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March 21, 2011 at 6:28 pm #68036
In reply to: thickener ?
hellbennt
Keymasterhi & welcome!
I have a LOT to say and most of it’s here, in a link called ‘groupie intro.’
it’s looong but TRULY will help you- read through it, refer back to it, scroll through it/skim through it. You’ll find yourself coming back to it!
https://www.infantreflux.org/forum/forum_posts.asp?TID=853
Why are you asking about a thickener? Usually a baby is rx’d one after a Swallow Study, which looks at the mechanics of HOW baby is swallowing/sucking and also it will see if there is any aspiration. After this test, then the SLP will tell you the exact consistency of thickener to use and at this time the different brand names of thickeners will come up. Otherwise, thickening might not be what’s needed? Is baby in pain? Medicated? which ones? what dose & form?Is baby breastfeeding? Formula? which one?how about poop? normal? mucousy?painful gas?rashes? excema?Please tell more so that we can help you more
so glad you found us!
lauraFebruary 26, 2011 at 12:15 pm #67942In reply to: Formula feeding with reflux- help!
hellbennt
Keymasterhi & welcome!
have you limited your diet? or is baby fine w/ you drinking milk & eating milk products?if baby is fine w/ whatever you eat, then I would say to get whatever formula you think is best. ME, I most likely would go for organic, but that’s ME
I don’t think there’s any formula that’s good for silent reflux per se. Most of the ‘need’ for certain formula has to do w/ proteins- that’s why I ask about your diet.I would look at http://www.kellymom.com
I would look around this board- the breastfeeding forum
and also call la leche league <!–
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–>to find a local internationally board certified lactation consultant (IBCLC) click here:
I would find a lactation consultandFebruary 26, 2011 at 11:52 am #67940In reply to: Reflux again…
hellbennt
Keymastereverything needs a good two weeks, so give the solutabs two weeks and the formula, too. the solutabs should be given 2 or even three times a day- give on an empty stomach followed by a ‘meal’ 30 minutes later.
you can give the zantac, too, just make sure to give it spaced 4hrs from the prevacid.how much does she weigh? we can check zantac & prevacid doses…also:read post two of here for more about the relationship b/t reflux and food intolerances/allergies:
https://www.infantreflux.org/forum/forum_posts.asp?TID=2697&PN=2if you’re formula-feeding:here’s about the elemental formulas-
https://www.infantreflux.org/forum/forum_posts.asp?TID=6013
everything takes two weeks so if you were to switch you’d have to give it two weeks and then there are no guarantees- if you’re breastfeeding, you can also modify/alter your diet to make your own milk into an elemental formula of sorts- this is called the TED- total elimination diet-this also takes two weeks and then you start adding foods in to see what you CAN eat.
scroll to the last page of this post, called Prevacid 101 (it’s actually also about other PPIs like prevacid, too) you’ll learn why.
https://www.infantreflux.org/forum/forum_posts.asp?TID=1936&PN=0&TPN=1
I would inquire about Zegerid or Bufferbabies- this is all explained from the link- PPIs can take up to 14 days for you to see it’s full effects…so that’s another reason to stay w/ the zantac.
I have a LOT MORE to say, it’s Looong, but full of very helpful info, so refer back to it often!
Groupie Intro:
https://www.infantreflux.org/forum/forum_posts.asp?TID=853you can do this!
thanks for making a signature! could you please add:baby’s age (can put month & yr of birth), meds, doses & forms of meds, type of formulathanks!February 25, 2011 at 5:07 pm #67938Topic: Formula feeding with reflux- help!
in forum General Feeding IssuesAnonymous
InactiveI have a 3.5 months old diagnosed 2 months ago and taking Prevacid for his Silent reflux. He has been breast fed 100% til now but Im pumping at work and cant keep up with the appetite… we will have to give him some formula to supplement and my question is- is there a recommended formula/brand for Acid reflux babies, should we feed him smaller amounts since its heavier than breast milk- what should be the amount?
In addition he wakes up every 2 hours to feed at night- should we try to give him formula before bed time?February 21, 2011 at 12:46 pm #67879In reply to: Somebody help! Endoscopy results.
Anonymous
InactiveThe dr. Did stool testing and scope allergy testing and he is clear for mspi allergies. I have had him on a probiotic since birth. I also eliminated all soy and milk proteins when I was breast feeding for four months with no improvement. I was eating basically turkey, squash, and rice. Is there hope that he will outgrow this by a year? Was your LO suffering up until he outgrew it? If he does outrow kit will it be a sudden difference one day or gradual? Sorry I’m just so hopeless aftter 10 months of this.
February 21, 2011 at 12:23 pm #67877In reply to: Somebody help! Endoscopy results.
