Search Results for 'breast feeding'

[Anonymous]

After 3 doses and the LO screaming at the top of her lungs for over Ann hour each time, we decided too stop the Prevacid as well. At this time we are just holding her up and holding chin down during feedings, keeping her straight up for 45 minutes afterwards, propped up had of mattress and doing the soy formula. She was actually getting breastmilk too but after process of elimination we believe that was making her worse as well. When we took a break from it, she didn’t spit up as much and wasn’t as fussy and she stopped sneezing as well!

[hellbennt]

you don’t have to stop nursing if you don’t want to.

there’s a lot to read, but it will all help you.

I have a LOT to say and most of it’s here, in a link called ‘groupie intro.’

it’s looong but TRULY will help you- read through it, refer back to it, scroll through it/skim through it. You’ll find yourself coming back to it!

https://www.infantreflux.org/forum/forum_posts.asp?TID=853

you can do this!

reflux what I have learned: https://www.infantreflux.org/forum/forum_posts.asp?TID=2948&a mp;PN=2

Reasons a breastfeeding mother might think her baby is reacting to something in her milk:

*poop that is not ‘normal’ mustardy yellow, seedy breastfed baby poop

*mucous in poop; mucous can look like: snot, jelly, cottage cheese, stringy like the inside of a banana

*foul-smelling poop

*stinky, foul-smelling painful gas

*straining and grunting to poop and, when baby finally does poop, it’s soft

the TED takes two weeks and then you start adding foods in to see what you CAN eat. [: )>

Research all you can! You are your baby’s best advocate!

Babywearing Saved US:

https://www.infantreflux.org/forum/forum_posts.asp?TID=1044&PN=1

probiotics, brands used:

https://www.infantreflux.org/forum/forum_posts.asp?TID=8970&PN=1

[Anonymous]

Hi all. I have 2 girls, J born 09/09 and G born 09/12.

G was born via c-section because she was breech with a nucal arm. I tried everything to get her to flip but it was just not happening. G is exclusively breast fed. Shortly after her birth I was concerned about reflux. At her 2 week Ped appt. they told me it was most likely gas, and did not want to medicate her. The next 4 weeks were hell. She showed typical signs of silent reflux. G screamed, and arched when laying down. pulling off while eating, screaming, then eating frantically again, constant congestion (that was blamed on the C-section) . Finally at 6 weeks she was put on zantac and she was like a new baby. G is typically a happy, very smiley child.

I really thought we were passed the worst of it, and just last week I brought up the possibility of weening her off the Zantac, but we decided to wait a while longer.

G is on 1.1 ml 3x a day of zantac

Just the last few days sleeping has been a real challenge. My normally happy baby is very clingy, and fussy. She did get her TDAP Vax last week, and I thought it might be related to that, but now I just don’t know. She has also been having awful smelling gas, I am going to start the TED diet today and see if that is helps. G only poops every other day or so, and they seem to be normal. G only naps in arms, if she is down she only naps a few minutes at a time. She is so tired and fussy at the end of every day. I dread nighttime, every night. The past few nights there has just been no helping her, just screaming, while being fed, rocked, bounced, patted or shooshed. We both end up crying and finally she passes out. Usually she sleeps better next to me, on her side. Here is the kicker though, its now 11am, and she is still sleeping. Every day is like this. She can’t fall asleep, (no matter how early we start the process) before 1-3 am, but once she is finally asleep she will go a few hours. She wakes up to nurse, but usually falls asleep again quickly and quietly. She is clingy every day from about 6 till 11pm, and then miserable until I can finally get her to sleep.

I feel like I am missing something that I can be doing that’s obvious? Any insights, or advise? I need some help here. My poor girls, G never seems comfortable, and J is not getting the attention she needs.

Breastfeeding is so very important to me, I really don’t want to give it up, but at this point I am close to throwing in the towel, which will break my heart.

Thanks if you made it this far reading.

[Anonymous]

Welcome to this forum! (((HUGS)))…and prayers! I am SO sorry your little girl is having so much trouble!! I don’t blame you at all for feeling helpless. My oldest child was FTT and him and my second child suffered from reflux and other digestive problems but not nearly as bad as yours. And I often felt very discouraged, helpless, and hopeless.

