AnonymousInactive
I have a question, does anyone here bf their infant with reflux? His reflux is getting better, on prevacid for a while now and was diagnosed with mspi but I badly wanted to bf. Everytime I try he gets a lot of gas and goes back to colicky type symptoms and does not sleep well at night. I have tried everything with my diet etc… But feel so discouraged. I hear bf is the best thing you can do fir reflux and really wanted him to enjoy all the health and emotional benefits of bf. Has anyone conqured mspi with breast milk or should I just give up. I ball everytime I try and fail! Any advice?
AnonymousInactive
I have a 10 week old LO who was diagnosed with reflux at 4 weeks of age. His main issue is poor eating. He is currently on prilosec with buffer babies (at marci-kids dosing) for the past week (after trying prevacid and axid and using compounding and solutabs) and alimentum. I have started an elimination diet. He takes in 18 oz on a good day, and less on a bad day. We have been seeing a feeding specialist for the past two weeks, and at this point, she is not concerned with a feeding aversion. We have also seen a GI specialist. We give him extra calories in the breast milk/formula so he can continue to gain weight. Feeding him is so stressful and such a fight. Is there anything else to do? Is there anything else I can try?
Max’s mama
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hi
& welcome! you’ve found a great place!
the
key to all of this is RESEARCH and, of course, support!
http://www.marci-kids.com is at the FOREFRONT
of research of PPI use and dosing in infants/todders. You might want to
start there to see if PPI dose is ‘proper’
then,
hop back here to learn HOW to get that proper dose and what FORM of PPI and HOW to administer…your liquid most likely isn’t being made correctly…
Prevacid
101(last post on the page): https://www.infantreflux.org/forum/forum_posts.asp?TID=1936&PN=0&TPN=1
unfortunately,
the majority of drs & pharmacists don’t know…babies metabolisms’ are much
faster than adults, so the drugs work differently with them…
after
medication, you might then want to look at diet…what are you thickening with? you may want to look into a thickener rather than cereal, if you’re using cereal. or you might need a cereal w/o any added milk or soy…or if you’re using rice, you might want to try oatmeal or barley…
I
have a LOT MORE TO SAY! and most of it is here:
Groupie Intro:
https://www.infantreflux.org/forum/forum_posts.asp?TID=853
it’s
looong, but PLEASE read/skim/scroll through it & refer back to it, as it
TRULY will help you!
so
glad you found us!
~laura
ps: when you
get a moment, please go to the upper right-hand corner of this screen and click
on ‘settings’ and from there you can edit your signature and let us know how
old baby is, what formula or breastfeeding, MSPI or not, what meds and
what doses and form of meds and how you’re administering-thanks!
hellbennt2010-04-07 19:42:57
hmm…well the first thing I have to say is that with milk proteins it seems to be all or nothing…so if your lo (little one) is intolerant to milk protein then you would have to cut it ALL out, including ‘hidden’ dairy meaning milk IN things as ingredients- google ‘hidden dairy names’ and you’ll see whey rhennet (sp?), casein (sp?) etc.
it takes a good 2 to 3 weeks to get it out of your system…so to answer how long it takes to see the effects of what you eat, well that would be for you to see after you totally eliminate the protein (in this case milk) from your diet for a good two weeks. if you’re almost there, it shouldn’t be too hard and it’s *just* two weeks, lol. but really you can do it!
as for anything else it takes 3-5 hrs to make it into your breastmilk- so for example let’s say it’s tomatoes (my lo reacted when I ate tomatoes and tomatoe products)- and you have spaghetti w/ sauce at 12 noon, then at 4:00 you feed baby then after that feeding baby is particularly upset and diaper following that feeding is different than usual, well there it is- it was the tomato sauce…I did the TED because I was desperate and it was ‘just’ two weeks. turns out it was not milk or soy for my lo, but I did discover that I could not eat tomatoes, citrus, eggplant (a weird one!) or tuna (another weird one!)
another thought: your lo is 10 weeks so thats a long enough time for the proteins to build up and for you to be seeing the results of that- so you ask what if you don’t change your diet and keep going the way you’re going? well, either things will stay the same or you will see them progressively getting worse as the offending proteins build up in the system and the body reacts…
SOME mucous is normal and SOME green diapers are normal! they just shouldn’t be all.the.time.
not sure I’m helping here, lol.
I’m actually going to be offline for a few days, so please don’t think I’m ignoring you! I’m going to send out the S.O.S. signal to other members so they can keep an eye on this thread/you, ok?
