Search Results for 'celiac'

[Anonymous]

Mason ( nearly 3) started with reflux at birth. His first visit with the ped GI was at 2 months, and they discovered he had “allergic colitis” IE soy/dairy protien intolerance. He still was failure to thrive/no weight gain and sickly~ diarrhea and refluxing. We finally scoped him at 2, and found he had celiac and the GI said he was “inflamed from the top of his gut to the very bottom, causing the reflux and the diarrhea.”

that was the explanation for the correlation from our GI.

His little sister has certainly dairy intolerance and reflux, but once testing the milk protien I refuse to test any of the others and would rather keep them all from her just in case.

ETA our ped GI didn’t want us introducing any gluten products into thier diets until after the age of 1. This included stage 2 foods and or baby cereals ( for fear of cross contamination.)

cherie0122006-11-6 13:46:59

[Anonymous]

i think the window for gluten is more like 6-9 months. both of my twins with celiac have gerd, but my 11 year old does not. i have reflux problems, but i don’t have celiac. i was really hoping that when my girls went gluten free their reflux would go away—-but no such luck.

[Anonymous]

My 19 mth is off gluten. I don’t have any answers for you, but we have a 2mth old as well. She won’t be getting gluten for as long as we can avoid it.

For us, it’s the way my son reacts to it. I don’t even want to chance it with my dd.

I don’t know if that helped you, but I thought I’d share.

[Anonymous]

Hey there

I am wondering if you guys know if there is a big GERD/celiac connection..I have noticed on the celiac board I am on a lot of posts about GERD, and now here I have been noticing some others with celiac kids with GERD…

Im asking since I have a 2 year old that has celiac, but didnt have GERD as a baby (he spit up tons, but no pain, and gained weight, and once we switched to soy, then nutramigen he stopped spitting up) but I have a now 3 month old baby girl, with GERD -which currently her pain is being controlled with her meds, and is on nutramigen and we may be switching to neocate….

anyways I ask since I am so wondering is she is going to have it to, and am trying to figure out when to intro gluten for her..I know we are doing solids at 6 months, and her dr wants us to wait to 1 yr to do gluten, but I have read some studies that says the window is 4-6 months to into gluten….

what do you ladies know, or what tips do you have…..

Thanks

[Anonymous]

tiny spots?? what color are they and where are they?

zantac isn’t an antihistamine, it is an H2 blocker.

the celiac tests start to be more accurate around 3 years of age.

[Anonymous]

Hi again,

They never really knew, the first time was when her reflux was diagnosed and she was started on zantac and given some fluids. We had taken her to emergency as she was screaming 18 hours a day, vomiting constantly and was skin and bones despite eating all the time. We didn’t understand what was happening. We were then referred to a paediatrician (how it works in Canada) The second time was about two weeks later she was still losing weight and was running a fever of 40.2 (104 or so) She was in for five days while they tested everything. They found a little bit of pneumonia, a little bit of UTI and that’s about it. That is when she was started on domperidone which worked a treat I must say…

That’s interesting about the age thing with celiac testing. What age does it become acurate?

I suppose I should add she has been getting these tiny spots that her Paed. said were probably related to her mast cells. We recently tried to wean the zantac and apparently it’s an antihistamine? So I wonder if this is something else pointing to allergies…

Sharon

[Anonymous]

your daughter is too young for a celiac test to be accurate. my baby was anemic because she had such bad esophagitis, but once she had surgery, her anemia cleared up without ever giving her iron.

what were her hospital stays for?

[Anonymous]

Hi all,

I am new here. I have a 22 month old girl who was diagnosed with reflux when she was 4 weeks. She has been on Zantac since then. She was also on Domperidone from 6 weeks until a few months ago. She had failure to thrive and a few stays in hospital but the medicine has really kept things under control. We are going to try and wait until she is 2 1/2 before we go back to the GI.

A few months ago she was tested for celiac disease as her weight gain has slowed considerably again. Her ferritin levels came back low so her ped. put her on iron as a precaution. After a month she was retested for anemia and it was still positive with only a slight increase in ferritin. The ped. said to do another month of the iron. He doesn’t seem very concerned and I trust him greatly. He’s always taken great care of Ella.

Sorry for the terribly long post… I guess I am concerned that her reflux and anemia are related. But if she has been on zantac for sooo long, the chances of esophagitis are pretty slim, no? The thing is her iron intake dietary wise has been great! Lot’s of red meat, beans, still eats a ton of baby cereal each morning…

Any thoughts? Anyone else know of a link between reflux and anemia or is it just coincidence?