Is your little on drinking expressed breast milk or formula? If breast milk have you eliminated foods from your diet? If formula, what kind? When my children were drinking formula, I did not realize that there were formulas that had the proteins even more extensively broken down than the formula they were drinking.

In the past year I began searching online for places and people that I could hopefully help with what I’ve learned from my own experience. I didn’t have to look far. I have been totally amazed and shocked at how many many babies are suffering out there. It is truly SO sad!!

In the first year of my children’s life they had to drink Nutramigen and after that I tried different kinds of milk on them and they couldn’t tolerate any of them so they just drank water. They started Prevacid as newborns and were on it until until ages 2 and 4. My children are not cured but we have found that alkaline water and a supplement of probiotics and digestive enzymes has made a huge difference. They are now able to eat tolerate the foods they used to couldn’t as long as they take their probiotics and enzymes with it.

I have created a blog http://help4acidreflux.wordpress.com/ with lots of tips, ideas, links, and other mom’s stories on it about children and digestive problems. I will copy and paste some stuff here from my blog and also some links to pages that I think might be helpful to you.

Whilst in your womb, your baby’s intestinal tract is sterile – and so its free from bacteria. From birth though, your baby begins the process of acquiring the friendly bacteria in the gut that play such a critical role in health and wellness.

How your child is born, strongly influences what kind of bacteria your child will acquire. Infants that are born vaginally begin accumulating beneficial bacteria including Lactobacillus, Bifidobacterium, Escherichia coli (commonly abbreviated to E. coli) and Enterococcus in the birth canal with the very process of birth. These bacteria form the foundations of a healthy digestive flora and originate from healthy maternal vaginal and fecal flora.

Babies born via cesarean on the other hand, receive a different mix of bacteria at birth. This comes from the maternity hospital itself, notably from nursing staff and equipment and includes Clostridium and Streptococcus.

Following birth, the acquisition of digestive flora continues until your baby is around two to three months of age with most of this beneficial bacteria coming from the mother via touch, suckling and kissing.

The way in which you feed your baby also has a strong influence on his or her digestive flora. A breastfed baby tends to have greater numbers and types of beneficial bacteria than a formula fed infant, notably Bifidobacteria, Lactobacillus and Enterococcus. These bacteria, specifically those belonging to the Bifidobacteria clan (genera) thrive in the presence of breast milk proteins and constitute up to 90% of a breastfed infant’s micro flora. They help prevent harmful bacteria colonizing the infant’s intestine.

Newborns have an immature digestive system that has never processed food. The gastrointestinal system is literally just learning to function. Muscles that support digestion have not developed the proper rhythm for moving food efficiently through the digestive tract. Furthermore, newborns lack the benevolent bacterial flora (probiotics) that develop over time to aid digestion. This explains why a lot of infants outgrow colic within the first six months.

Antibiotics not only kill bad bacteria but the good also. So if a nursing mother is given antibiotics during labor or while nursing or if baby is given antibiotics, then all the good bacteria (probiotics) are killed.

Another problem for some children can be a lack of sufficient digestive enzymes. Digestive enzymes are what are in all foods (before they are cooked or processed) to aid in breaking them down. They are especially needed for breaking down proteins. If a nursing mom eats a diet of mostly raw foods this can help some but unless the foods are organically grown, they are not very enzyme rich. The pancreas is what makes digestive enzymes and it will try to compensate for the lack of them in foods, but for some babies it can be difficult for their pancreas to keep up making enough to break down the food (proteins in particular) that they take in whether it be through breast milk, formula, or solids as they get older.

For some babies, they can inherit the problems of their body not making enough digestive enzymes, and for these children, they may carry this problem all of their life. Just like the diabetic doesn’t make enough insulin.

When “food” is placed in the stomach, the stomach will excrete a small amount of acid to activate the enzymes so they will start breaking down the food. If there are no or little enzymes, then the stomach will excrete a little more acid. Eventually the food is forced into the intestines even if it isn’t fully properly broken down. If the food isn’t broken down then it will very difficult for the body to be able to absorb and use it. For some children, this undigested food will sit in the intestines too long and the longer “food” stays in the intestines, the more moisture that is drawn out of it, and it can cause constipation.

