Search Results for 'breast feeding'

[Anonymous]

I’m assuming your not breastfeeding since you said, “we are giving her feeds”. If you are breastfeeding the night feeding is very normal. I wish I knew about formula, but I have no advice on that one. I would think though if you were having weight gain issues that the night feeding could help with that. I’m not an expert though. Sorry, I may have been of no help at all.

[Anonymous]

Yes you have it right Johnny, Maggie and Liam. They are 99% sure with Maggie that she has it. The blood test was positive. She had a bad reaction to wheat in August. We controlled her vomiting with cereal. The zegerid helped a lot but she still would spit up every 5-10 minutes 24 hours a day. She had no quality of life. One day I gave her malt a meal and she had a bad reaction an hour or so later and it lasted 4-5 days. She vomited and had horrible diarrhea. She does not have a wheat allergy. Then they did the blood test and it came back positive. I understand with celiac disease that it usually is not caught until age 5. What I have not figured out is if it takes the drs that long to diagnose it or if it does not appear until that age. Anyway, since I have been gluten free she has done really good. She is still on zegerid but I am starting to wean her off. She is our gluten meter (not that I do intentionally). If I eat something with gluten in it she will start to spit up (she is breast fed). A month or so ago we went a few days with her spitting up all the time I could not figure it out we finally realized it was from the envelopes I had been licking. Who knew.

When I say Liam does not eat I mean he does not eat. He did not eat his Halloween candy, special treats etc (I bought two donuts for him and his brother today. Liam’s is sitting on the table with the a bite taken out of it that will probably be the only thing he eats today a bite). Right now he can have whatever he wants gf or non gf (yes we know we are poisoning our kid). He still is not eating very much not enough to sustain his 50 pounds. Like I said we are waiting for the GI clinic. Liam has always had eating problems since he started on solids. Now looking back on it I know he has celiac’s disease from a baby on. Liam has JA also so he does not know what it is like to feel good. We know now all of his problems are from celiac disease but he has texture issues and he also has super taste buds so a slight variation in food taste off for him. Anyway what we are thinking (pediatrician and us) is that he will go onto a feeding tube and we will go 100% gluten free. We can take the stress away of forcing him to eat. I cannot tell you how stressful it has become in our house convincing him to eat and its a loosing battle based on the amount of weight he has lost. It is insane trying to get any calorie in him. He loves water and life would be good if we would just allow him only to have water. We went to the movies for Thanksgiving and my husband tried to convince Liam to have juice or soda. Liam wanted water. I am sure the people around us thought we were crazy as Liam said I just want water and John was NO you need to have a sprite, Liam no just water will be fine and John was NO Liam mom says you have to have a sprite or juice.

I am not sure if I said or not but my husband started getting sick in September. All the classic symptoms of celiac’s disease of course he does not think its celiac’s. Finally convinced him to go to the dr. we got referred to a GI dr. and we say him last week. He wants to do a colonoscopy immediately. His next day for that is on Thursday. We actually like this GI dr. He was knowledgeable (shocking a dr. actually knowing what he practices ) and he had good people skills. I wish we could take Liam to him but he only sees adults.

I would love the recipe for the fruit and cheese danish. Liam will not eat it but I will. Funny thing is my son Levi who is 15 months older loves most of the gluten free food I have found.

[hellbennt]

what formula is he on or are you breastfeeding?

maybe the constipation is due to MSPI?

Mspi/allergy info(‘main page’): https://www.infantreflux.org/forum/forum_posts.asp?TID=2697&PN=1&TPN=1

[hellbennt]

sounds like allergy to me…

if you want to continue breastfeeding, which it sounds like you do, then I would eliminate all milk & soy from your diet.

you might just want to go all the way and cut everything out by doing the elimination diet and then slowly adding things back in, just not milk or soy…or, you could cut milk & soy out completely for 3 weeks and then think aobut what, if anything else, you might want to try eliminating- eliminations can be done by cutting out everything & slowly adding things back in or it can be done by eliminating one thing at a time- it’s up to you…either way it looks like you won’t be having any milk or soy proteins for a bit

here are some links to help you:

there’s a breast feeding support group at yahoo where they are really into discussing diet :http://health.groups.yahoo.com/group/breastfeedingreflux/ & one of the moms from that group has her own page: http://www.users.qwest.net/~fsdebra1/

great resources for moms breastfeeding allergy babies on the LLLI website:
http://forums.llli.org/forumdisplay.php?f=37

