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Topic: Not sure what to do!
Hi!
My 6 week old son, Ryan, has had feeding issues from the beginning. In the hospital he had to be syringe fed pumped breastmilk. Once he came home we saw a lactation consultant. He was able to nurse but had some trouble sucking well so I had to supplement with pumped breastmilk. Feedings were taking over an hour (40 min nursing, 20 min pumping, then the bottle). He also seemed uncomfortable after feedings (crying, pulling off the breast, arching, pulling up his legs) and would often spit up. My older son, Shaun, had reflux and MSPI so I recognized the symptoms. I followed the MSPI diet and pumped/bottlefed Shaun until he was a year.Ryan was prescribed zantac by our pediatrician and his stool was checked for blood. No blood. Symptoms kept getting worse. I cut out dairy/soy to be safe with no change. At 4 weeks his doctor found a hernia that required surgery. The pediatrician said that the nursing/bottlefeeding was too much for the baby (not to mention me!) and that I should just pump and bottle feed. The surgeon felt that the surgery may help to decrease his discomfort and reflux symptoms. I added in dairy/soy to my diet since it seemed that Ryan did not have MSPI. The surgery was last week and things have not gotten better.On Monday we saw a gastroenterologist. They found blood in Ryan’s stool and prescribed Alimentum RTF. I made the decision to switch to formula because I did not feel that I could handle the MSPI diet/pumping/bottlefeeding for another 10 months. I have another child this time (21 months old) and my husband just had major surgery. I felt a lot of guilt but it seemed the best thing to do for the whole family.Today is day 2 on the Alimentum. Things have gotten so much worse. Instead of crying after feedings, Ryan is crying all the time. He is arching his little body and screaming. He was up all night when normally he sleeps 2-3 hours at a time. His stools look mucousy now and he is straining to poop. He has more gas. I called the gastroenterologist to say that I believe he is allergic to the formula but have not gotten a call back. I gave him breastmilk at the last feeding because he seems to tolerate it better.I don’t know what my options are at this point. I guess I can go back on MSPI diet and hope that I can keep up with the volume that he wants (I was barely able to keep up and had no extra) or try another formula. Any suggestions are welcome!hi & welcome!
I have a LOT to say& most of it’s here, Groupie Intro:
it’s looong, but HELPFUL so please read/skim/scroll though it & refer back to it often!I would get your dr to rx prevacid (read further to learn how to know what the PROPER dosing is), all the while keeping w/ the highest zantac dose for weight.You must keep baby on BOTH meds while you ‘wait’ for the prevacid to ‘kick in.’ This can take up to TWO WEEKS.What I would do is to figure out the maximum dose for the zantac for your baby’s weight- this is 10mgs per kilo. I can help w/ the calculations.Please do not simply take my word on this, please read here:Then, I would research prevacid dosing at http://www.marci-kids.com ;they are from the University of Missouri- they are at the FOREFRONT of the research being done w/ PPIs and infants/toddlers.Also, please read Prevacid 101, last post on the page, to learn more about PPIs https://www.infantreflux.org/forum/forum_posts.asp?TID=1936&PN=0&TPN=1so glad you found us!~lauraps: when you get a moment, please go to the upper right-hand corner of this screen and click on ‘settings’ and from there you can edit your signature and let us know how old baby is, what formula or breastfeeding, MSPI or not, what meds and what doses and form of meds and how you’re administering-thanks!
Topic: Should I go on?
Hi all,
I’m writing to you a bit discouraged. I’ve been on the TED for almost five months now, with no new food being tolerated by my son. My oldest daughter has MFPI, so thankfully I knew a bit what to do this time around to be able to continue breastfeeding. Thankfully, Jonah is a healthy and happy baby boy as long as I stick strictly to the TED (without any kind of potato, as he has reacted to them multiple times). My discouragement comes because I am so thin. I try to eat constantly and have even come up with fun new TED recipes like lamb meatballs with brown gravy! But I am so tired of the comments and the lack of support. Has anyone breastfed for a year on the TED? If I even have a tablespoon of “low allergenic” foods like carrots or apples, my son is miserable for days. I feel like I’m doing what’s best for him, even though it may not be best for me right now. I just don’t know what to do. I finally found a hypoallergenic vitamin that doesn’t bother him too terribly. I would just love to hear from someone, anyone who has been in my place. Do the benefits of breastfeeding outweigh the loss of nutrition? Sure am thankful for you all!
hellbennt wrote: whoever is telling you to thicken breastmilk doesn’t know what s/he is talking about.
if it’s your ped, get another one!!!! ok I sound harsh, but seriously this was bad/outdated advice 7 years ago when I first started here (and was probably outdated even before then!!)…what I would do: (this is just ME and I’m not a medical professional)- actually what I did do
:
get bufferbabies
while you wait to get that, add in the zantac/mylanta at fussy times, making sure it’s about 4hrs from last prevacid dose (sounds like it is, if you give at fussy wee/hrs of the morning fussy time)since you’re breastfeeding, yes look at diet. why not? I did this. I was desperate.
before you do this:
how are poops? ‘normal’ breastfedbaby yellow/seedy?
is there mucous (SOME is normal, not in every.diaper., though)- mucous looks like: snot, jelly, cottage cheese, it can be stringy like the inside of a banana)?
are poops green? water? foamy like shaving cream?gas? painful gas? foul-smelling gas? when baby goes to poop does s/he strain/grunt and seem to have diffculties, yet when the poop comes out it’s soft?
if there are no poop or gas issues, chances are it is NOT something in your diet.
rashes? excema? again, this may or not be indicative of something more…
It is our ped GI recommending adding rice. Ugh. Our family doc who has been very understanding and willing to look at new research (even dose according to MARCI-kids) is starting to feel like we need to try the ped gi’s recommendation of rice.
How much Zantac / Mylanta would you add at the fussy times? We usually have a fussy time in the evening and sometimes a choking, gagging type fussy time in the early morning hours. The early morning hours have improved greatly the last two nights with the third dose of prevacid.
Poops are typically yellow and seedy with an occasional greenish one thrown in. I haven’t seen anything mucousy. She does have smelly gas at times and sometimes her gas seems painful.
She does not have any rashes or excema except a very slight case of cradle cap.
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