This excess acid that the stomach makes, can play a major part in some babies digestive problems. Too much acid will kill probiotics. And beings that probiotics are the protective coating for the entire digestive tract, then without it, the food, reflux, or stool will rub right up next to the esophagus and intestines themselves and can cause them to become raw, inflamed, and even bleed sometimes.

Although I know that for many children and adults too we have no choice but to be on meds, but here is a very interesting article I found about the possible side effects of meds like Prevacid and Zantac. This is on a preemie forum and numerous moms of preemie babies tell how probiotics have really helped their little ones.

http://www.inspire.com/groups/preemie/discussion/for-those-with-babies-taking-ppis-prevacid-zantac-etc/

Here is a story of a mom that was facing a g-tube being put into her 2 year old that has suffered from digestive problems since a baby. She tried some different things and as of yet, her little hasn’t had to have the feeding tube put in. 🙂 http://help4acidreflux.wordpress.com/federicas-story/

I know that every child is different and will react differently to things. So what works for one, may not work for the next one. I am not at all saying that probiotics and enzymes will cure your child, but I do know that many moms have found them to be extremely beneficial for their children with digestive problems.

I wish the best in finding the help and answers you are looking for and hope that soon your little one is doing better! Happy Mom2013-01-14 13:16:16

[hellbennt]

my baby had an immature LES and I didn’t try probiotics. BUT, knowing what I know now, YES, I do believe I would have tried them! we were DESPERATE.

what DID help were a high enough dose of PPI and ‘the products’

as for Dr. Philips, I’d go to the U of Missouri website and try to find him. He’s a PharmD, so he wouldn’t see your baby per se, but I sure would take his recommendation on who to see!!

look the the Looking for a Ped GI link, there might be someone he’s recommended listed there?

are you breastfeeding or formula? if formula, which one?

you can do this! as for a fax machine, you might have a local business that lets you use theirs and also some copy places, like Kinkos, have them for you to use…

my baby had apnea episodes, too! it’s scary!

he was put on a monitor. those things are LOUD.

the seizures you’re mentioning sounds like Sandifer Syndrome-

there’s a link from GROUPIE INTRO

Groupie Intro is looong, but keep refering back to it, like a table of contents.

USE the Sandifer symptoms to SHOW you know what you’re talking about. when my baby was on proper dose and form of PPI they lessened/ disappeared. when they would appear again, we’d know it was time for a med increase. it was THAT obvious.

you can do this!

[Anonymous]

YOU are the mom! So I’d say that you are the one that will make the best decisions for your little one! 🙂 I agree with Laura, DON’T quit nursing! And I personally wouldn’t give the meds either. You can always change your mind later if you think she needs formula or meds.

I created a blog about what all we found to help our little ones with their reflux and food intolerances and I’m sure you would find it of interest. (See signature) Be sure to read the page titled “Side effects of Prevacid”.

Also the page titled “C-sections and Breastfeeding” I think would interest you.

If your little one has thrush, that is a sign that she is low on probiotics. You can read my home page to learn more about probiotics and also the page titled “How to choose the right enzyme/probiotic supplements”.

I hope that soon you can get it all sorted out! (((HUG)))

[hellbennt]

as always I’m rushing out the door- do NOT stop breastfeeding! if you don’t want to! no need!

I WOULD do the TED diet, just to rule out any proteins that may be affecting her

if the TED seems to hard (I did it! and found out my lo was not MSPI BUT I DID find out there were certain foods he reacted to when I ate them)

then start out by cutting ALL dairy & soy (including ‘hidden’ as ingredients- more about this in links you must read)

the upper right-hand corner of this page has the Search button ! it’s your friend!

do a search for

1) GROUPIE INTRO

it’s loong but it WILL HELP YOU

2) do a search for

Erin’s Sticky

3) do a search for zantac dosing

(this has PROPER axid dosing there!)

4) give highest axid dose by weight

5) do a search for

Prevacid 101

6) do a search for

Probiotics, brands used

ok that’s it- you’re good to go!

more later!