Mspi/allergy info(‘main page’): https://www.infantreflux.org/forum/forum_posts.asp?TID=2697&PN=1&TPN=1

Great anne post: https://www.infantreflux.org/forum/forum_posts.asp?TID=9242

hellbennt2007-11-16 22:08:11

[hellbennt]

there’s a breast feeding support group at yahoo where they are really into discussing diet :http://health.groups.yahoo.com/group/breastfeedingreflux/ & one of the moms from that group has her own page: http://www.users.qwest.net/~fsdebra1/

– she’s the moderator of the group, so you might want to start there…

it was definitely worth it for me to give it a try…i tried the dr. dears elimination diet (http://www.askdrsears.com/html/4/T041800.asp, but really only found that jonah reacted to citrus, tomato products, eggplant & tuna (this is an odd one i know, but he reacted 2 times after i ate tuna sushi & then after seared tuna – could’ve be a coincidence but i didn’t chance it!).

http://www.users.qwest.net/~fsdebra1/wweintro.html all about elimination diet-what to eat & more!

article to help figure out how to reintroduce food from elim diet? Tracy’s post:

(http://allergyadvisor.com/Educational/December_2.htm scroll down to ‘C’ orange/mustard box-it’s the SECOND orange/mustard box)

great resources for moms breastfeeding allergy babies on the LLLI website:
http://forums.llli.org/forumdisplay.php?f=37

Elimination diet: https://www.infantreflux.org/forum/forum_posts.asp?TID=2852&KW=elim

[Anonymous]

Just posting the above made me feel better and I wrote it all down in a notebook for the Dr.

I also took a look over at https://www.infantreflux.org/forum/forum_posts.asp?TID=853&PN=1&TPN=1 and made notes.

When breastfeeding I tried eliminating dairy & caffeine for 3 weeks and it didn’t help. I tried to prevent “overactive let-down” as well and it didn’t help. I switched him to formula at 4 months – we’d been sharing a yeast infection since he was 2 months old, he was nursing 20 minutes of every hour throughout the day, I had sores chewed all around both nipples, and I realized both of us were crying every hour with nursing – him to start, and me praying he wouldn’t want to “snack” every hour because it felt like he was chewing glass through me everytime he started nursing.

Thank you that give me some more notes to make for the GI specialist.

Right now it’s the solids that are really causing the most problems.

[Anonymous]

Hello and welcome,

My daughter was also a silent refluxer. She squirmed and fought during feedings and eventually quit nursing altogether. I thought it was a nursing issue so I went to pumping and bottle feeding, but soon she began to fight the bottle too. She was chronically irritable and slept poorly. I finally got the right diagnosis when she was about 3 months old but she was never properly medicated and she remained miserable until she outgrew her reflux at 9 months.

My son also had reflux, but his was not silent, he was a big spitter (so it can be reflux with or without spitting). He was also chronically miserable. I remember telling someone that if he was awake, he was crying. He id (fortunately) sleep fairly well, though. (Not all babies with reflux exhibit all of the symptoms). My son’s biggest problem was his chronic irritability and his feeding problems. He too would not nurse and soon he would not even take a bottle anymore. It got so bad I thought he’d end up on a feeding tube. Fortunately with some work and perserverance I got him on a good dose of Prevacid (solutabs) and finally things improved.

So, yes meds do work and fortunatelty for most babies the side effects are very minimal….maybe a little consitpation or diarrhea which passes with time for most of them. PPI’s are very safe meds and they are non toxic because they only work on the actual cells which produce acid. That’s why the side effects are so minimal. You can read about PPI meds for infant reflux at http://www.marci-kids.com

Also, check out the “finding a gi” forum. Maybe there’s someone in there for you. I vaguely remember someone posting a name in Chicago.

I agree with Lori….I would not wait two more weeks. Things can get really bad, really fast. My son ended up with a bottle/feeding aversion because he was not properly medicated until he was nearly five months old. I had to spoon feed him all of his breast milk and formula because even once he was pain free and comfortable he still associated the bottle with pain and misery. If only I had gotten it figured out sooner…

Anyway good luck and glad you found us. I hope we can help.

