Search Results for 'breast feeding'

[Anonymous]

Hi there. My DS is 6 weeks, but this is my 2nd go around so I caught things pretty early. I think you can most definitely still breast feed. You probably just need to look into a few things. Like Laura said, are you eliminating ALL dairy, even hidden, like caesin and whey? Your baby may be reacting to other things in your diet like soy, caffeine, citrus, onions, chocolate, nuts among others. You can choose to eliminate the big offenders or do Dr. Sears Total Elimination Diet, which is what I am currently on. It took a long time to really see results, like almost 3 weeks. Milk proteins tend to stay in mom’s system for 2 weeks and then baby’s for another 2 weeks, so it could take a month. Also, a huge issue for me was overactive letdown, which I am still struggling with. Sometimes reflux is caused by OAL, and sometimes the symptoms mirror each other. Anyways, go to the link listed below, it is DEFINITELY the best information I have read when it comes to breastfeeding and diet.

https://www.infantreflux.org/forum/forum_posts.asp?TID=2697&PN=2

[hellbennt]

hang in there!
if you want to breastfeed, then just do it.
if you switch to formula, there is nothing to say that you won’t have the same kind of frustrations, having to switch from one formula to the next.

when you say elimination diet, ‘we’ need to know what you mean- do you mean Dr Sears Total elimination diet where you’re only eating potatoes, rice, free range lamb & turkey?
how long have you been on whatever your diet is?
why did you go on the diet?
have you seen any results?

I have a LOT MORE TO SAY- so don’t give up!!!!

[Anonymous]

Hi I am new to here but I need some help!!!

My little girl is 2mths old and is currently on Prevacid Tablets 15mg split in half once a day. And we were doing good but called GI doc today because she seems to be going back down hill so they are putting her back on Zantac 2 a day!!!! With the prevacid. I have done a lot of reading on the posts and it does seem like she is underdosed based on the Marci kids recommendations. I will ask GI doc about that one.

Has anyone had any relief going from Breastfeeding to Formula?????? I am getting a lot of pressure from family and friends to just switch her to formula and they think that is the magic answer!!!

I am also on the elimination diet. No milk, no butter at all. Even the hidden ones.

I am getting so desparate here I am staring to lose all hope!

Please help!

[hellbennt]

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my computer does not like
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words that are NOT hyperlinks…

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hi
& welcome! you’ve found a great place!

the
key to all of this is RESEARCH and, of course, support!

http://www.marci-kids.com is at the FOREFRONT
of research of PPI use and dosing in infants/todders. You might want to
start there to see if PPI dose is ‘proper’

then,
hop back here to learn HOW to get that proper dose, if need be, and what FORM of PPI and HOW to administer…

Prevacid
101(last post on the page): https://www.infantreflux.org/forum/forum_posts.asp?TID=1936&PN=0&TPN=1

unfortunately
the majority of drs & pharmacists don’t know…babies metabolisms’ are much
faster than adults, so the drugs work differently with them…

after
medication, you might then want to look at diet…

I
have a LOT MORE TO SAY! and most of it is here: Groupie Intro: https://www.infantreflux.org/forum/forum_posts.asp?TID=853

it’s
looong, but PLEASE read/skim/scroll through it & refer back to it, as it
TRULY will help you!

so
glad you found us!

~laura

ps: when you
get a moment, please go to the upper right-hand corner of this screen and click
on ‘settings’ and from there you can edit your signature and let us know how
old baby is, what formula or breastfeeding, MSPI or not, what meds and
what doses and form of meds and how you’re administering-thanks!

hellbennt2009-11-15 20:50:52

[Anonymous]

Hi Nat. Welcome to the site. Sorry to hear what you’re going through with your daughter. Sounds like my refluxer. In our case, she was difficult to feed from about a week old, cried non-stop, didn’t sleep, needed to be held all the time. BUT never cried to eat or be fed. When i would offer her breast or bottle, she would take one suck or none, start to cry, pull away, arch, scream, etc. Finally at 8 weeks she stopped eating. I couldn’t feed her. She was put on prilosec suspension which did nothing, and eventually prevacid which did nothing. We ended up having to sleep feed her, and even that was difficult.

Finally I found this site and found that her meds weren’t right- the compound was terrible and the dose was way too low. She was still in pain. I’ll fastforward to the end- at 8 months we got her on a good dose of prevacid, about 30mg, started feeding therapy, continued until around 15-16 months, when she was discharged. She remained a fussy eater, but at about 20 months started to like her bottle. We could tell that she was starting to feel better. And that’s when her eating slowly improved. She is now a picky but good eater with what she likes.