~laura hellbennt2013-01-08 07:55:04

[Anonymous]

Okay, so I’ll make this as brief as possible. My 10 week old DD has been fussy since birth. My older daughter had mild reflux, so I recognized a lot of the symptoms (pulling off while breastfeeding/crying/arching back) and took her to the ped at about 3 weeks. They put her on zantac, it did nothing but make her an insomniac. Visited a lactation consultant who confirmed I have overactive/forceful letdown and thought she had thrush, even though a white coating on her tongue was the only symptom either of us had. Treated that with nystatin for a week and took her back to the ped when we saw no improvement.

Ped put her on prevacid (compounded), and I eliminated all soy and dairy from my diet. We did see some improvement, but about a week later she was back to crying in pain a lot, not to mention they seemed to give her headaches (she’d shake her head repeatedly and quickly run her hands back and forth over her head). We found a new ped after the first one pretty much wrote us off. They switched her to the solutabs. They made her miserable. The head-shaking got worse and she spent the two days we gave it to her screaming (I should mention that she does have a decent amount of happy time where she’ll just hang out and talk/smile, but when she’d get fussy, it was full out screaming). I stopped giving it to her two days ago, so she has had no meds at ALL for two full days. Today she was great, very little crying, and just a little fussing. The dr. prescribed her levsin drops and we tried those when she got kind of upset earlier and she calmed right down.

At her appt today they tested her diapers – absolutely nothing abnormal. The new ped suggested I continue with the prevacid (she said baby wasn’t on it long enough to decide if she was truly getting headaches because of it), adding in axid, and doing a trial of stopping breastfeeding and giving her elecare.

I don’t really want to do any of that. To be quite honest, I question if she actually has reflux at all. She doesn’t spit up (though my older daughter was a silent refluxer). She doesn’t mind lying on her back. She does pull of while feeding still, but it seems to be related to gas (often tries to pass it while feeding.) The prevacid made absolutely no difference. And, all along she’s had streaks of good days, and after two days of having no meds she had a great day today. I sort of question the MSPI as well for the same reasons.

Do reflux and MSPI come and go? I don’t want my little girl to be in pain, but I don’t want to mess with breastfeeding if I don’t have to — from everything I’ve read here and elsewhere, it seems like switching her to elecare for a week isn’t really going to show us anything. Her poop is sometimes a little mucousy and sometimes foul smelling, but neither all the time, or even all that often. Clearly something is causing her pain, but am I naive to think it’s just that her digestive system hasn’t fully matured yet? Or that her system is just upset from being given so many meds since she was 3 weeks old? The new ped’s suggestions just seem a bit drastic considering we’ve only been dairy/soy free for three weeks and she had such a good day on absolutely no reflux meds.

Sorry for the book, I’m just grasping at anything that might help at this point.

I should also add that I hold and/or wear her during the entire day, so she’s almost always upright, but she actually is a better sleeper at night where she’s flat on her back for 10+hours. She does wake to feed a few times still, but mostly goes right back to sleep. She’s sort of grumpy in the morning because she gets gassy and usually poops first thing.ASquare2013-01-07 22:08:24

[Anonymous]

She probably just needs a higher dose of Prevacid. My son did not get relief until he was getting 30 mgs (yes, 30!) of Prevacid a day. I divided that into 3 – 10 mg doses per day, but some babies would do fine on one solutab (15 mgs) twice per day.

Have you read about marci kids? I don’t think their site is up anymore but maybe it’s in the medication sticky or the groupie information stickie. Dr. Phillips at marci kids (they researched infant reflux and reflux meds) explains that babies need higher doses of PPI’s than adults do to their super fast metabolism.

https://www.infantreflux.org/forum/printer_friendly_posts.asp?TID=2668

Personally, I’d push for a higher dose rather than a different medication.

My son also had DGE. Don’t worry so much about that. This is something that is outgrown with time. My doc told me to not treat this condition with medication unless the baby was not growing/thriving because the drugs they use to treat it (motility drugs) are very dangerous with scary side effects. The best way to deal with DGE is to feed them very small but frequent meals which is what your dd is doing all on her own. My son also never ate more than 2 ounces at that age and even at a year still only took 4 ounces of breast milk (by spoon – he quite taking a bottle at 7 months due to a feeding aversion).

