AnonymousInactive
VITAMINS!! 
What one mother used for vitamins (see complete article above):”I started her on cod liver oil (an organic source), which is rich in vitamins A and D; rice bran syrup full of the vitamin Bs, iron, and other essential nutrients; wheat germ oil, rich in vitamin E; a liquid mineral supplement, and a whole food vitamin C tablet, which I crushed. By mixing my breast milk with tiny amounts of all of these nutrients, (as well as acidophilus-healthy bacteria that fight off bad bacteria in the body) she was able to fully recover within two to four weeks.”
Thread discussing “the best quality” vitamins for parents and children
Infant Care Multivitamin Drops from Twinlab claims “The highest quality and most natural multi vitamin supplement available for infants. It contains 100% natural vitamins A & D derived from the highest quality fish oils. It also contains 100% natural vitamin E derived from natural vegetable oils, balanced B-complex and vitamin C.””No artificial colors or flavors, sugars or sweeteners, fructose, honey, sorbitol, alcohol or preservatives.”
kale, frozen : 180 mg / cup
kale, raw : 94 mg / cup
broccoli , frozen : 94 mg / cup
broccoli , raw : 72 mg / cup
spinach , raw : 56 mg / cup
Heidi T.2007-4-6 0:55:27
from all I’ve read here, breastfeeding moms try adding hidden dairy first, like kakshi cheese crackers or something like that & see how it goes…then the mom adds in yogurt if the hidden dairy went well, then she adds in cheese and then finally milk…
AnonymousInactive
Wow, thank you for this post. It is very interesting, especially since we are now trialing my ds on Neocate after trying to keep him on breastmilk with worsening results. He is suspected of having this complete protein allergy and removing all soy and dairy from my diet for 6 weeks plus did absolutely NOTHING to improve his situation!!!
Laura..do you know how to get in touch with the author of this post (her email address)? She mentions three specialists in the country that deal with this issue and I would love to know who they are. Does anyone know?
Thanks again for sharing this valuable information. As a mom that has exclusively pumped for 9 months now and fed my child via eyedropper, I am all for breasfeeding…but unfortunately I am coming to realize that my ds may be one of those babies who may NEED something like neocate to heal all the damage done so far. I guess the weeks ahead will tell if this is indeed the case.
rekha
AnonymousInactive
Hi Qman…welcome to you and your family.
I can relate to things going well and child rearing seeming like a breeze…Alana’s reflux didn’t realy hit us for about 6 weeks (incidently when she went from EBM to formula) and then the s&*t hit the fan. Alana was also not a spitter…she hardly ever spit. But she arched during feeding, wailed endlessly after feeding and would not let us lay her on her back. I think it is hard to really tell what is a mild to severe case when dealing with “silent reflux”, reflux where there is no extreme spitting. The fact your little on is arching suggests to me that the reflux is enough to bother him and damage could be occuring.
Zantac did provide us some relief in the initial weeks. The problem is it is very weight sensistive and the dose has to be adjust continually as the bub grows. Many Drs also don’t give the right dose…they can have up to 10mg per kilo of body weight. The other problem is that the system appears to desensitize to the Zantac and it becomes less effective even when the dose increases. Don’t get me wrong, its great to have it but it is not often the answer in my experience.
If he has reflux, most bubs don’t outgrow it for months (around 9 months is what we are told, but some have it much longer). Therefore I would go ahead and get a referral to a specialist. In the meantime I would get a script for a PPI. Once Alana was on Prevacid (Zoton in Aus) and the right dose (30mg at 4 months) she was a new baby. I realised it was not normal for bubs to be in discomfort, crying, wailing etc. Her development also took of once she was more comfortable. Most drs seem to underdose PPI meds so make sur eyou go to marci-kids and get some informationn (even print it out and take it to your appointment) if you are going to go down this path.
Many babies with reflux also have milk/soy protein intolerances. Alana appears to be intolerant (mucous in stools, irritability and pain) so we have her on a hypoallergenic formula. Its great your wife is breastfeeding and has ellimated dairy. As others suggested you might need to get rid of soy and hidden soy and dairy (ie this means that many foods have soy and dairy in them…like biscuits etc…so you will need to read all the ingredients). there are some great posts on this forum under elimination diet that will give you ideas on what to eat etc.
I think it is so wonderful that your wife and little on have such a proactive dad. That type A personality can work for you when it comes to reflux…because sometimes we need to educate these Drs about reflux and what our little ones need
.
Goodluck.