So, I have some questions for you:

1) What type of prevacid is it, what’s the dose, and how do you give it. IF either the dose isn’t high enough, or you’re not giving it or preparing it correctly, then it won’t work well. My experience with feeding aversions makes me believe that refluxers with feeding problems need higher doses of the meds. They need to feel comfortable so that they can forget that feeding hurts. Check out http://www.marci-kids.com for more info about dosing and meds.

2) You say that you’re feeding breast milk with neocate- is it possible that she has food intolerances? Can you try elimination diet?

3) The sleep feeding is difficult, but it also becomes hard to break. We couldn’t break the cycle. It was very hard. I personally don’t think that feeding aversions go away on their own. You first need to get the meds under control and make sure that she’s not in any pain. Then the next step is feeding therapy. If your feeding clinic can’t help, there are lots of approaches so look for others, or talk to your therapist.

4) consider testing, such as an endoscopy to make sure that there’s not something physically wrong or to get biopsies to examine the tissue. Get a referral to a pediatric gastroenterologist if you don’t have one already. If you don’t have a good one, maybe someone on this site can help.

5) Don’t blame yourself. This didn’t happen because you pushed her. Normally babies like to eat. You don’t have to push. They cry to eat, you show them the food source, and they grab it, and then they feel better. With a feeding aversion, they’ve learned that it hurts, so they don’t want to eat, so you end up pushing a bit harder to get them to eat, but it’s not your fault. We never pushed Hailey and she still had a wicked feeding aversion.

About turning it around, the sooner you treat the pain the better chance of turning things around. Some people on this site were able to do that- the meds or meds and diet combination helped. Some had to try spoon feeding formula, or feeding therapy, but they were able to get by. Others like myself, had a longer go of it, and it lasted for a longer time. Others still needed feeding tubes to help until their babies were feeling better and able to eat and that probably lasted the longest.

For us, the feeding aversion really lasted until around 20 months, getting progressively better from 16 months on. It was a slow road, but I also didn’t get her pain well controlled early enough.

I know how stressful it is. The struggle with weight gain and the worry about how much they’re eating or how much they’re gaining is very hard. Surround yourself with people who understand, and keep searching for new opinions or new clinicians to help. At about 7 months, I had reached rock bottom with the struggle of sleep feeding and being sent home from countless doctors with a low dose of prilosec compound. Then Laura (hellbennt) from this site sent me a simple reply to one of my posts. For whatever reason it empowered me to take charge of finding the right people to help my daughter, and to move on from those who thought things were fine, or that our situation was nothing.

I remember when Hailey was a baby and I heard that there were people who were dealing with this for years, and I thought that I would crumble and not be able to take it if we had to deal with it. But I have to tell you, that the people on this site are great, and that we made it through, and that we’ve come out on the other side where my refluxer is now my good eater, and my older daughter is the one who eats two bites and only wants junk food. So hang in there. Good luck.

[Anonymous]

We are having problems feeding our 4-month old daughter. During her first month, she was a big eater and did very well. However, she developed reflux (and is now on prevacid which seems to be helping with the reflux) and now has weight-gain and feeding issues. We have to give her a nap 45min before each feed (to get her sleepy) and feed her swaddled in a dark room with white noise in the background. She has always been bottle fed breastmilk. She was born at 6lbs and we worry that some of her feeding issues may be due us having tried to push her to eat more than she wanted. We have also been to a feeding clinic but so far there has been little success. We tried neocate/rice cereal but she ate very little and became constipated. We are now supplementing her milk with neocate with some success but her volume has gone down to the amounts she was eating in the first month.

 

Any other suggestions? How long does a feeding aversion usually last?

 

 

Thanks in advance for your advice

 

Nat

 

[hellbennt]

I hope others chime in.
I suppose s/he will want to know why you’re there- symptoms, etc.,
what you’re currently doing & what you’ve tried re:
formula, breastfeeding, switching from one formula to another or changing diet while breastfeeding
solids- when you started, how it’s going
medicines she’s currently taking & what doses and what medication she’s been on before and what doses
any rashes or skin conditions
how she eats
how she sleeps
how she poops

s/he might want to do an Upper GI- this is where they look for structural abnormalities- it is NOT a test for reflux bcse if baby doesn’t reflux at the time of the test it just means that they didn’t ‘catch’ her refluxing at the time of the test, it does not mean that she doesn’t reflux (ever)

I would listen to what dr has to say and I would also TELL dr what it is that I’m expecting/looking for.
If you want, you might fax the dr before the appt. so that s/he knows the facts that you would like addressed-
keep the fax short & sweet w/ facts and statements- no rambling emotions. then state what you want/what you would like to discuss at the appt.