Also, I have never posted this before because it’s something I just learned. I wish I had known when my babies were suffering… I just read this book called Wheat Belly. The author is a doctor/scientist/researcher and he blames wheat on a myriad of health concerns including infant reflux. If I had to do it all over again I’d eliminate wheat and gluten from my diet while breast feeding.

Hang in there. I know how hard it is. I had two refluxers and one with DGE as well. My son was so miserable, and so was I. But the right dose of Prevacid truly did turn things around for him. I hope you can talk your doctor into upping her dose.

[Anonymous]

Hello again. Sorry it’s been so long. We have been in the hospital twice since my last post (last time was about a month ago and the below test should have been done then, but that was a nightmare admit, too long to tell). Ds is now 2 1/2 years old. So, short verision, if there is one in our children’s lives: We are scheduled for an Impedanace probe (well, I am going to confirm it’s not just a ph probe tomorrow-if we are doing this lets do it right), MRI of his head (my first reaction-what!, but they say increase intracranial pressure can cause GI problems–so I said ok but only if..)MRI belly too. Then they want an endoscopy with tube placed for endoduodenum manometry. So, we have done the endoscopy before and know what to expect. But any tips for the Impedance and the endoduodenum manometry? Anything I shoul make sure they do or don’t do?That is the part he will be awake for and the most upset about a tube in his nose. Makes me sad, but I know it must be done.

So glad I have already done a lot of reading up on these things. I just read last night about the poor child who suffered through a probe and may have had the probe in the wrong place. Thank God her smart Mom new to ask for xray to check placement the second time and it WAS in the wrong place.

We are scheduled to have the Impedance probe placed Tuesday Jan 8th at noon and come home, go back to hospital Wed Jan 9th 8am to start with MRIs and while still asleep do a scope with biospies and place tube for the endoduodenum manometery. We will stay the night Wed and Ds will drink/eat (i pray)for the manometery on Thursday. The manometery is to make sure ds doesnt have a motility issues. The motility “specialist” GI doctor at Cook Children’s Ft Worth that is ordering all this first said ds doesn’t not sound like he has motility issues, but after a bit of “discussion” with me and reminding him (oh can’t remind if he didn’t bother to read the chart that was sent to him) that ds had a “redundant duodenum” on his Upper GI, he now says, oh well you can get something called megaduodenum with motility issues and agreed to do some test. The doctor also said lots of other completely stupid (sorry, but no other word to describe it) things ds might have. I helped him see that I wasnt even going to hear that .

We are to be off Prevacid for 5 days prior and expose ds to “all kinds of foods” starting a week ago. Ds does as good as he gets with baby food pears and beef, cheeiros. He never really has a great day so I can say oh, there is baseline and now I can try a new food. I do anyway, but it doesn’t really seem like it’s a particular food as it is the quanity or bulk. But I have been giving baby food sweet potatoes, carrots, and plan on chicken, ham and squash. QUESTION:Ds has never had dairy even when I was breastfeeding, has not had egg, nut or soy since about 8 months old. My gut says don’t give him that because he has had all these problems without it and if I give it to him now and he show a reaction on the scope, they will say, see it’s a food intolerance. I saw where the impedance probe can show if it is allergic reflux vs acid vs non acid Should I give he food he hasn’t had in over a year and still having problems?

A little vent: I am so tired of these doctors all making stupid choices for our children. No xrays to confrim important things, jumping to surgery for a 4 month old to place a g-tube before even a gastic emptying scan is even done, or maybe it’s food intolerance even though we have tired every food know to man and ds has problems (even on just Elecare when he was younger) or THIS is my favorite, lets make sure they don’t have autusim or sensory disoreder before we make it a GI issue! Couldn’t possiblity be the pain and lack of sleep causing speech delays. I basically had to “prove” why my son doesn’t have this or that before the GI doctor would order these above test that should have been done months ago . After we “talked” the doctor just got up from his chair and said we will do some test. I had to find out from his nurse what he ordered. This is the 4th GI doctor we have seen, so guess I should be happy we are finially getting something done.

Thanks for listening and all the past advise.

