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when you say your child is still having epidodes of reflux, what do you mean? is he getting any medication at all?
what are you eating? rice? it might be the rice. corn/corn products?
there still might be something to tweak in your diet, let’s discuss
even mamas on the strictest TED have babies that still need medication.
has the TED helped? what happens when you introduce new foods into your diet?
have you read all of Erin’s links, etc?
there is no guarantee that switching to neocate will mean not having to medicate
Rachel from neocate is on this board and while she’s very neutral (thank you Rachel!), she also works for them so I’m sure she will reply kindly and offer you some samples if you should ever want them…
maybe this link I’m putting here for you will help? please read this link, as it’s about ‘how’ the elemental formulas ‘work’:
https://www.infantreflux.org/forum/forum_posts.asp?TID=6013/* Style Definitions */
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mso-bidi-language:#0400;}Erin’s sticky: https://www.infantreflux.org/forum/forum_posts.asp?TID=12948&PID=105126#105126
More
erin; https://www.infantreflux.org/forum/forum_posts.asp?TID=13175&PID=106395#106395Erin post: https://www.infantreflux.org/forum/forum_posts.asp?TID=13576
Great anne post: https://www.infantreflux.org/forum/forum_posts.asp?TID=9242
Exposure
to foods & blood testing: https://www.infantreflux.org/forum/forum_posts.asp?TID=12993Sheri’s
allergy/intolerance explanation: https://www.infantreflux.org/forum/forum_posts.asp?TID=10223&PID=87638#87638Another
Sheri explanation- intolerance/allergy post:https://www.infantreflux.org/forum/forum_posts.asp?TID=11579&PID=97442#97442
Accuracy of
allergy testing & great post
by sherri explaining IgE and IgG (intolerance/allergies) https://www.infantreflux.org/forum/forum_posts.asp?TID=10815(sue again, replying to gina- breastfeeding info to (TED)https://www.infantreflux.org/forum/forum_posts.asp?TID=11324&PN=1
hellbennt2010-07-22 07:55:35
I am really confused about Neocate and reflux.I am aware that reflux can be caused by MSPI / multiple food protein intollerance. Therefore a hypoallergenic amino acid based formula SHOULD ‘cure’ the reflux, as there will be no allergens to cause a reacion.From reading these forums, it seems that lots of your LOs are on Neocate BUT are also still being medicated for reflux.Does this mean that the Neocate doesn’t work completly?The reason I am asking is that I am breastfeeding my 7.5 month old baby on a strict elimination diet, but he is still having episodes of reflux. I have a choice of using reflux meds, and continuing to breastfeed, or to switch to Neocate and hope that it cures all. I am concerned that I switch to Neocate, still have to medicate (as I may as well have just stayed with the breastfeeding and medicate anyway IYSWIM).I would be so grateful if you could share your experiences, if you are / have used Neocate. Thank you, thank you, thank you in advance!!!I am really confused about Neocate and reflux.I am aware that reflux can be caused by MSPI / multiple food protein intollerance. Therefore a hypoallergenic amino acid based formula SHOULD ‘cure’ the reflux, as there will be no allergens to cause a reacion.From reading these forums, it seems that lots of your LOs are on Neocate BUT are also still being medicated for reflux.Does this mean that the Neocate doesn’t work completly?The reason I am asking is that I am breastfeeding my 7.5 month old baby on a strict elimination diet, but he is still having episodes of reflux. I have a choice of using reflux meds, and continuing to breastfeed, or to switch to Neocate and hope that it cures all. I am concerned that I switch to Neocate, still have to medicate (as I may as well have just stayed with the breastfeeding and medicate anyway IYSWIM).I would be so grateful if you could share your experiences, if you are / have used Neocate. Thank you, thank you, thank you in advance!!!I SHOULD be a reflux expert by now, but I am stumped this time.
