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and reflux.
Hello all,if your child has very slow motility and you have tried given, reglan, and erothyminthin (sp?) with little improvement, you might want to talk to your doctor about Domperidone. It’s not FDA approved, but is still legal to sell in the US. Also there is much controversy of why the FDA has not approved it (versus approving reglan, which i will not advise anybody to take such drug). The doctor can also prescribe it to help reflux issues by helping the stomach to move its contents faster into the intestine and therefore reducing the regurgitation pain.Please read all the info below and see if Domperidone might be worth a try. After 2.5 years of fail treament to treat my dd’s gastroperasis, her Dr. has finally prescribed this med and i’ll let you know how it goes. For what i heard from other patients who are using it, it had improved their symptoms greatly (some of these patients have been on reglan and erothy before domperidone).If you want your doctor to call in a prescription below is a list of places in the US that sell it and many will ship it to you. Also, there is valuable info regarding the medication.dosage recomendation:A medical article stating evidence of significance improvement of symptoms of DGE by using domperidone.I hope this info help you help your little one.Leokendramom 2010-01-08 11:18:21 Topic: Neocate/Reflux/Aversions….
So, we are on Day 5 of Neocate. We transitioned from an unsuccessful 8 week trial of FULL T.E.D. Last night, the ‘before bed’ feeding was awful. DS refluxed the whole time and I could barely get an ounce in him (he’s on marci max dose of BB and NEVER refused the breast like this). Then he slept for 7 hrs (?) and took his 4 am bottle fine, his 7 am bottle fine but fought his 10 am bottle. Just kind of wondering how bad everyone’s reflux got during the transition. When will reflux improve and when will his intake increase? I feel like it’s REALLY flaring now and I’m frightened of developing a bottle aversion before this 2 week healing period can happen. He’s drinking like 12-15 oz. a day (plenty of wet AND messy diapers though and weight gain has never been an issue—3 mos/14.5 lbs.). I guess it’s worth mentioning that lots has improved since the transition. He’s sleeping better and is SO much less squirmy. BM’s are almost mucous free! Your thoughts?
P.S. Ignore my siggy. It’s totally inaccurate!
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all of this is RESEARCH and, of course, support!I have a LOT TO SAY! and most of
it is here:https://www.infantreflux.org/forum/forum_posts.asp?TID=853
there
is even a link from Groupie Intro for finding a dr near you.(Anyone
else reading this who has not posted their dr on that link: PLEASE do, as it
helps others! the good AND the bad…thanks
!!)Groupie Intro is
looong, but PLEASE read/skim/scroll
through it & refer back to it, as it TRULY will help you!http://www.marci-kids.com, this site is run by the researchers who are at the FOREFRONT
of research of PPI use and dosing in infants/todders. You will want to
start there to see if PPI dose is ‘proper’then,
hop back here to learn HOW to get that proper dose, if need be, and what FORM of PPI and HOW to administer…Prevacid
101(last post on the page): https://www.infantreflux.org/forum/forum_posts.asp?TID=1936&PN=0&TPN=1unfortunately,
the majority of drs & pharmacists don’t know…babies metabolisms’ are much
faster than adults, so the drugs work differently with them…after
medication, you might then want to look at diet…so glad you
found us!~laura
ps: when you
get a moment, please go to the upper right-hand corner of this screen and click
on ‘settings’ and from there you can edit your signature and let us know how
old baby is, what formula or breastfeeding, MSPI or not, what meds and
what doses and form of meds and how you’re administering-thanks!hellbennt2010-01-03 19:47:57
Hi, I’m new to this site.. And although I’ve found some extremely helpful suggestions from fellow suffering mama’s, I just thought I’d make my OWN post to see if I can get some specific H.E.L.P!!!!My daughter is 4 months old and has been suffering with reflux for about 3 months now. She was breastfed exclusively for the first month, and around 3 weeks I started noticing changes. She would arch her back and scream through the whole feeding, although acting ravenous and starving. We had our first trip to her pediatrician, only to be dismissed with the typical “it’s your diet” ordeal. After altering my diet for weeks, there was NO help. So I started supplementing with formula to ensure it was NOT my diet, as I already thought. However, after being switched formulas 4-5 times, she (nor I) found ANY relief from this. I knew it was not just gas. I did my own research and seen many other mom’s having the same troubles and they found out it was reflux. Her pediatrician started her on a very low does of Prevacid to start. It worked WONDERS for about a week, then it just failed to do anything for her. After this, she was put on Zantac (2x/day) and Reglan (4x/day). This was a miracle for about 3 weeks. Then, once again, it started failing us again. I called the doctor only to have her tell me she was growing out of it and needed a dosage increase (this happened twice) She is now taking Zantac (1ml 2x/day) and Reglan (0.7ml 4x/day w. meals) and it is showing absolutely NO change. After about 10-12 visits to her doctor (and she’s only 4 months old) Nothing is helping. She’s had an Upper GI done with nothing being shown except “SHE HAS REFLUX.” Well DUH.
