AnonymousInactive
mommab wrote: I was wondering if anyone uses nutramigen formula for refux and fussiness and does it work? We have silent reflux. Also what are the main signs of a milk allery or intolerance in formula. My baby is six weeks old.
hi there,
I tried nutramigen but not succeed. My DD would not take it, not even a sip. It smells bad, and I wouldn’t blame her. So I can’t help you there.
However, my DD is allergic to cow’s milk and soy protein, therefore, I’m exclusively breastfeeding her. I had to adjust my diet to no-diary, no soy and no nuts. It has been working out great. From my experience, the signs of milk allergy are fussiness, sleeplessness, vomiting a lot (this can also be due to reflux), and mucus & blood streaks in poop (this was the sure sign for me). You might want to take her poop to the doctor’s office and ask them to do allergens testing.
If you decide to adjust your diet, note that it will take about 2 weeks until all the cow’s milk protein is out of your system.
Hope this help.
AnonymousInactive
Hi, my name is Carrie and I’m a new mom of twin boys, Ben and Brady. They were born very premature at 30 weeks and we have gone through a lot to reach the good point we are at now, the boys are 8 months (adjusted age 5 1/2 months). The biggest problem we are still having is Brady’s horrible reflux problem. Brady’s trouble with reflux started very early on in this 3 month stay in the NICU. When he first had problems feeding they said he was intolerant to breastmilk and placed him on Nutramigen formula. Then about a month later I all of a sudden received a call from the NICU that Brady had to go in for surgery because he had pyloric stenosis. That is basically when the muscle at the bottom of the stomach is not open large enough for anything to pass through and it causes the baby to basically projectile spit up. We thought this would be the answer to Brady’s problem but it was not. He no longer projectile spit up but still was spitting up a lot of his bottles. He then was placed on Prevacid and Reglan. This seemed to help for a while until he was released from the hospital. They took him off the Reglan and only sent him home on Prevacid. After 2 weeks of being at home only on Prevacid, Brady had to be readmitted to the hospital for failure to gain weight because of the excessive amounts that he was spitting up. During this next 10 day stay at the hospital we tried many different things. First surgery came down and had to perform a scope on Brady to make sure the pyloric stenosis had not come back, the opening had closed a little but not enough to be a problem. From there we tried many things from changing the calorie count on his formula from 24 to 27 to 30 and back down to 27, then feeding him every 3 hours to every 2 hours to even every hour, and even throughout the night! AND KEEP IN MIND I HAVE TWINS WHICH MADE THIS CRAZY FEEDING SCHEDULE CLOSE TO IMPOSSIBLE! I wanted to reinstate the Reglan but the GI department at the hospital would not agree because of the side effects that it could cause if a baby was on it for too long. So then we tried a combination of Zantac and Prevacid and tried to thicken his formula with rice mixed in. This combinaton was enough for him to keep enough down to start to gain weight effectively and we got to go home again. We are still on this combination and have started solids. I had hoped that once we started solids that his spit up problem would stop but it has not. The doctors basically are saying now that as long as he is gaining weight there is really nothing else we can do. But I dont think they understand how much he really does spit up and how it affects our everyday life. He goes through at least 5 outfits a day and its sad when people tend to want to hold his brother more because they are afraid to get soaked. So I was hoping that someone here would know of something that I have not tried that worked for you, because my doctors seem to think I have run the gauntlet of options and we just have to wait for him to outgrow it! And I’m beginning to feel like he never will!! Any suggestions would be greatly appreciated!!
AnonymousInactive
dang it, i just accidentally deleted a post!! grrrr. now to shorten what i had been trying to say. sylvia did not get a feeding tube when she had her fundo done because she had been a good eater. after surgery she started to refuse to eat, or she would chew her food and then spit it out. around 6-8 months she had had oral thrush and i had it on my breasts—i just couldn’t seem to get us both treated at the same time.
i asked the family doc if she could have thrush and it not be obvious—he said no. i asked the ped gi the same question, and he said, yes, it could be in her esophagus. since the only way to know for sure is with a scope and we were three hours away, he decided to go ahead and give her diflucan. she started to eat and sleep and gain weight. he also had me quit nursing her and i went to my obgyn and got something that cleared my breasts up. my family doc had given me something for it (without even looking at it) when i told him the meds didn’t work, he said i must have had something different than thrush on my breasts—and still didn’t even look at them.