My first three children (now ages 4, 3, and 1) all suffered from reflux and dairy/soy intolerance. I breastfed all of them on a dairy/soy-free diet and they all were successfully treated with prevacid.Their symptoms included:green poopsconstant cryingcouldn’t sleeppulling off the breast and cryinga moderate amount of spit up.We just had baby #4. I avoided all antibiotics while pregnant, during delivery, and baby didn’t receive antibiotics in any form, thinking that poor flora in the belly had contributed to my other children’s reflux.I started Baby4 on probiotics at day #3, determined to beat reflux this time around.Baby4 at 4 weeks old:has browninsh/yellow poops (no mucus, no green)is completely contentdoesn’t pull off the breast or cry during or after feedingshas no spit updoesn’t have hiccups all the timeBUTshe absolutely can not be put down. I wear her during the day in carriers, but at night I would like to put her down. As soon as I put her down (on her back or on her belly) she starts grunting and swallowing, eventually this degrades into crying.She sleeps contently if held on me in a recliner, but if I attempt to recline in anyway, here comes the grunting and squirming.Is this reflux again??? Do I need to get her on meds? I really really really didn’t want to go down this road a fourth time. Is it possible she is just a poor sleeper and likes to be held?Thank you in advance for your opinions!while you’re ‘waiting’ tell me how much silas weighs and we can figure out the highest dose of zantac for him for his weight
also for probiotics:
https://www.infantreflux.org/forum/forum_posts.asp?TID=8970&PN=1and here’s a lot of info, lol – please excuse any underlined words that are not hyperlinks- my computer doesn’t like me copying from microsftword into mozilla fire fox
:
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mso-bidi-language:#0400;}Erin’s sticky: https://www.infantreflux.org/forum/forum_posts.asp?TID=12948&PID=105126#105126
More
erin; https://www.infantreflux.org/forum/forum_posts.asp?TID=13175&PID=106395#106395Erin post: https://www.infantreflux.org/forum/forum_posts.asp?TID=13576
Great anne post: https://www.infantreflux.org/forum/forum_posts.asp?TID=9242
Exposure
to foods & blood testing: https://www.infantreflux.org/forum/forum_posts.asp?TID=12993Sheri’s
allergy/intolerance explanation: https://www.infantreflux.org/forum/forum_posts.asp?TID=10223&PID=87638#87638Another
Sheri explanation- intolerance/allergy post:https://www.infantreflux.org/forum/forum_posts.asp?TID=11579&PID=97442#97442
Accuracy of
allergy testing & great post
by sherri explaining IgE and IgG (intolerance/allergies) https://www.infantreflux.org/forum/forum_posts.asp?TID=10815(sue again, replying to gina- breastfeeding info to (TED)https://www.infantreflux.org/forum/forum_posts.asp?TID=11324&PN=1
hellbennt2010-07-15 07:36:54
ok I want to tell you that you DO NOT HAVE to try elemental formula in order to clear out the proteins from your baby. it can take two weeks. that is ALL. it’s a short time on the planet, you can do it
seriously. you are NOT harming your baby. keep breastfeeding and keep trying to figure this out.
you say you’re confused. it IS confusing! I want to let you know that it CAN be reflux AND mspi – the mspi can exacerbate or even CAUSE the reflux. So, you address the reflux (thus the medicine) as you work on finding out if the cause of the reflux is diet related and/or if diet (proteins in your diet) is affecting the reflux.first of all the amount of prevacid and the FORM of prevacid most likely isn’t doing ANYTHING so it really is like you’re not giving any medicine at the moment (if it’s what you posted, ‘only’ 5mgs a day and in a compound made by the pharmacy)
I would work on MEDS and diet and then you can back off the meds if you want/need.
I would start w/ PROBIOTICS. even if it is ‘colic’ (which I don’t like the word at all!) even doctors say to use probiotics for colic! read here, it’s a great article and page 2 tells you what probiotics to use
“Colic Solved” article: http://wondertime.go.com/learning/article/interview-colic-expert.htmlthere is SO MUCH information I have to help you, i don’t want to overwhelm you! but in case you’re wondering how I know that your prevacid most likely isn’t doing jack (excuse me, I’m mad at your situation and your doctors!) is because of here:
http://www.marci-kids.com/dosing.html
this link is from the U of Missouri where they are at the FOREFRONT of research in this area…hang in there!
you can do this!hi & welcome!
personally I would NOT start supplementing w/ formula, but I understand why it’s suggested.
anyway, what stands out to me is this:
4 weeks is time enough for proteins from breastmilk or formula to build up in baby’s system and then to effect him. this is called MSPI milk/soy protein intolerance (can be allergy or intolerance) and sometimes it’s MFPI multiple food protein intolerance (can be intolerance or allergy). if it IS this, then poop description would help
if poops are ‘regular’ breastfed baby poops, ie yellow mustardy and ‘seedy’ then we have more to discuss, LOL…please excuse any underlined blue or purple lines that are not hyperlinks (my computer does not like me copying from Microsoft word into Mozilla firefox
):
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signs of mspi are, but are not limited to:gas: foul-smelling, painful gas
another thing that stands out to me from your post is baby wanting to eat a lot. this COULD be comfort-feeding. some babies w/ reflux comfort feed to soothe the pain of the burn. my son did this. other babies associate eating w/ pain and it’s harder to get them to eat…
I have a LOT more to say and most of it’s here, in a post called
Groupie Intro-
https://www.infantreflux.org/forum/forum_posts.asp?TID=853it’s looong, but truly will help you! please read/skim/scroll through it and refer back to it
so glad you found us!hellbennt2010-07-14 20:42:22
well I have been coming to this forum for weeks now to find support. Now I am really going crazy.