Anonymous
InactiveIntolerances? How would I test for that? I went on a Ted while I was breastfeeding with no improvement? What about your thoughts on clear scope? Does that rule out painful reflux? Would you put your LO on a PPI if their scope showed no damage not even mild irritation? Thanks for your reply
February 21, 2011 at 12:10 pm #67875In reply to: Does this sound like intolerance?
hellbennt
Keymastersounds like intolerance or allergy.
breastfed or formula? which one?any meds?read post two of here for more about the relationship b/t reflux and food intolerances/allergies:
https://www.infantreflux.org/forum/forum_posts.asp?TID=2697&PN=2if you’re formula-feeding:here’s about the elemental formulas-
https://www.infantreflux.org/forum/forum_posts.asp?TID=6013
everything takes two weeks so if you were to switch you’d have to give it two weeks and then there are no guarantees- if you’re breastfeeding, you can also modify/alter your diet to make your own milk into an elemental formula of sorts- this is called the TED- total elimination diet-this also takes two weeks and then you start adding foods in to see what you CAN eat.
scroll to the last page of this post, called Prevacid 101 (it’s actually also about other PPIs like prevacid, too) you’ll learn why.
https://www.infantreflux.org/forum/forum_posts.asp?TID=1936&PN=0&TPN=1
I would inquire about Zegerid or Bufferbabies- this is all explained from the link- PPIs can take up to 14 days for you to see it’s full effects…so that’s another reason to stay w/ the zantac.
I have a LOT MORE to say, it’s Looong, but full of very helpful info, so refer back to it often!
Groupie Intro:
https://www.infantreflux.org/forum/forum_posts.asp?TID=853you can do this!
please go to the top of this page, click on Settings and please then click on Edit Profile, then scroll down toSignature & put:baby (name if you want or nickname), age (can put month & yr of birth), meds, doses & forms of meds, breastfed or formula fedthanks!February 21, 2011 at 12:07 pm #67874In reply to: Prevacid Dosing??
hellbennt
Keymasterdo you still have any zantac?
you can give that, too, until you get the meds ‘right.’ You can give it w/ prevacid, just make sure to space it 4hrs from the prevacid.zantac can go up to 10mgs per kilo- don’t just take my word on this, read here:https://www.infantreflux.org/forum/forum_posts.asp?TID=8288&PN=1
It sounds like I’m a drug-pusher! It’s just that I KNOW that they work! I also know how hard it is until you get it figured out! so, in the meantime, you have to do what you have to do. You can ALWAYS back-off. for example, you give zantac & prevacid and finally get prevacid as high as marci-kids recommends. then, you stop the zantac and see what happens. all the while, trying to figure things out, like is it ‘diet’ i.e. MSPI?
read post two of here for more about the relationship b/t reflux and food intolerances/allergies:
https://www.infantreflux.org/forum/forum_posts.asp?TID=2697&PN=2formula-feeding:here’s about the elemental formulas-
https://www.infantreflux.org/forum/forum_posts.asp?TID=6013
everything takes two weeks so if you were to switch you’d have to give it two weeks and then there are no guarantees-scroll to the last page of this post, called Prevacid 101 (it’s actually also about other PPIs like prevacid, too) you’ll learn why.
https://www.infantreflux.org/forum/forum_posts.asp?TID=1936&PN=0&TPN=1I would inquire about Zegerid or Bufferbabies- this is all explained from the link- PPIs can take up to 14 days for you to see it’s full effects…so that’s another reason to stay w/ the zantac.
I have a LOT MORE to say, it’s Looong, but full of very helpful info, so refer back to it often!
Groupie Intro:
https://www.infantreflux.org/forum/forum_posts.asp?TID=853you can do this!
please go to the top of this page, click on Settings and please then click on Edit Profile, then scroll down toSignature & put:baby (name if you want or nickname), age (can put month & yr of birth), meds, doses & forms of meds, breastfed or formula fedthanks!PPS: how much does baby weigh? there’s a link from Prevacid 101 where you can convert pounds to kilos. then we (I) can help w/ dosing 🙂
February 14, 2011 at 2:12 pm #67807In reply to: Probiotics?
hellbennt
Keymasternot sure if these links will help…probiotics, brands used:Sheri’s allergy/intolerance explanation: https://www.infantreflux.org/forum/forum_posts.asp?TID=10223&PID=87638#87638
Another Sheri explanation- intolerance/allergy post:
https://www.infantreflux.org/forum/forum_posts.asp?TID=11579&PID=97442#97442
Accuracy of allergy testing & great post by sherri explaining IgE and IgG (intolerance/allergies) https://www.infantreflux.org/forum/forum_posts.asp?TID=10815
~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Links to help you:(I realize that this is most likely information overload, but this really will help you…)
Erin‘s sticky: https://www.infantreflux.org/forum/forum_posts.asp?TID=12948&PID=105126#105126More Erin: https://www.infantreflux.org/forum/forum_posts.asp?TID=13175&PID=106395#106395
Erin post: https://www.infantreflux.org/forum/forum_posts.asp?TID=13576
Great anne post: https://www.infantreflux.org/forum/forum_posts.asp?TID=9242Exposure to foods & blood testing: https://www.infantreflux.org/forum/forum_posts.asp?TID=12993
(sue again, replying to gina- breastfeeding info to (TED)https://www.infantreflux.org/forum/forum_posts.asp?TID=11324&PN=1hellbennt2011-02-14 14:14:34
February 12, 2011 at 8:35 pm #67801Topic: Probiotics?