[Anonymous]

I agree with Lori that it does sound like reflux. Every baby is different. Cooper spit up all the time and still spits just not as much. We tried soy formula with improvement and then a decline after about 4 wks that is after breastfeeding without success (mainly lack of wt gain while I was bf). Then we tried Zantac and Nutramigen with some improvement and then had an upper GI which showed severe reflux (we were lucky most of the time this test isn’t a good indicator of reflux just structural problems) and so we started on Prevacid and Nutramigen. Turns out Cooper has MSPI (milk/soy protein intolerance) which many reflux babies have. After a few dose increases of the prevacid I had a happy baby, he was about 4months old when that happened. We still fight the spitting up and the poor sleep but things are so much better than they used to be. I would look into a med preferably a PPI like prevacid and possibly even a formula change to a hypoformula like nutramigen or alimentum to see if there is improvement. Glad you found us, this site saved me.

[hellbennt]

I can’t remember if you’re breastfeeding or if your baby is on formula & if so which one?

if you get a moment could you put some info in your signature- like ‘single mom, baby’s name & age, formula/breastfeeding, meds (form of med) & doses? I have a hard time keeping track

anyway if baby is choking when eating you might want to ask for a swallow study to ease your mind- this will help you know how baby is sucking and if baby is aspirating liquid into the lungs

choking when sleeping sounds like reflux to me- it’s coming up…

whining when breathing- well, I’d read up on the ‘malacias’ – there’s some posts in I think the ‘respiration’ forum, here: https://www.infantreflux.org/forum/forum_topics.asp?FID=7&PN=2

[Anonymous]

Hello,

My son had silent reflux as a newborn. It’s hard to know if he still has it (he’s 6 months, almost 7), though I’m still giving him his medication until we see the pediatrician next week. I’m thinking about trying to wean him off of it…

BUT, the last 3 weeks he’s been very stuffy at night, and at night only. A few times I’ve heard some congestion from him during the day, but not much and it doesn’t really seem to bother him. But these last few weeks, he’s woke up earlier than he would for his first feeding (still is up 2-3 times/night to breastfeed) VERY unhappy with a nose that is completely stopped up. At first I thought it was a cold – and I do think he even had one, but it went away. Then it became clear that this was either an allergy or the reflux, but I don’t know which one! It’s driving me CRAZY. I’m on a very restricted diet because of his food intolerances, so I don’t think it’s something I’ve eaten. Though I’ve started supplementing his daycare bottles with 1/2 breastmilk and 1/2 Alimentum formula. His food intolerances have always been reflected by excess gas, not usually congestion.

Has anyone else’s baby started getting stuffy all of the sudden? I don’t know whether to ask his Ped. to increase the dose or ask if I can wean. I really want him off the meds., but if this stuffiness is due to the reflux, obviously that’s not a wise choice. I don’t remember him being stuffy early on, when we realized he had silent reflux.

I broke down and made an appointment with a gastroenterologist (sp?) in a week and a half, followed by an appointment with an allergist the beginning of December (the soonest we could get in). I’m ready to get to the bottom of this! It’s sooooooo exhausting. Anyway, any advice on dealing the stuffy nose?

Thanks!

[hellbennt]

Hi & welcome!

I have some ideas, too:

1) until you get the meds ‘figured out’ I would give the zantac also- make sure to give it 4hrs seperate from the prilsosec & figure out 10mgs per kilo for the dose (discussed here: Zantac dosing- my/other’s question: https://www.infantreflux.org/forum/forum_posts.asp?TID=9539&PID=82914#82914)

he weighs 4.9 kilos

4.9 x 10 = 49mgs total of zantac for the day

divided by 15 to get mls (your bottle should read 15mgs/ml) =

3.3mls total, for the day, of zantac, divided up into 2 or 3 doses however you see fit (ex: 1.1mls 3x a day or, 1.65 2x a day or, 2.3mls at night and 1ml in the morning, etc)

2) read through this:

Groupie Intro: my intro: https://www.infantreflux.org/forum/forum_posts.asp?TID=853&PN=1&TPN=1

& look for:

a) ‘Prevacid 101’ (even though your dealing with Prilosec, this will help)

i) how to get PPIs compounded

b) breastfeeding a reflux baby

so glad you found us!

~laura

[Anonymous]

missdixie10 wrote: Are you bf or ff? if formula…what kind? have you started solids yet?

Hope your pedi has some more suggestions. If he does not refer you to gastro then you might consider calling yourself. Ours has helped us so much.