Blessed Mom0710

ds dob7/10 silent reflux, food intolerances ?, subglottic hemangomia

prevacid 15mg twice a day, miralax, propranolol for hemangomia

[Anonymous]

Hello and welcome! I wish I had a lot of time to give you a detailed answer. 🙁 But I am very limited right now. So I will give you a link to some pages on my blog that will be of help. I first recommend that you read my story of what we went through and what we found to help.

http://help4acidreflux.wordpress.com/

Also read http://help4acidreflux.wordpress.com/c-sections-breastfeeding-and-digestive-problems/

And…. http://help4acidreflux.wordpress.com/our-healthy-3rd-child/

There are also other pages on there that you might find of interest.

I wish you the best and hope you soon find some answers. Hopefully next week I’ll have more time to write!

[hellbennt]

I am having a ridiculous time w/ this computer- I’m not at my own- but I want to help!

I wrote this post for someone else, so please excuse anything that doesn’t make sense to YOU, but please read through it!

The search button is located at the top of this page, in the upper right-hand corner.

do a search using key words

misconceptions of elemental fomulas

try that!

there’s a REALLY good page on this forum that explains ALL about the formulas!

Groupie Intro (link is below, in this post) should help, too!

hi & welcome!

you have found a wonderful place to research all you can!

first of all I need to encourage you to PLEASE read the following link- it’s called Groupie Intro

& it’s LONG. However, it TRULY will help you! Read through it, skim through it- you’ll find yourself refering back to it again & again!

https://www.infantreflux.org/forum/forum_posts.asp?TID=853

As you will learn from the link Groupie Intro, many babies seem to plateau on zantac and then need to ‘move on’ to a PPI.

You will also learn that many doctors and even ped GIs don’t know as much as the collected first-hand knowledge found on this site!

the zantac dose can go as high as 10 mgs per kilo. Do NOT just take my word on this! read all you can & make your own, educated decisions!

there’s a link from groupie intro w/ zantac dosing. read the research. then, you may feel comfortable increasing the dose on your own. I can’t tell you what to do!

I *can* tell you that zantac is safe for babies & the dosing I’m quoting comes from the medical field/research.

you’ll also find (I think it’s in there!) a link called probiotics, brands used

if the link is NOT there, go to the upper right-hand corner of this page & click on the search button.

type in those keywords & you’ll find it.

what else? I think I’ve overloaded you enough for now

IF you want to breastfeed your new baby (none of my business!! just saying ‘IF!’) then you will be interested in researching all you can about breastfeeding and MSPI (milk/soy protein intolerance/allergy- sounds like this is what your baby has- you can find links/info from groupie intro). Basically, you can make your milk into an elemental formula! There are many mothers who have succeeded in breastfeeding their reflux, protein-sensitive babies.

One more thing, I promise that’s it

BABYWEARING!

it SAVED us!

look for the link in groupie intro!

SO GLAD YOU FOUND US!

[hellbennt]

hi & welcome!

you have found a wonderful place to research all you can!

first of all I need to encourage you to PLEASE read the following link- it’s called Groupie Intro

& it’s LONG. However, it TRULY will help you! Read through it, skim through it- you’ll find yourself refering back to it again & again!

https://www.infantreflux.org/forum/forum_posts.asp?TID=853

As you will learn from the link Groupie Intro, many babies seem to plateau on zantac and then need to ‘move on’ to a PPI.

You will also learn that many doctors and even ped GIs don’t know as much as the collected first-hand knowledge found on this site!

the zantac dose can go as high as 10 mgs per kilo. Do NOT just take my word on this! read all you can & make your own, educated decisions!

there’s a link from groupie intro w/ zantac dosing. read the research. then, you may feel comfortable increasing the dose on your own. I can’t tell you what to do!

I *can* tell you that zantac is safe for babies & the dosing I’m quoting comes from the medical field/research.

you’ll also find (I think it’s in there!) a link called probiotics, brands used

if the link is NOT there, go to the upper right-hand corner of this page & click on the search button.

type in those keywords & you’ll find it.

what else? I think I’ve overloaded you enough for now

IF you want to breastfeed your new baby (none of my business!! just saying ‘IF!’) then you will be interested in researching all you can about breastfeeding and MSPI (milk/soy protein intolerance/allergy- sounds like this is what your baby has- you can find links/info from groupie intro). Basically, you can make your milk into an elemental formula! There are many mothers who have succeeded in breastfeeding their reflux, protein-sensitive babies.

