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little by little mama!
yes no blood is a good sign- next will go the mucous (SOME mucousy diapers is perfectly normal!) then [posted from erin’s post above] When the stinky gas is gone completely the offender is out of his & your system… even if the diapers are still a mess (it takes longer- sometimes MUCH longer – for the colon/intestine to heal after the offender is out of his system). Honestly, this is SO important to know/realize as it’s the indication that you’re getting somewhere.about sleep:try babywearing and even if you’re wearing a screaming baby, at least you will have your arms free…next:diet alone most likely is not enough…time to dive into researching about medication, too…hellbennt2009-07-19 15:57:57
TELL the dr, don’t ask
.hi & welcome! you’ve found a great place!
the key to all of this is RESEARCH and, of course, support!
http://www.marci-kids.com is at the FOREFRONT of research of PPI use and dosing in infants/todders. You might want to start there to see if PPI dose is ‘proper’
then, hop back here to learn HOW to get that proper dose, if need be, and what FORM of PPI and HOW to administer…
Prevacid 101(last post on the page): https://www.infantreflux.org/forum/forum_posts.asp?TID=1936&PN=0&TPN=1
unfortunately the majority of drs & pharmacists don’t know…babies metabolisms’ are much faster than adults, so the drugs work differently with them…
after medication, you might then want to look at diet…
I have a LOT MORE TO SAY! and most of it is here:Groupie Intro: https://www.infantreflux.org/forum/forum_posts.asp?TID=853
it’s looong, but PLEASE read/skim/scroll through it & refer back to it, as it TRULY will help you!
so glad you found us!
~laura
ps: when you get a moment, please go to the upper right-hand corner of this screen and click on ‘settings’ and from there you can edit your signature and let us know how old baby is, what formula or breastfeeding, MSPI or not, what meds and what doses and form of meds and how you’re administering-thanks!
Topic: i cant stand it
Hello, i just found this site last night.
my name is Billy, my sons name is Jude, he is six weeks old. Nine days ago he choked, scared me to death, was diagnosed with acid reflux, he is now on prevacid 7.5mg once a day.
Since last night ive read some other post and they have been somewhat comforting.We thought it was colic at first, my wife has been changing her diet.He is breast feeding and on similac. We were giving him isomil advance similac.He is realy screaming when he crys and appears to be in alot of pain.I called the doctor and he told me to change the similac to sensative r.s.We feel like we are lost in the dark and we can hear our little boy crying and we cant do anything about it.We havent a clue on what to do to help him. I cant stand to see him in so much pain.Can you guys help us please.Topic: Our GI appointment
We just got back from the GI appointment. Basically, she told me what I have discovered through trial and error on my own. Owen is very intolerant to milk and soy protein. She said to breastfeed as long as possible with my modified diet and to ignore anyone else that says anything different. She explained how things will be much harder if we switch to formula. She does want us to try Alimentum again to see how he tolerates it incase we do have to switch because of my supply. She told me to call my OBGYN and ask for a Regalon(sp?) perscription to try to help boost my supply. * I didn’t know anything about this, so I was excited to hear it could help.
Owen has to go back again in a month to see how we are doing. She didn’t change his reflux meds because she thinks the problem is mostly aggrivated because of how sensitive his digestive system is. We are not suppose to start any solids until at least 6 months. She expects to see him being allregic to things. She also predicted that we won’t be able to start cow’s milk until 18 months of age. At 12 months we will go to rice milk.
The big change we have to make comes with feeding. She said as long as he eats 12oz a day she is happy with it (this seemed crazy to me). I have been feeding him atleast 10 times a day to get him to eat 20oz. Now we are not suppose to let him snack. We are suppose to offer him a bottle every 3 hours during the day and let him eat what he wants from it. She thinks the eating is behavioral because he was experiencing pain previously while he ate. Now he isn’t, but the bad habits are still there.
I’m prepared to have a very cranky baby while we adjust to the new schedule. Ultimately,I will try to stick to it, but if he is really hungry… I am going to feed him regardless. I know that I can atleast stop trying to feed him constantly, and that is a relief in itself! 🙂
these groups are ‘known’ on ‘the boards’ as being very supportive and helpful
Topic: 7 weeks of pain
Hi….first time here and would really appreciate any advice/help. Our baby girl is 7 weeks and hates feeding. We are on the bottle as the breast didn’t work out. Every feed time is a screaming match where she basically refuses to drink and we are down to syringing the feeds just to get the fluids in her. This in itself is becoming quite an effort and taking a lot of time. All the professionals we have seen have been of no help but seem to have a common vein…”hang in there”….l will scream at the next one that says that. We are taking Kari gold and have just gone to the AR formula where we had one day of peace but then back to normal. We are at our wits end….we have been to GP (multiple times), paeditrician, speech pathologist and osteopath. Has anyone had a similar experience or can help?…Thankyou
Our Ped GI said our daughter was refractory (resistant) to acid suppression meds because she was still in pain on 15mg of Prevacid per day. I, on my own, had moved her up to 22.5mg of prevacid before we could get back in to our GI doc. Her symptoms improved but she is still challenging to feed. Our doc said that either she has EE or acid reflux and needs a Fundoplication. He said he would not give us 22.5mg prescription and we could try to get it elsewhere. Well, I did, our family doctor agreed since she is growing well. Again, she is improved, but only about to between 50-75% improved depending on the day.
I think she has possibly both EE and acid relux which the doctor said is possible. Since my son had all the same behaviors and symptoms except for eczema (only when I was ingesting dairy while breastfeeding). I just believe that if I can get her through the first 1-1.5 years, I think she’ll be fine. Although, my son did have a g-tube for 2.5 years. Because he had low muscle tone, though, no one considered silent reflux or EE. My son was also born in 2006, which is just on the cusp of EE recognition.So, anyway, I have put off the upper and lower endoscopy and the pH probe for several reasons. One, if they do a sigmoidoscopy and find she has a dairy allergy…she’ll still be on Neocate. Two if we do a pH probe we will have to quit Prevacid for a full week, and she will be in so much pain not to mention how the oral aversion will get worse. Not to mention that if she is identified as having acid reflux what’s her treatment…PPI (or Fundo which I will fight at any cost since she is growing). Three, the upper endoscopy is the one I am considering because those biopsies are what will reveal EE, but the treatment for that he said are short-term inhaled steroids and guess what…Neocate, which she is already taking.As far as allergy testing. The allergy department at a well-respected regional center in Wisconsin told me that infants and young children do not benefit that much from allergy testing, many false negatives. And, positive results do not mean that a child will actually exhibit allergic symptoms. They told me to wait as long as possible before I get her tested.I guess when Nina turns 6 months I will add one food every couple weeks. From what I’ve read though, those with EE, even the typically TED foods can be irritating. So, where to start?Sorry to ramble. I needed to vent.Thanks for liking the name Wyatt.
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