since carson has been on so many antibiotics it might be a good idea to give him a good course of diflucan to see if it would do him any good.
our ped gi decided that as a precautionary thing, we would put sylvia on a course of diflucan every time she had antibiotic.
i would try and make sure i had exhausted all other options before i let them put a surgically implanted feeding tube. hid weight really doesn’t seem that low for a baby that was 6 weeks premature and has been sick.
one of my twins also had esophageal thrush and we didn’t even had a clue—except that she was having alotof reflux trouble. we actually saw hers on a scope.
i had a MRDA infection bavk in february and i took 3 courses of some pretty harsh antibiotics. i got a raging case of thrush all the way through my system—from one end to the other. i had no idea thrush could be so painful in you mouth because i had had it before. it made my reflux so bad that i spent an entire night sitting up because i was in so much pain.
i know people will say give him probiotics—which is a good idea, too. but if by chance he already has an entrenched oral or especially esophageal thrush, he is going to need a good prescription of diflucan to clear it up.
just thought i would throw these ideas out to you.
glad you were able to get the ST.
hi & welcome! you’ve found a great place!
the key to all of this is RESEARCH and, of course, support!
http://www.marci-kids.com is at the FOREFRONT of research of PPI use and dosing in infants/todders. You might want to start there to see if PPI dose is ‘proper’
then, hop back here to learn HOW to get that proper dose, if need be, and what FORM of PPI and HOW to administer…
Prevacid 101(last post on the page): https://www.infantreflux.org/forum/forum_posts.asp?TID=1936&PN=0&TPN=1
unfortunately the majority of drs & pharmacists don’t know…babies metabolisms’ are much faster than adults, so the drugs work differently with them…
after medication, you might then want to look at diet…
I have a LOT MORE TO SAY! and most of it is here: Groupie Intro: https://www.infantreflux.org/forum/forum_posts.asp?TID=853
it’s looong, but PLEASE read/skim/scroll through it & refer back to it, as it TRULY will help you!
so glad you found us!
~laura
ps: when you get a moment, please go to the upper right-hand corner of this screen and click on ‘settings’ and from there you can edit your signature and let us know how old baby is, what formula or breastfeeding, MSPI or not, what meds and what doses and form of meds and how you’re administering-thanks!
AnonymousInactive
THis is my first post-i’ve been browsing a while and found a lot of your posts helpful! My LO is 5 months old and has been on medicine for reflux since she was 4 weeks old. She was taking Axid (which is like Zantac) and it would work on and off for a while. She is also now on Nutramagin, I breast fed for 3 months but then it got too difficult wtih the reflux as she would cry most of her feedings!
We recently had milk scan to confirm reflux and it showed she refluxed over 50 times in an hour! :0(
So-she has been put on Prilosec two days ago. I hate putting her on medicine (they tried prevacid but she but it gave her terrible belly aches) and I would like to know if any of you had side effects or success with prilosec. It seems like she is sleeping more since she’s started, and is eating more and better….coincidence or medicine??? i don’t know!
Last night she cried for two hours but don’t know if it’s teething or belly aches or just overtired???
Any input greatly appreciated!
AnonymousInactive
I don’t have any personal experience with Elecare, but it is an elemental formula and the babies system doesn’t work as hard to digest it so she may go through it the same as she did breastmilk. I would keep the same schedule and she how she does. She will let you know if she isn’t hungry, but I would imagine it is probably pretty similar to breastmilk in the way it is digested/absorbed.
AnonymousInactive
I am starting Elecare for my 7 1/2 week old daughter. She was breastfeeding every 2 1/2-3 hours. I know that with most formulas babies can go a little longer between feedings, is this the case with Elecare as well or should I keep the same routine?
Thanks!
Deanna
AnonymousInactive
My 7 1/2 week old daughter had an endoscopy today (she has been spitting up 20-30 times a day, has severe reflux, gags, chokes, blood flecks in her spit up for the past 2 weeks) and the craziest thing happened!
Before she went in, she had red bumps all over the sides of her face, her chest and the back of her neck. We thought that it was infant acne or an irritation from constantly wearing bibs/spit up residue. There were hundreds of little red bumps!