One more thing, I promise that’s it

BABYWEARING!

it SAVED us!

look for the link in groupie intro!

SO GLAD YOU FOUND US!

hellbennt2012-12-28 10:34:55

[hellbennt]

hi & welcome!

you have found a wonderful place to research all you can!

first of all I need to encourage you to PLEASE read the following link- it’s called Groupie Intro

& it’s LONG. However, it TRULY will help you! Read through it, skim through it- you’ll find yourself refering back to it again & again!

https://www.infantreflux.org/forum/forum_posts.asp?TID=853

As you will learn from the link Groupie Intro, many babies seem to plateau on zantac and then need to ‘move on’ to a PPI.

You will also learn that many doctors and even ped GIs don’t know as much as the collected first-hand knowledge found on this site!

the zantac dose can go as high as 10 mgs per kilo. Do NOT just take my word on this! read all you can & make your own, educated decisions!

there’s a link from groupie intro w/ zantac dosing. read the research. then, you may feel comfortable increasing the dose on your own. I can’t tell you what to do!

I *can* tell you that zantac is safe for babies & the dosing I’m quoting comes from the medical field/research.

you’ll also find (I think it’s in there!) a link called probiotics, brands used

if the link is NOT there, go to the upper right-hand corner of this page & click on the search button.

type in those keywords & you’ll find it.

what else? I think I’ve overloaded you enough for now

IF you want to breastfeed your new baby (none of my business!! just saying ‘IF!’) then you will be interested in researching all you can about breastfeeding and MSPI (milk/soy protein intolerance/allergy- sounds like this is what your baby has- you can find links/info from groupie intro). Basically, you can make your milk into an elemental formula! There are many mothers who have succeeded in breastfeeding their reflux, protein-sensitive babies.

One more thing, I promise that’s it

BABYWEARING!

it SAVED us!

look for the link in groupie intro!

SO GLAD YOU FOUND US!

~laura

[Anonymous]

My daughter was born at 23 weeks. She is now 9 months, about 6 months adjusted. Our story is long and winding, but I will try to select the parts I think are pertinent to the reflux that currently seems to be the cause of many of her issues.

She had an NG tube for most of her 128 days in the NICU (I was told this could lead to difficulty with the sphincter’s ability to close for some months following). She has basically been on Prevacid since her first milk (which was breastmilk then) at a month or so old. Due to her paralyzed vocal cord (from PDA ligation), we had to go to thickened formula feeds near the end of her NICU stay. After a swallow study and several formula changes (Enfacare>Alumentium>Neocate), we are now on Neocate at honey thickness with Thickit-2. She is still on 1/8 Ltr of oxygen at night; though her sats are high (almost always 99-100) we have left her on O2 until we can get her reflux under control.

She is choking (with and without eating), vomiting, seeming to aspirate some vomit from time to time. Sometimes she sees the bottle and refuses it entirely. She takes anywhere from 8 to 14 oz per day (a couple of months ago, she was taking 25 to 28 oz daily). She is on solids (oatmeal, fuits, veg) which she enjoys eating most of the time. She requires sitting up straight for at least an hour after feedings. She used to sleep through the night, but now she is waking 6 or 8 times. It is hard to tease out whether this is reflux, oral/motor skill issues, or something else, but I personally think it is a mix of severe reflux and oral/motor. We know reflux is irritating her esophagus because she has been scoped several times and it is red and raw.

We see many docs (GI nurse practitioner, ENT, neonatologist, pediatrician) and are currently on 2.5 ml of Prevacid 2x a day and Zantac (just started yesterday) 1 ml 1x day.

Questions:

I am really unclear on the timing of Prevacid and Zantac, and have been given conflicting advice about timing and empty tummy/doesn’t matter.

I’m also not sure how far apart to give them and would deeply appreciate advice about this. (I could provide a typical day feeding schedule if that would help.)

I’ve read in other posts on this site about Carafate (which I have taken before myself) and am curious about that, as well as about the non-aluminum Mylanta (or off brand).

Gosh I am so thrilled to have run across this site today. I know working mom is an oxymoron, but I have a very busy job and am torn apart and unable to concentrate as my job takes time away from my first priority–my little angel! I just want to help her as I know so many moms on this site do. Thanks in advance for your time.