I NEED HELP!!!! Her pediatrician does absolutely nothing and takes NONE of my suggestions to heart. I KNOW I am not just a worried first time mother, my daughter needs HELP! Feeding is supposed to be a relaxing, bonding time. Not complete hell for me and pain for my daughter.She is scheduled for a Gastronitestinal Specialist at the end of the month.. but I want help NOW!!!Please HELP 🙂 Any suggestions would be enormously appreciated!!!!Topic: allergies now?!
Hi all, I have been off and on here for some time now. My little one is now 13 months old and still having some problems. We all thought he had reflux as a baby – spitting up>30x/day, very colicky (I hate that word), and always congested. I am still breastfeeding him, trying to wean him (he is on whole milk and heavy whipping cream – his GI doctor gave me this concoction).
Well, he saw an allergy/asthma doctor yesterday and tested + for almonds and rice!! I remember trying the total elimination diet, but was not successful in doing it, because he still seemed fussy – could have been the rice maybe?!He also got a RAST blood test done ,and some immune test done too. So, now he is off of his reflux meds, but on to another problem. He barely spits up anymore, but still congested and sick.Anyone else have babies with food allergies – + skin tests? We go back next week.I feel so bad for him, how much of his problems were allergy vs reflux??Topic: Seizure or Sandifer – HELP
We are new here, and reading everything we can to get up to speed with the diagnosis. At 6 days old, our new little girl stopped breathing while breast feeding. After trips to 3 hospitals including extended stays at different NICU’s, we have a diagnosis, Reflux. We have moved from H2’s to PPI’s (compound Prevacid). With Reglan, we have been stable for 2.5 months. We tried to replace Reglan for PED Eryth, and ended up with a non breathing episodes again (7 in 4 days). These episodes look different than our past ones:.
She starts off not breathing, eyes to the side, body stiff, leg shaking, lips quivering, drooling, then she starts to breath (grunting). This may go on for 1-3 minutes.We recorded a video and showed it to our GI and her colleague. The GI’s did not come to the same conclusion. Our GI believed it was related to Reflux while her counterpart believed it was a seizure. We are now referred to a Neurologist to determine what’s next.Our question:Does this episode sound like Seizure or Sandifer’s.thx,BonnieBonnieW 2009-12-19 13:52:36 /* Style Definitions */
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Word to Mozilla Firefox
, so please ignore the underlined words that are not
hyperlinks
…the
key to all of this is RESEARCH and, of course, support!How are poops?<!–
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mso-bidi-language:#0400;}gas: foul-smelling, painful gas
http://www.marci-kids.com is at the FOREFRONT
of research of PPI use and dosing in infants/todders. You might want to
start there to see if PPI dose is ‘proper’then,
hop back here to learn HOW to get that proper dose, if need be, and what FORM of PPI and HOW to administer…Prevacid
101(last post on the page): https://www.infantreflux.org/forum/forum_posts.asp?TID=1936&PN=0&TPN=1unfortunately
the majority of drs & pharmacists don’t know…babies metabolisms’ are much
faster than adults, so the drugs work differently with them…after
medication, you might then want to look at diet…I
have a LOT MORE TO SAY! and most of it is here: Groupie Intro: https://www.infantreflux.org/forum/forum_posts.asp?TID=853it’s
looong, but PLEASE read/skim/scroll through it & refer back to it, as it
TRULY will help you!so
glad you found us!~laura
ps: when you
get a moment, please go to the upper right-hand corner of this screen and click
on ‘settings’ and from there you can edit your signature and let us know how
old baby is, what formula or breastfeeding, MSPI or not, what meds and
what doses and form of meds and how you’re administering-thanks!hellbennt2009-12-15 17:08:50
Topic: please help
Hello
I am a mum of a 2,5 year old and a 7 week old girls.
My 7 week old Nadia suffers from Reflux. Her sickness has improved a lot since
1. she is on Gaviscon
2. i have changed my diet (breastfeeding)
3. we keep her upright
I cannot crack her sleep – ever since she was born she sleeps on me on
the sofa. Each time I put her down in her moses (even now we have
propped it up), she wakes up in 10 minutes, either bringing food up or
crying.I have just bought ar pillow and hoping this will help.
I was just wondering whether you could share any advice, as I am getting no sleep and getting quite desperate now.
I have had no such problems with my first born girl, so i do not know how to deal with it.
I do not want to get in bad habits but we kidn of already have. I sleep
with the side light on, so I cna deal with her quicklly if she is sick.
And she sleeps on me.Not good at all.Please please share some advice.
Thank you so much
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