~laura
AnonymousInactive
don’t worry about passing on celiac disease to your child by using the wrong formula. breastfeeding is most likely to help prevent celiac in a genetically susceptible person—but that’s not a given. i breastfed all 3 of my celiac children.
AnonymousInactive
Make sure you drink plenty of water and if you can find gluten free oatmeal this will help your supply as well. I eat oatmeal everyday and I am exclusively pumping and I have been able to freeze close to 100oz already and I have ~6 feedings in my fridge. I am able to get about 7oz each pumping session and she eats 5oz 6 times/day. Drinking plenty of water helps a ton too… gotta stay hydrated to be able to make enough milk. Good luck, I wasn’t successful with my son but am doing well with daughter.
also you
could call la leche league for help finding local free help(they have local groups) & maybe they know of another lactation consultant
The La Leche League
Breastfeeding Helpline w/access to toll free breastfeeding help 24 hours a day.
Just call 1-877-4-LALECHE (1-877-452-5324)
AnonymousInactive
I also had a lot of blistering / cracking with my second and the hospital gave me a cream to use, and I can’t recall the name of it. Is there a hospital close by that has a different lactation consultant. Telling you to suck it up does not seem to be a good answer– I would seek a second opinion.
AnonymousInactive
.exetergirl2011-02-12 09:25:52
AnonymousInactive
.exetergirl2011-02-12 09:25:37
AnonymousInactive
Here recently my baby boy has been getting worse and worse. He coughs more, he chokes more, he stays congested, etc.
We saw the GI for the first time today. He went over the results from our sons pH probe and Upper GI. He has suggested that we do small frequent feedings (every 2 hours including at night). He has also suggested that we sleep him at a 30 degree angle on his stomach.
We also suspect a food allergy because he has recently had green, mucusy poops with a bad smell to them (He is breastfed so this is odd for him). Sure enough the GI found that he also had blood in it. We then sent it in for a full culture to rule out any infection and make sure this is an allergy we are actually dealing with.
I plan on trying the elimination diet to see what foods might be effecting him. I have not been having any dairy for weeks now (I was allergic as a child and I strongly suspect that). I am also thinking he may be allergic to tomatoes and beef. Today is my first day on the new diet so it will also be the first day I have completely cut this stuff out.
This will be a very demanding schedule for me. Constantly logging my food intake, his feedings, and stools. Feeding every two hours will mean less sleep and less time for social activity(especially since he will no longer take a bottle at all). I am more than willing to do this if it will help him.
My question is has anyone done anything similar? What were the results?
AnonymousInactive
Hopefully the GI will offer you some good advice. I agree with the others, take out the rice and just bf. Then you won’t have to deal with constipation on top of it, especially since trying to thicken breast milk is futile. I’d try to get the GI to prescribe a higher dose of prevacid, ideally with bufferbabies (as I’d bet that the compound isn’t being made properly). Solutabs are another route, but need to be timed around feedings- on an empty stomach and followed up with a meal 30-60 minutes later. Check out http://www.marci-kids.com.
Everyone here can relate. You’re certainly not overreacting! We were told that we were overreacting by everyone, including the doctor, until the reflux went on for so long that my baby finally decided that she wouldn’t eat, and then we had reflux and a feeding aversion. So trust your mommy instincts- it’s usually right. And don’t let people tell you otherwise, just because you’re a first time mom. That used to be one of the first things people would ask me, like if I was a first time mom, then that would explain why I was “overreacting”. When i told them no, they would go “oh”. Hang in there. This site is great!
AnonymousInactive
Hello I’m new here and I need feedback. My son was born premature at 29 weeks old. He is term now (he was due Feb. 14). He won’t drink from a bottle or breastfeed d/t reflux. He is on zantac, carafate and reglan. The doctor thinks a nissen fundoplication will help. He has had a swallow eval and a barium swallow, which didn’t reveal much. He is still in the NICU and we haven’t been able to take him home. I’m leaning towards the procedure b/c nothing is working and he is getting worse at eating instead of better. We are worried he is developing an aversion to eating b/c he associates it with pain. The procedure would probably involve a g-tube so we could take him home and feed him with a feeding pump until he is able and willing to eat. I have no idea how long it would take for him to develop the ability and desire to eat after the procedure. Other than the reflux and eating issues, he is healthy. He does have slow motility and doesn’t stool often – about every 4 days – but he weighs 8 pounds and is very alert. Does anyone have a similar situation?