AnonymousInactive
Not really an expert yet, but from recent experience, we waited to long to get him on prevacid. First, I thought it was something i ate making my baby so miserable and gasy, then I thought it was breast milk altogether so I stopped breast feeding, gave him lots of mylicon, and switched formulas. They put us on zantac and he got a little better, but we waited two miserable weeks before going back and just now we’re on prevacid. Hopefully we’re headed in the right direction. We just went to the pediatrician and they subscribed prevacid. I only wish we would have done this 2 weeks ago and maybe we all wouldn’t have been so miserable for the last few weeks. Good luck.
AnonymousInactive
Hi all! I am so glad I found this community. I have been reading the previous posts and already feel much, much better. Here’s our issue. I am trying very hard to balance my extreme type-A personality with natural child growth when it comes to my new born son’s acid reflux. The first week was great, and my wife and I were actually relieved that this new child raising thing wasn’t what we had built up in our minds. Then things changed. My wife is breast feeding and out of nowhere our son’s cry changed on night and the body action was clear he was in pain. The next day we were back at the pediatrician’s office where we were told he had Acid reflux and prescribed…. yup, you guessed it, Zantac. My wife’s diet has also changed dramatically and she has taken out all dairy and anything else we think may be an issue.
Our son has improved somewhat as I believe just our knowledge about his discomfort has caused us to be much more proactive.
My question is this. From what I read, we are very blessed to have what I assume is only a mild case. There is no spit-up, vomiting but only the occasional discomfort with arching back and Pavarotti like wailing.
We are scheduled to go back to the pediatrician on the 16th.
Do I let this all play out, continuing to do what we are now and hoping he will soon grow out of this, or do I move forward with contacting a specialist and getting some other things going.
Any and all advice here would be very much appreciated.
Thank you
AnonymousInactive
Here is a good article. Titled “Allergies and the Breastfeeding Family” http://www.lalecheleague.org/NB/NBJulAug98p100.html
AnonymousInactive
Marianna,
I was just telling my husband “Man if I were still breastfeeding I would be HURTING”. Adriana has 2 bottom teeth that have come through but she is still fussy. I thought that once they came through she would feel better. Tonight I gave Tylenol at 7:15 and she fell asleep at 8:30. We’ll see how long this lasts.
I didn’t get Hylands yet, I read that they have lactose in them. The Humphreys don’t. I might try the Humphreys later if I need to.
Adriana’s mommy2007-4-1 22:2:1
AnonymousInactive
Please help. We are new parents and recently found out our son has reflux. He is on Zantac, and seemed to be relieved for about 2 weeks. We are also adding cereal to his formula. Tried breast feeding, too, but that wasn’t any better. It seems to be about every other day that he is fussy all day long and nothing will make him content. We try everything, walking, lying on stomach, bouncy seat and nothing makes him content. He is currently taking Zantac, I think about .7 ml. I feel like I’m on the phone with the doctor every other day, not just for the reflux, but he has an infected tear duct and now he has thrush. Any advice to help him be more comfortable and any advice to help with his excruciating gas pains would be greatly appreciated.
AnonymousInactive
Justice’s Mom,
He sleeps with me and nurses whenever he wakes up – that’s how he goes back to sleep the quickest/easiest.
I know that it is a habit that will need to be broken eventually, but he’s just barely 5 months old, so for now, I’m not ready to have him CIO or anything like that.
That said, I KNOW he does have reflux – I’m just not sure if he is in pain from it. He has so many of the signs of reflux. It’s just hard to tell sometimes if he is fussy because of the reflux or because of lack of sleep.
When he was 6 weeks old, he was sleeping 8-9 hours at night before waking to eat, but he would then wake every 30 minutes or so after that. His naps have always been horrible, even when he was sleeping better at night. He never napped more than 30 minutes at a time even then. He was VERY colicky during the day then, and I don’t think it was due to lack of sleep since he slept so well at night and catnapped during the day.
However, since his colic is gone for the most part (he’s just fussy in general now), I’m not sure if he is still fussy from reflux or if it’s due to lack of sleep. He does seem tired a lot to me. Although, he always goes right back to sleep after he wakes during the night to nurse. I think the biggest problem is still naps, because he still doesn’t want to nap and when he does 30 minutes is usually the longest he’ll sleep.
I just realized I haven’t answered all your questions…the breastfeeding is going well. It doesn’t hurt at all. It used to hurt when my milk would let down due to overactive letdown but by block nursing I have finally gotten that under control.
About how often he wakes – I would say initially he will sleep 3 hours and then wake every 1-2 hours after that. Sometimes the initial stretch will be 4 hours, but other times it’s as short as 1 hour. It usually takes him a long time to go to sleep initially often waking several times and crying before finally going down for a stretch of 3-4 hours. For naps, he will always sleep better in a carrier where he is held upright. He will sometimes sleep up to 2 hours like that. Whereas in this crib, 30 minutes is usually his max (occasionally 1 hour).