[hellbennt]

pears always ‘seem’ to be ‘safe’ (they’re allowed in the strict diet of a breastfeeding mother who is eliminating built-up proteins to try and determine what, if any, are affecting her baby via her breastmilk)
but, that being said, there seem to always be exceptions to every rule- especially for these GERDlings!

[hellbennt]

lots of encouragement here! (forgive the wonly post- Mozilla Firefox hates me copying & pasting from MSWord!)

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Probiotics, brands used: https://www.infantreflux.org/forum/forum_posts.asp?TID=8970&PN=1

breastfeeding a reflux
baby: post w/ link to shelby’s
breastfeeding blurb & Paula’s breastfeeding 2 MSPI refluxers: https://www.infantreflux.org/forum/forum_posts.asp?TID=10173&PID=87204#87204

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Reflux-what I have
learned: https://www.infantreflux.org/forum/forum_posts.asp?TID=2948&PN=3

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Breastfeeding & reflux:
https://www.infantreflux.org/forum/forum_posts.asp?TID=2942&PN=0&TPN=1

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Great anne post: https://www.infantreflux.org/forum/forum_posts.asp?TID=9242

hellbennt2009-11-09 07:55:04

[Anonymous]

I have a 5 month old who is on Zantac. I breastfeed him, though it has been tough at times. The common battle I have had is with him struggling at the breast and at times not wanting to finish on either side (he does better with the initial flow and struggles when the flow slows down toward the end). Weight gain was an issue for him earlier on, I think largely b/c he was more comfortable on less food. It gets so stressful for me when he is having a hard time eating and I am wondering if there is any advice in general from other breastfeeding moms? Most of the posts I have read here seem to discuss formula and I haven’t seen a lot of discussion regarding breasfeeding. I have many times contemplated weaning him because of the stress of his feeds, but from all I have read it seems that to switch to formula would probably only make matters worse – and he doesn’t eat very well from a bottle. Anyway, any encouragement/thoughts on this end would be greatly appreciated!

Kristy

[hellbennt]

yes, there’s a BIG difference…
please excuse the way the following ‘looks’- I’m having a very hard time w/ copying & pasting from MSWord to Mozilla Firefox…

hi
& welcome! you’ve found a great place!

the
key to all of this is RESEARCH and, of course, support!

http://www.marci-kids.com is at the FOREFRONT
of research of PPI use and dosing in infants/todders. You might want to
start there to see if PPI dose is ‘proper’

then,
hop back here to learn HOW to get that proper dose, if need be, and what FORM of PPI and HOW to administer…

Prevacid
101(last post on the page): https://www.infantreflux.org/forum/forum_posts.asp?TID=1936&PN=0&TPN=1

unfortunately
the majority of drs & pharmacists don’t know…babies metabolisms’ are much
faster than adults, so the drugs work differently with them…

after
medication, you might then want to look at diet…

I
have a LOT MORE TO SAY! and most of it is here: Groupie Intro: https://www.infantreflux.org/forum/forum_posts.asp?TID=853

it’s
looong, but PLEASE read/skim/scroll through it & refer back to it, as it
TRULY will help you!

so
glad you found us!

~laura

ps: when you
get a moment, please go to the upper right-hand corner of this screen and click
on ‘settings’ and from there you can edit your signature and let us know how
old baby is, what formula or breastfeeding, MSPI or not, what meds and
what doses and form of meds and how you’re administering-thanks!

hellbennt2009-10-29 21:33:01

[hellbennt]

please excuse any underlined blue words that are not hyperlinks that go to another url!!! mozilla firefox & my MSWord are not getting along!

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hi
& welcome! you’ve found a great place!

the
key to all of this is RESEARCH and, of course, support!

http://www.marci-kids.com is at the FOREFRONT
of research of PPI use and dosing in infants/todders. You might want to
start there to see if what proper PPI dose you will be wanting to request (not ask!) from the dr…

then,
hop back here to learn HOW to get that proper dose, if need be, and what FORM of PPI and HOW to administer…

Prevacid
101(last post on the page): https://www.infantreflux.org/forum/forum_posts.asp?TID=1936&PN=0&TPN=1

unfortunately
the majority of drs & pharmacists don’t know…babies metabolisms’ are much
faster than adults, so the drugs work differently with them…

after
medication, you might then want to look at diet…

I
have a LOT MORE TO SAY! and most of it is here: Groupie Intro: https://www.infantreflux.org/forum/forum_posts.asp?TID=853

it’s
looong, but PLEASE read/skim/scroll through it & refer back to it, as it
TRULY will help you!

so
glad you found us!