Anyway, after her procedure we were in the recovery room with her and I was feeding her a bottle of pumped breastmilk. She was still receiving IV fluids through her hand. I noticed that there were dramatically fewer red bumps. It went from hundreds to maybe 10 or 20 tiny bumps!!!! Since we have been home (less than 8 hours since the procedure) they are completely GONE! Her skin is milky white with ZERO bumps.
We are almost positive that it is a result from the IV fluids flushing her system out and that it is a food sensitivity. Her endoscopy showed normal anatomical structures but her stomach was reddened and irritated. We are waiting on the biopsies but we are 99% sure it will come back positive for a food sensitivity. In the meantime we are using Elecare in lieu of the breastmilk.
I just had to share because it was SO dramatic. I am SO glad I noticed her skin changes. Now we just have to figure out what the food sensitivity is!
Good luck to all,
Deanna
AnonymousInactive
Thanks for responding. She is 8.5 lbs so I am not sure how to calculate that for zantac. She is a little better at times. We were trying similac r.s. right now even though she does not spit up. I was hoping maybe it would just keep the reflux down. We are going to a chiropractor this week just to see if it will help. My best friend who has a 2 month old says she will pump breastmilk for me since she is breastfeeding I just hte to ask her to do that but I want my happy baby back. Sh e soes not even want to lay down or sit in a bouncy seat to look at things.
AnonymousInactive
Anyone else experience blood in your baby’s spit up? She is 7 weeks old and spits up ALL the time. She gets dark pink flecks in her spit up about 1-2 times a day. The GI specialist said it was blood.
I am breastfeeding and the blood isn’t coming from me. She is going to go in for an endoscopy to see what is going on.
She hasnt had blood in her stool at all.
She is on prevacid 7.5 twice a day and carafate 3 times a day. I am also on a dairy-free and soy-free diet.
Any input is appreciated.
Thanks!
Deanna
hi & welcome! you’ve found a great place!
BABYWEARING!!! it SAVED us! (link from below link, ‘Groupie intro’)
and then:
RESEARCH!
the key to all of this is RESEARCH and, of course, support!
http://www.marci-kids.com is at the FOREFRONT of research of PPI (prevacid, prilosec, protonix, nexium) use and dosing in infants/todders. You might want to start there to find proper PPI dose and then, hop back here to learn HOW to get that proper dose, and what FORM of PPI and HOW to administer…
Prevacid 101(last post on the page): https://www.infantreflux.org/forum/forum_posts.asp?TID=1936&PN=0&TPN=1
unfortunately the majority of drs & pharmacists don’t know…babies metabolisms’ are much faster than adults, so the drugs work differently with them…
after medication, you might then want to look at diet…
I have a LOT MORE TO SAY! and most of it is here: Groupie Intro: https://www.infantreflux.org/forum/forum_posts.asp?TID=853
it’s looong, but PLEASE read/skim/scroll through it & refer back to it, as it TRULY will help you!
so glad you found us!
~laura
ps: when you get a moment, please go to the upper right-hand corner of this screen and click on ‘settings’ and from there you can edit your signature and let us know how old baby is, what formula or breastfeeding, MSPI or not, what meds and what doses and form of meds and how you’re administering-thanks!
hi & welcome! you’ve found a great place! if it’s MFPI then you might want to try neocate or elecare AND
research the proper PPI dose- her dose might be too low…
the key to all of this is RESEARCH and, of course, support!
http://www.marci-kids.com is at the FOREFRONT of research of PPI use and dosing in infants/todders. You might want to start there to see if PPI dose is ‘proper’
then, hop back here to learn HOW to get that proper dose, if need be, and what FORM of PPI and HOW to administer…
Prevacid 101(last post on the page): https://www.infantreflux.org/forum/forum_posts.asp?TID=1936&PN=0&TPN=1
unfortunately the majority of drs & pharmacists don’t know…babies metabolisms’ are much faster than adults, so the drugs work differently with them…
after medication, you might then want to look at diet…
I have a LOT MORE TO SAY! and most of it is here: Groupie Intro: https://www.infantreflux.org/forum/forum_posts.asp?TID=853
it’s looong, but PLEASE read/skim/scroll through it & refer back to it, as it TRULY will help you!
so glad you found us!