Thanks for your help!
AnonymousInactive
I’m not trying to offer you medical advice, as I am not your doctor, and I don’t know your complete history. I just want to offer you a little more information, that your psychiatrist might not have explained to you. Mood stabilizers (medications used to treat bipolar), unfortunately, are not as safe in breastfeeding as antidepressants. Depakote is a possible one you could take (perhaps the highest recommended one with breastfeeding, the least with pregnancy). It can cause weight gain, and that can worsen your diabetes. You could also take Omega-3, some studies have shown this can help bipolar, and this could be good for your baby as well. I’d talk to your doctor about possible options and the risks and benefits of medications again.
AnonymousInactive
I think probiotics and omega-3 acids are great! Probiotics (good bacteria) help fight off the bad bacteria. They also help the GI work better, so they are less miserable (sleep and eat better). When they are less miserable they have a better chance at having a good immune system. Think about how easier for you to get sick when you don’t get enough sleep
.
http://www.newmediaexplorer.org/chris/2004/01/13/cod_liver_o il_number_one_superfood.htm article on cod liver oil, discusses benefits of taking it during pregnancy, breastfeeding and giving it to young children
http://www.mercola.com/2001/apr/14/probiotics.htm article titled Beneficial Bacteria (Probiotics) May Halt Allergies In Babies
http://www.mercola.com/2001/apr/14/probiotics2.htm article titled Probiotics In Primary Prevention Of Atopic Disease
Heidi T.2007-3-30 1:38:15
AnonymousInactive
Hey,
I don’t have much to add to the whole medication discussion, but I just wanted to say that I totally empathize with you. I have never really gotten to that point myself, but those days when Ben won’t stop screeching and won’t eat and Claire is driving me up a wall, I can totally understand how someone could. It is so hard to be a mommy of a refluxer, and I really think that breastfeeding a refluxer is even more difficult as well.
All of that to say… hang in there. Please don’t think you are alone. Please know that your daughter loves you, heart and soul. And while every single day, even every minute sometimes seems like a horrible reality, know that it will all eventually be a memory that will continue to fade as your daughter grows and thrives from all the love you have given her. I know this is all hard to remember in the moment… really I do… sometimes I just have to keep reminding myself to take it one day at a time, holding on to those good moments.
AnonymousInactive
Okay, I’ve been on this website for about 5 days now and I can’t believe all the stories that are just like mine.
I’m mom to Owen 5 mo and I won’t go into the full story, but I now believe his prevacid dosage is not working. He takes 2.5ML or 1/2 tsp. at night before bed. I had it flavored because I tasted it and it is awful
He sleeps sometimes through the night, others not but is usually only up once.
He does not at all nap well and he is in daycare 3 days a week so I first suspected that it was too loud. Whe I am home with him he will wake up after an hour nap screaming, his eyes never open and after about 1 oz of neocate, is zonked again for 45min to an hour or more. I think he is having acid problems.
Also from the Marci kids website I don’t know how much he should actually be getting because he gets the compounded stuff which I don’t think is on there.
We visit the doc again April 10 and I want to be prepared with all the good info I can. We had tried Axid before, this seemed to help, and he took it better. Do they both work for the same cause?? I was giving that twice a day and now I think it may have worked better. We switched because I went from breastfeeding to Neocate due to all kinds of other issues. He was in the hospital and had a feeding tube for 8 weeks and in the end we ended up with this combo.
I will take ANY input!!
And by the way, no doc should be telling us moms that we don’t know what we are talking about! I can’t believe how much money I have paid out for my ped to be wrong!! After 4 long months we have finally had so so time for the last few weeks!!
Just had to vent that!!
Erica
Mom to Griffin James 1/29/04 big eater, no problems
Owen Reed 10/6/06 MSPI, Reflux, on prevacid, Neocate
AnonymousInactive
Just wanted to say I have a 5 mo old Owen who basically stopped eating, spent 5 days in Children’s hosp, ended up with a feeding tube (NG) for 8 weeks. We started neocate and it took a long time, at least a month for him to start eating better. He took what he could from the bottle and then the rest through the tube. I became the queen of replacing the tube even at 4 a.m.!!! I had been breastfeeding then tried Alimentum, but NEOCATE is the only thing that has totally broken down proteins that are lab created from what I understand, it is just so much easier for them to digest. I wish you the best. I am a physical therapist asst and from what I have seen and heard, Mickey works well. Wish you the best!!
Erica mom to Griffin 3yrs and Owen 10/6/06 MSPI, Reflux