I’m exclusively breastfeeding. We started rice cereal about a week and a half ago.

[Anonymous]

Hello! Glad to have found you! My 5 week old son, Riley, was diagnosed with acid reflux last week. He only had a little spitting up, but he was “arching”, fussy/crying while eating, difficult to burp and had “wet burps” when he did burp, hiccups frequently and lasting 30 minutes or more. I was breast feeding but due to a nasty case of post patum deprression I had to switch to bottle feeding cause the meds I was put on weren’t compatible with breast feeding. Riley started out on Enfamil with lipil but we changed to Enfamil Gentle Ease with Lipil when he started having these problems. His doc put him on Axid last week and we saw some improvement for a few days and thought we were on the road to recovery but now he’s seemed to relapse. Feeding him is awful—-he tries to drink from his bottle but he seems have difficulty swallowing or something, and he gags and chokes and starts to cry–it takes an hour for him to drink 4 oz and he takes 3 sips of his formula, and then his eyes get wide and he swallows really hard and then bursts into tears….over and over this happens. He currently uses Dr. Browns bottles, we’ve tried different nipple sizes–that didn’t work. Switched to Playtex Ventair for a few feedings–that didn’t help. Tried feeding formula at a variety of temps–no difference. Friends of ours who had a baby with reflux used Mylanta with their presciption meds(don’t know what kind) and said it was a life saver, but their baby was a few months old when they were going through this. I asked my doc about Mylanta and he said it wouldn’t help. We’re so frustrated we’re ready to try it on our own but we don’t know what dosage to use for a 5 week old, and if it’s safe to take with axid, or even safe for a baby his age. I’m bringing him back to his doc tomorrow, cause as I said, all weekend he could barely eat. He sleeps in his car seat to help with the reflux. OH! and the other symptom he has that’s really annoying is chronic nasal congestion, yet I don’t think it’s a cold cause his nose is never “running” it’s like this deep congestion thats hard to even suction out with the bulb syringe/nasal drops. And sometimes I wonder if that’s interfering with his eating. I’ve heard reflux can cause congestion, but this is crazy! Does anyone have any ideas? Does this sound like acid reflux or something else? What about the mylanta? Thanks in advance for help!

[hellbennt]

CONGRATULATIONS!!!!

It can take 2 (plus) weeks to get milk & soy proteins out of your system, so it’s worth a shot to clear these out of your diet now, so that when your milk comes in, it comes in w/o milk and soy proteins…

I would also keep some cherry mylanta supreme on hand (even helped my non refluxer with gas!), just in case…and heck, if you have any zantac…

as far as breastfeeding help: I’d find both an Int’l Board Certified Lactation Consultant http://www.iblce.org/contact.htm

and I’d locate my local La Leche League

The La Leche League Breastfeeding Helpline – US began on June 1, 2007. Everyone in the U.S.A. will have access to toll free breastfeeding help 24 hours a day. Just call 1-877-4-LALECHE (1-877-452-5324).

Breastfeeding: http://www.wiessinger.baka.com/bfing/index.html

http://www.kellymom.com

check here for videos to help you if you need help…I actually checked them out this time around, w/ Ari, just to make sure…

http://www.drjacknewman.com/index.php?option=com_content&task=view&id=18&Itemid=42

just found this- online chat w/ an IBCLC: http://www.medela.com/NewFiles/bfdgchats.html

[Anonymous]

I had my DD on Soy Isomil without the DHA ARA…and her reflux was very little and she didn’t spit up hardly. She wasn’t upset from it at all. She had HORRIFIC gas and pain from that though but no bloody stools like on my breastmilk.

We were told by the doc to switch to Nutramagin LIPIL and her reflux became worse…as did her sleeping, etc. But without all this she was a happy baby for a while. Now she is progressivly getting worse with the moodiness and everything.

I’m wondering if the DHA crap could be affecting her reflux. We switched her bottles to Dr Brown which has totally relieved her throwing up at night (weird), but her reflux is worse to me. She spits up or projectile spits it all the time between feedings and it seems to be bothering her worse. She’s keeping more of the stuff on her tummy.

I bought some Neocate because her stools are still stringy and has a little spots of mucas in it…maybe blood not sure. I haven’t tried it yet…but it does not have the DHA stuff…which I’m wondering now could be causing her problems…