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Topic: Update on Kendra
Hi all,
i’ts been quiet a while since i visited the site. I bet i missed a lot!We have had quite a week. We went to see the Ped GI last wesnesday and we left dissapointed. I really had high expectations; It might sounds unrialistic i know, but i was really hoping Dr. A will be solving all Kendra’s feeding problems. He took a look at Kendra and told us the same thing our ped has told us: “she has a severe oral aversion”. He wrote us a prescription for OT/SP and I left defeated and descorouaged. i had pesimistic thoughts for while “My baby is just going to have this feeding problems for ever”.
We came home and the next day (thursday March 15th) took our older dd to Disney for her 5th birthday as we have promised her before Kendra was born. It was a VERY stressful trip b/c of kendra’s feeding issues, but we manage to make it fun for Melanie. We came home early monday morning and kendra was sick with a cold and was drinking less and less. took her to the ped and found out she has lost 7 OUNCES in 4 days! i broke down in tears at the ped office. I just felt so upset. It takes us about a month to get her to gain that much, and she lost it in 4 days!
I think it wa good i cried (even though it was not intentionally) b/c the ped really paid attention to Kendra feeding problems at that point. She ordered all kind of test including allergy test (celiac, and other wird ones) and refered us to an allergist (we go to see him April the 11th). Some of the test came back negative and some she said the allergist will be discussing with us in our apppointment.
Since kendra has lost so much weight and there was no WAY of making it up, she admitted her to the hospital and placed a NG tube in. They told to stop the Breast milk and started her on pregestimil ( iam still pumping until i know for sure there is a severe allergy problems). While in the hospital they fed her every three hours around the clock. The poor thing was exhausted from no sleep and terrified of the nurses and doctors who came in to see her. She looked a t me every time , like “mommy who are these people and what are they doing? so sad.
We were in the hospital for two days and while there i was taught how to feed my baby through a NG tube. Never in my wildest dreams, i thought i would be doing something like that with my child.
I know is not the end of the world and i am thankful that she can get some nurishment some how, but i was really hoping she would get better. We are meeting with a Pediatric Surgeon next wesneday to discuss a G-Button, since her feeding aversion would take time to overcome. So there is where we stand now. We have a NG tube and we start OT hopefully Tuesday, just to work with her sensory problems, but not food until they place the button.i guess i have lost of questions for all those brave moms who children get their main nurishment thorugh tube feeding.
1.What’s the best button to get placed (Bard, Mickey)?
2.i am sure the Ped sergeon will give me some info about that, but what does this work? they get the surgery first to place the tube, then a few weeks later she get the button? what are the discomfort of this surgery? complications? ( i am researching like crazy now, but your experinces its very important to me)
what else should i be asking?
iam sorry for all the questions and thanks ahead for any advice and for the support.__________________Topic: Fish Oil Anyone?
Maybe I’m the only one that didn’t know about this, but our pediatrician suggested that I take fish oil capsules (omega 3) as I am breastfeeding Ben. He said that the omega 3 (DHA and EPA?) are really vital for a baby and that most of the formulas now add them. I told him that I thought breastmilk had this naturally anyway, so why do I need to add to it? He said (and I’m probably butchering this explanation) that the amount of the omega 3’s in your body build up over time, so that when you breastfeed your baby, she gets all that you have built up until then, but when you have another child that you are nursing, that child will only get the benefit of the omega 3’s you have build up since the first child stopped nursing. Anyway, he suggests starting children on them at 9 months and really believes that they can help with eczema, hay fever, etc.
Anyway, I started taking them today. Just thought I would pass on the info.

!
. I said “oh, well, she’ll have to live with what I give her” (I’m not a monster, of course I’ll feed my child!!).
But try to remember that you did everything you could and your baby did get six months of mother’s milk, and she will get a lifetime of motherly love. 
. Things usually hurt us when they touch a nerve in us and breastfeeding is one of those nerves for all new mums. I know I would have loved to feed and even now sometimes what people say “touches a nerve” even though intellectually I know I did my best. 