~laura
ps: when you get a moment, please go to the upper right-hand corner of this screen and click on ‘settings’ and from there you can edit your signature and let us know how old baby is, what formula or breastfeeding, MSPI or not, what meds and what doses and form of meds and how you’re administering-thanks!
hi & welcome! you’ve found a great place!
the key to all of this is RESEARCH and, of course, support!
http://www.marci-kids.com is at the FOREFRONT of research of PPI use and dosing in infants/todders.
You might want to start there to see if PPI dose is ‘proper’ (dose sounds low…?)
then, hop back here to learn HOW to get that proper dose, if need be, and what FORM of PPI and HOW to administer…
Prevacid 101(last post on the page): https://www.infantreflux.org/forum/forum_posts.asp?TID=1936&PN=0&TPN=1
unfortunately the majority of drs & pharmacists don’t know…babies metabolisms’ are much faster than adults, so the drugs work differently with them…
after medication, you might then want to look at diet…
I have a LOT MORE TO SAY! and most of it is here: Groupie Intro: https://www.infantreflux.org/forum/forum_posts.asp?TID=853
it’s looong, but PLEASE read/skim/scroll through it & refer back to it, as it TRULY will help you!
so glad you found us!
~laura
ps: when you get a moment, please go to the upper right-hand corner of this screen and click on ‘settings’ and from there you can edit your signature and let us know how old baby is, what formula or breastfeeding, MSPI or not, what meds and what doses and form of meds and how you’re administering-thanks!
hi & welcome! you’ve found a great place!
the key to all of this is RESEARCH and, of course, support
!
http://www.marci-kids.com is at the FOREFRONT of research of PPI use and dosing in infants/todders. You might want to start there to see if PPI dose is ‘proper’ (the dose you mentioned does sound low…)…
then, hop back here to learn HOW to get that proper dose, if need be, and what FORM of PPI and HOW to administer…
Prevacid 101(last post on the page): https://www.infantreflux.org/forum/forum_posts.asp?TID=1936&PN=0&TPN=1
unfortunately, the majority of drs & pharmacists don’t know…babies metabolisms’ are much faster than adults, so the drugs work differently with them…
after medication, you might then want to look at diet (which it sounds like you are, as you are giving elecare)…
I have a LOT MORE TO SAY! and most of it is here:
Groupie Intro:
it’s looong, but PLEASE read/skim/scroll through it & refer back to it, as it TRULY will help you!
so glad you found us!
~laura
ps: when you get a moment, please go to the upper right-hand corner of this screen and click on ‘settings’ and from there you can edit your signature and let us know how old baby is, what formula or breastfeeding, MSPI or not, what meds and what doses and form of meds and how you’re administering-thanks!
AnonymousInactive
Owen is 6 months, but was born 2 1/2 months early. He is breastfed and is currently taking Zantac and Prevacid for reflux. He doesn’t seem to be bothered by reflux, other than when he spits up he occasionally coughs. He is EXTREMELY spitty. I don’t know how he still gains weight with the amount that he spits up every day. And I know it can look like more than it is – the NICU nurses did the test with us of pouring water on burp cloths to see – he honestly spits up A LOT. And he will spit up after not eating for 3+hours…curdled looking milk. But he gains weight fine and doesn’t seem to be in pain, so the Dr is good with it, but it doesn’t really sit well with me.
But, what has me concerned right now is he has dark green bowel movements – they have been this way for quite some time, and I think there’s mucous in them – they’re “stringy/slimy.” I gave up milk products for 9 days about 3 months ago because he was fussy, but it didn’t help. Although he’s not fussy at all anymore. He also always has this little rash on his chin (gets really red after feedings) and sometimes it’s all over his face, although not red.
Otherwise, he’s a very happy baby, great sleeper and doing well.
What I’m wondering is, can having reflux and being on the meds he’s on cause him to have the dark green, mucousy bowel movements or is that definitely an allergy? His Dr isn’t concerned because he’s not fussy and is gaining weight. And the rash on his chin – could that be caused from acidity in his spit up – maybe the medications aren’t right? Am I just worrying about something that I shouldn’t be? Should I call his Dr again – do I need to see a pedicatric GI?
JennieBean52009-08-04 14:12:39