Thanks!

Sharon

[Anonymous]

Here is the site I found it at. I was looking when my ped did the celiac test on Sebastain (which was neg) and came across this article.

http://www.celiac.com/

[Anonymous]

Right now he is eating bananas, carrots, squash, pears, and oatmeal. He can have rice cereal but it binds him up a bit so I don’t give it to him very often. The reactions he has are, vomiting and/or spitting up, gassiness, fussiness and overall discomfort, and bright green mucusy stools.

So far we have done a blood test for Celiac that was neg. I am not sure what else he will do. He said at his nine month check up that if he does not start tolerating foods we will have to ‘look into what is going on’.

He called me back and said that the article was interesting, but since there has been no research done in the US and he has never heard of a link, he does not think that it would be a reason to stop the prevacid, if it is working for him.

I am going to try cutting back on the meds just to see if he really needs them still. He has been doing pretty well lately so I figured it is worth a try.

I will let you know how it goes.

[Anonymous]

I hope your doctor is helpful to you today, it sucks when we see them in pain and uncomfortable and the dr.s just give the standard stuff.

At my appt there was a student intern with my dr, and she was in shock of what we deal with she was ready with the standard basics of you know keeping elevated, getting a good bottle, and feeding little amounts….then my actual doc responded to her by saying–we are well beyond those measures at this point….

It is frusterating…I went through many doctors with my 2 year old before they would take his symptoms seriously (he has celiac, but we didnt know at the time…) so when I found one I just stuck with him even though hes pretty tough to get into these days…

anyways, sorry to hear the 15mg isnt working and good luck with the doctor!

[Anonymous]

Thanks guys for all the advice

We cant do oatmeal since oatmeal is a problem for celiacs, and it runs in the family so we are avoiding gluten for her for now…I do wish I could use it though…

I went to the doctor and he switched her to zegerid on his own…I didnt even have to mention it (he has also heard of marci-kids when I mentioned it)…so we shall see how it goes…Im kinda excited since I have heard such great things! We are waiting on the formula switch to see if the meds help, she is also getting an upper GI done on Thursday since she seems to be aspirating some also, and he wants to check what damage has been done in the esophagus….fun fun fun (ugh)

If the meds dont improve and if her diaper rash doesnt improve with his diaper rash concoction then we are trying neocate….(clortrimazole and bacitracin mixed with balmex if anyone cares) He says that alot of kids on Nutra get bad diaper rashes that arent always intolerance related…

Thanks again…hoping all does well

[Anonymous]

Good luck with the prevacid!!! Hope it helps.

I noticed that your son was diagnosed with celiac at age two? What symptoms did he have? Was he tested before then? How did they find out? Also, was it hard to keep him on the diet with his feeding aversion? My dd hasn’t been diagnosed with anything official other than reflux and a severe feeding aversion, but I’ve often wondered if there’s more to it and my gut of course tells me that there is.

BTW, I love your kids middle names. My kids are half Japanese and I wanted to give them cultural middle names, but dh didn’t want to (even though it’s his culture!). I’ve always been kind of regretful though.

s&h’s mum2006-10-3 15:7:6

[Anonymous]

Ya, if you could find a copy that would be great!!!!!! My GI had to right a pretty lengthy letter also to get the Alimentum covered; it took about a month for them to decide so I know how challenging it is. My GI is willing to right just about anything for me so I am keeping my fingers crossed.

Emma had an endoscopy that showed damage to her small bowel so they thought celiac disease. Then they took a bunch of blood and stool samples and everything showed normal so they don’t know how she is getting damage so yes they don’t think she is handling the Alimentum as well as we thought. She is a very happy baby so she showed no symptoms beside the GI problems, she still has gas and bloating pretty bad to. She is still on a bottle, she gets 2 a day, nap and bedtime. That is the only time she gets formula since she won’t drink it from a cup.

That’s exactly what I keep telling myself, one day she will be over all this. We gave her pizza when we were trialing cheese but since she failed she can’t have it anymore, boy does she love it. We don’t eat it around her now, I feel so bad!! Let me know if you can find that letter. THANKS!!!!!!!!!!!

[Anonymous]

kara, one of my kids is IgA deficient—we had to do specialized testing find out whether or not he had celiac as the normal tests won’t tell you anything if you are IgA deficient. hopefully celiac is NOT what you are dealing with, but with david being so young, even if he weren’t IgA deficient, the tests probably would not be accurate.

we saw the ped gi on thursday—-i told him you were coming. i really hope you have as good of an experience with him as we have.