~laura

ps: when you
get a moment, please go to the upper right-hand corner of this screen and click
on ‘settings’ and from there you can edit your signature and let us know how
old baby is, what formula or breastfeeding, MSPI or not, what meds and
what doses and form of meds and how you’re administering-thanks!

[Anonymous]

Our first baby also had sever reflux. We’ve gone through the whole thing. I tried everything with her. I was talking to Dr Phillip from Marci kids and tried several options on my daughter. We then had to fly her to London for treatment. My wife tried everything with her. The diet thing as she was purely breast fed,but had a horrible feeding aversion my daughter is still on Losec now (2.5 yrs old). My son, on the other hand wants to feed all the time and is always fussy. He is purely breast fed and cries his eyes out every hour or two if he’s not fed. His mom in on the diet. The problem now is that he wakes up every hour to two at night. He used to sleep for 4 hours at a time, but now he got worse. The dr told us to spread his feeds to 3-4 hours, but we can’t as he will scream. We started the prevacid about 3 weeks ago with no major improvement.

[hellbennt]

you’re breastfeeding, right? so when you say he’s fine on soy, you mean you have not cut any soy from your diet, but you have cut out all milk proteins, including ‘hidden’ ones as in ingredients in things (ex: whey, casin, rhennet,etc)?

if I were you I’d give the axid (or zantac, whatver you choose) ALSO.
make sure to give 4hrs seperate from the prevacid. I know it sounds like we’re trying to medicate your baby here, but from what I’m reading it sounds like reflux to me. My baby had Sandifers and it took a proper dose of PPI to stop those symptoms. anyway, you can find the link for proper axid dose and zantac dose from Groupie Intro and also from Prevacid 101. We can help you calculate the doses.

If you don’t want to medicate, by all means try adjusting your diet.
I do want to tell you that if it is MSPI then it is very RARE to stop the reflux by diet alone. I only know of one case (Erintx, she’s on this board) where the mama successfully addressed reflux/mspi by diet alone and, to be honest, she eventually had to medicate her baby at various times during his reflux journey/rollercoaster…

the things that usually point to protein intolerances in breastfed babies:
rash, foul-smelling gas, straining to poop and then when baby finally does poop it comes out soft.
also: mucousy poops. mucous can look like jelly, snot, curds like cottage cheese, stringy like the inside of a banana peel.
breastfed baby poops should be yellow/mustardy seedy. SOME green poops are perfectly normal, as are SOME mucousy poops. but, if poops are frequently green and/or frequently mucousy, then this might just point to MSPI…

there is also Over Active Letdown, also known as foremilk/hindmilk imbalance. this can lead to watery green poop, foamy green poop like shaving cream…you can research more at http://www.kellymom.com

[hellbennt]

*please forgive any wonky (hyper)links- they work, but I am having a hard time copying & pasting from MSWord into Mozilla firefox**

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hi
& welcome! you’ve found a great place!

the
key to all of this is RESEARCH and, of course, support!

http://www.marci-kids.com is at the FOREFRONT
of research of PPI use and dosing in infants/todders. You might want to
start there to see if PPI dose is ‘proper’ –

(it sounds as if it IS! congratulations!

now, are you giving it in two doses? please continue reading)

then,
hop back here to learn HOW to get that proper dose, if need be, and what FORM of PPI and HOW to administer…

Prevacid
101(last post on the page): https://www.infantreflux.org/forum/forum_posts.asp?TID=1936&PN=0&TPN=1

unfortunately
the majority of drs & pharmacists don’t know…babies metabolisms’ are much
faster than adults, so the drugs work differently with them…

after
medication, you might then want to look at diet…

I
have a LOT MORE TO SAY! and most of it is here: Groupie Intro: https://www.infantreflux.org/forum/forum_posts.asp?TID=853

it’s
looong, but PLEASE read/skim/scroll through it & refer back to it, as it
TRULY will help you!

so
glad you found us!

~laura

ps: when you
get a moment, please go to the upper right-hand corner of this screen and click
on ‘settings’ and from there you can edit your signature and let us know how
old baby is, what formula or breastfeeding, MSPI or not, what meds and
what doses and form of meds and how you’re administering-thanks!

hellbennt2009-10-11 10:51:11