442#97442
Accuracy of allergy testing & great post by sherri explaining IgE and IgG (intolerance/allergies) https://www.infantreflux.org/forum/forum_posts.asp?TID=10815
(sue again, replying to gina- breastfeeding info to (TED)https://www.infantreflux.org/forum/forum_posts.asp?TID=11324&PN=1
probiotics, brands used:
https://www.infantreflux.org/forum/forum_posts.asp?TID=8970&PN=1
erin posts that mentions enzymes:
https://www.infantreflux.org/forum/forum_posts.asp?TID=12781&KW=enzyme
https://www.infantreflux.org/forum/forum_posts.asp?TID=12610&KW=enzyme
https://www.infantreflux.org/forum/forum_posts.asp?TID=12227&KW=enzyme
Post from me:
https://www.infantreflux.org/forum/forum_posts.asp?TID=12200&KW=enzyme
welcome!
I have a LOT to say and most of it’s here, in a link called ‘groupie intro.‘
it’s looong but TRULY will help you!
Read through it, refer back to it, scroll through it/skim through it.
How is poop?
Reasons a breastfeeding mother MIGHT think her baby is reacting to something in her milk:
*poop that is not ‘normal’ mustardy yellow, seedy breastfed baby poop
*mucous in poop; mucous can look like: snot, jelly, cottage cheese, stringy like the inside of a banana
*foul-smelling poop
*stinky, foul-smelling painful gas
*straining and grunting to poop and, when baby finally does poop, it’s soft
I would get zegerid? I’m not sure what I’d do, really, since there is no longer any caracream/chocobase…but what I would do is research:
Prevacid 101:
scroll to the last page of this post, (it’s actually also about other PPIs like prilosec, too)
https://www.infantreflux.org/forum/forum_posts.asp?TID=1936&PN=0&TPN=1
AnonymousInactive
my son was never actually diagnosecd with anything—i’m just guessing that he had MSPI because of what i learned about it after i joined this board 8 years ago when sylvia was born. he spit up alot and he was very small and did not look healthy. i talked to the doc about how small he was and they checked his thyroid, which was fine, but we discovered he was anemeic. i checked a couple of my other kids and we found that one of the twins was also anemic. they both had to be put on an iron supplement for awhile.
a PH probe is really not a big deal, sylvia acted like she didn’t even know it was there. a hiatal hernia does not necessarily show up during a scope unless it is puahing through when they do the scope. we were told that sylvia did not have a hiatal hernia—but when they went in to do her fundo, the surgeon told us that she had a good size hiatal hernia. sylvia was a little worse than most of the babies have been on this board because she was getting alot of esophageal damage and she required a fundo—-most babies do not get as severe as sylvia did and do not require a fundo. when i discovered how bad off she really was, i felt like she was a pretty good baby considereing her condition. when i first joined this board and read people’s stories i remember that i thought sylvia was not nearly as bad as the other babies on here. i think that i had just had a lot of kids, she was my 9th, and i had had other fussy babies, so maybe i knew a little more of what to expect—-and didn’t suspect anything was seriously wrong to begin with—escept that she had to come home on oxygen for a month.
every baby is different. i found that i really didn’t have fussy babies until they changed the recommended sleeping position from tummy to back. my first 5 were tummy sleepers, my last four were supposed to be back sleepers—–the 3 older than sylvia were fussy and restless for about the first 3 months before they settled down and started sleeping better. my 14 year old would only take cat naps until he was a year old. i was lucky if i got an hour nap out of him, but he eventually took a 3 hour nap like most of my kids did.
i was never able to get sylvia to take a nap in her room. since she had problems until she was two, i would rock her to sleep and put her down on the couch for her nap. i don’t even remember when i finally got her sleeping in her own bed and sleeping through the night. she was doing pretty good after her fundo, but not gaining weight. when they suggested a feeding tube, i managed to get enough weight on her to avoid it. she did well until she got esophageal thrush and refused to eat or would chew her food and spit it out. our ped gi treated her on the assumption it was thrush because she had had it in her mouth and i had it on my breasts. i quit nursing, she went on diflucan—and she started sleeping, eating and gaining weight—then she got sick and stopped gaining and a feeding tube was suggested again—and i managed to get enough weight on to avoid it a second time. then she developed the obstructive sleep apnea and an 9inguinal hernia–i have had 5 children with inguinal hernias! once her tonsila and adenoids were removed she has hardly been to the doctor. i think some of what i told you is a repeat—-but i wanted you to know that kids do eventually get over most of this. it sounds like your docs don’t seem to think there is anything that really needs to be treated more agressively—frustrating i know—but at this point, maybe the best you can do is find whatever seems to make him the most comfortable and keep at it—-and remember that things will get bette eventually. wish i could be more help[.