At her 2 week checkup the ped said she had silent reflux. I told the ped i was having a really hard time feeding her-she was doing great before that- She is breastfed-won´t take more than 2 oz in a bottle.So we started the useless zantac, then after 10 days, she was covered in a rash(head, back and chest) and was having FOUL smelling gas, I mean foull like a 40 year old truck driver! And a lot of it.Today she has been on prevacid compounded by a pharmacy for a week at the chime of 5MG day I have since gone off dairy as we think it may be MPI . She feeds every two hours (which leads me to think that a possible foremilk/hindmilk imbalance may be contributing to her pain). She had a great day of no pain, feed every 4 and feeding well. Then it all went down hill. The last two days she has been crying in`pain passing tons of gas, pooped twice in 2 days(before she was going every other day). She cries and all she wants os the breast for comfort so consequently she is feeding very poorly and will not sleep during the day. She falls asleep and gets woken up by pain.My dilemmas:1)i am not sure she has reflux now! she is not better or different since the dietary changes and meds. Now i read that for MPI improvement can take weeks<…………..I want to keep breastfeeding but am thinking of forcing her to formula feed to eliminate leftover protein quicker2) her feeding aversion is the same, she passes gas when she feeds so its a tug of war.3)I dont want to keep pumping her full of p`revacid if reflux is not the culprit but rather colic or food sensitivity.I am so lost, desperate, my husband has been on deployment for 7 months and is coming home soon, i have a demanding two year old boy and on top of that 4 weeks after i delivered, i had tobe rushed to the er because my stupid OB left a huge piece of placenta in me AFTER having a d/cGOING NUTS!!! HEEEEEEEEEEEEEEEEEEELPTopic: still no improvement
I just read pirate.wife’s post, and our stories are somewhat similar. Elie has now been on zegerid for 8 days and she doesn’t seem to be improving, if nothing else, it seems to be getting worse. The problem is we cannot seem to pinpoint a difference b/c sometimes she does ok at feedings and other times she goes rigid and will not let the nipple even touch her tongue. She gets 2 bottles a day of formula and the rest of the time is breastmilk. It is absolutely heartbreaking to watch her. Sometimes I can hear her swallow and it rumbles in her tummy and she screams, other times it is a “hard swallow” and her eyes get really wide, but she’ll keep eating. Lately, she has been not wanting anything to do with any kind of feeding–breast or bottle. She gets hiccups frequently, has trouble staying asleep, can’t stand the car seat (which i don’t know if it’s reflux related). I think we’re going to try to take her back to the pediatrician tomrorow, but I don’t know what he can do for us. I am feeling so sad and frustrated right now.
hi & welcome!
first of all w/the zantac, you can give up to 10mgs per kilo by weight- don’t just take my word on this! read here:https://www.infantreflux.org/forum/forum_posts.asp?TID=8288&PN=1
so, by checking this conversion chart:
http://www.sfca.co.uk/match/kilolbs.htm
I see that 13lbs 12 oz = 6.2 kilos
max dose of zantac is 10mgs per kilo, so
10 x 6.2 = 62mgs total for the day of zantac
you bottle says 15mgs/ml
this means that for every 1ml of liquid, your baby is getting 15mgs of zantac
so then you divide the 62mgs a day that he CAN be taking by 15 to get the mls, which is = 4.1mls total for the day of zantac
your current dose is 2mls, so there is room to increase!
try two doses a day or even three to see if it helps- you can dvide up the 4.1 ‘unevenly’ and give a higher portion/dose in the evening…/* Style Definitions */
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of research of PPI use and dosing in infants/todders. You might want to
start there to learn what PPI dose is ‘proper’after
medication, you might then want to look at diet…what formula or is baby breastfed? how are poops? gas?I
have a LOT MORE TO SAY! and most of it is here:Groupie Intro:
https://www.infantreflux.org/forum/forum_posts.asp?TID=853
it’s
looong, but PLEASE read/skim/scroll through it & refer back to it, as it
TRULY will help you!so
glad you found us!~laura
ps: when you
get a moment, please go to the upper right-hand corner of this screen and click
on ‘settings’ and from there you can edit your signature and let us know how
old baby is, what formula or breastfeeding, MSPI or not, what meds and
what doses and form of meds and how you’re administering-thanks!hellbennt2010-06-29 14:16:38
Topic: Need Help Please :-)
Hello all, I have an almost 3 week old baby girl that I believe has acid reflux. My four year old daughter had acid reflux terribly and was diagnosed at about 3 weeks of age. She did very well on compounded Prevacid from 3 weeks of age until she was approximately 8 months old, when we were finally able to permanently get her off of the Prevacid. I don’t know how much has changed in the treatment of reflux in infants in three years.
My new little munchkin is showing all of the signs of reflux and I would like to get her some medicinal relief sooner than later. I have already taken steps to keep her head elevated when sleeping and hold her upright after feedings (she is breastfed, as was my first daughter). Just as with my first daughter, these things are not doing the trick and I believe she is going to need reflux meds to manage this and make her comfortable.It’s been so long, I’ve forgotten what dosage, etc. my first daughter started at. I have a new doctor, so want to be able to express to him what I’d like for her to take. Can anyone share with me what would be the best med, dosage, form for my new baby?First daughter was on compounded Prevacid (3 to 4 years ago) which we filled every two weeks. I think it was 7.5 mg that she started at, but she went up. She ended up on the strawberry packages of Prevacid as she got older.Any help would be greatly appreciated. I just feel for my little girl who has all the symptoms of my first daughter with this terribly “wheezing” sound to go along with the other symptoms. 🙁
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