in forum MedicinesAnonymous
InactiveHi 🙂 i’ve been browsing the internet looking for non-medicinal treatments for my 4 week old son’s colic/reflux. I’m pretty sure he has reflux, he’s my 4th child, my 2nd one had it too. The dr. wants him on zantac/prevacid but i’d like to try to control it more naturally, or at least find out if that is an option. I’ve read thru some posts on here about using them, but as my little man is really fussy I can’t keep digging thru them all. Here are my questions:
1. do they work for reflux? he does the gasping/choking thing. he’s been inconsolable these past few days with lots of painful sounding crying and arching his back when held…such a large change from my once happy easy-going little man.
2. what kinds/brands?
3. i’m breastfeeding, how do I administer them? Should I take them too as we are battling a mild case of thrush as well.
4. is he too young? i’d rather take my chances on probiotics than meds at this age though.
5. I currently have Solaray Acidophilous in my refrigerator, will that work?
thank you for your time and input. I truly appreciate it.
January 25, 2011 at 12:28 am #67721In reply to: Mom on the edge of insanity — Help
hellbennt
KeymasterHello, again. Just a quick update and a chance to respond to all of you wonderful moms… sorry if I am assuming that you are all female. Correct me if I am wrong.
First and foremost… I feel like the world’s biggest moron. After starting the Neocate trial and posting our troubles, I went back and re-read the post about the misconceptions of Neocate and Elecare. Well, needless to say, I have a much better understanding of what should be happening and the time frame in which it should happen. I have to say that I believe that I did things all wrong…. Most importantly, I did not incorporate the former formula with the Neocate as suggested. If I’m not mistaken, the quote was something along the lines of…
“The next most obvious trait of these formulas is their unique taste. I know some of you are saying, “unique…what is she talking about…they are horrible!” You are absolutely right, they are in fact HORRIBLE! For this reason, it is impossible to treat Neocate or Elecare as a super market formula and just offer it to your baby in their next bottle. As a rule no formula, including super market formulas or breastmilk, should be automatically switched. You are asking for GI upset by doing so. Neocate and Elecare are better taken when slowly introduced, mixed with whatever your baby is currently taking. If you are bf’ing then the best thing to do is pump and put your breastmilk into a bottle. Start very slowly mixing the new formula and gradually increase the amount each day (not each feeding) until they are on 100% of the elemental formula.”
Full Thread as linked earlier by hellbennt:
https://www.infantreflux.org/forum/forum_posts.asp?TID=6013
Clearly, I ignored that entire paragraph. Again, I feel so stupid. With that being said, I sort of back-tracked and incorporated Similiac Isomil back in with the Neocate. Huge improvement. Sleeping is better and the drooling is bad, but not like it was before. He still has his moments, but he is more comfortable. Why? Can’t say I know for sure, but I am slowly going to reduce the Isomil until it is gone. So, for now… no more all night TV watching and we are holding at a steady happy and comfortable.
To answer questions… this might be lengthy because I want to make sure I give everyone due attention as you were all so kind to give it to me (now that I am back from “the edge”).
Kevieb: Great to hear from you. No need to apologize, we all have quirks (I don’t need meds to forget things, I think I was wired that way! LOL) To answer your questions (and maybe a few others as well) Scope and PH Probe testing… this is a major issue. In short, no. No testing has been done. The longer… I wanted Mason scoped (endoscopy) back in August. His GI doc stated that he did not think that his case was severe enough to warrant that. We would re-visit the testing at our follow up appointment in February. However, whenever I called the GI office for help, “the nurse” insisted that she (and the GI doc) would not help me UNLESS we had an endoscopy done. At this point, I was hanging onto what the doctor said and I didn’t want the endoscopy as I strongly felt that other things could have been done before we took such a big step… namely, I wanted MARCI-kids dosing of Prilosec and possibly Neocate. As of right now, we will be talking testing on February 2nd. But I feel as though I have done more for my son in the last few months than the GI office. And it should go without saying that all my leads came from YOU LADIES!!!! KUDOS TO YOU!!!! THANK YOU!!! Obviously, my fear is that too much time was wasted doing nothing and now he is worse off because of the hypocrisy coming from the GI and my need to do what was right for Mason and be non-invasive about it.
But, can someone answer me this… Please explain to me why it is ok to sedate and infant and shove a scope down his throat, but NOT give Carafte? Really, would Carafate have been that bad? This is why I am so frustrated. Besides, I was told that he could not have the endoscopy scheduled until MAY. Seriously, they wanted me to NOT help him from November/December until May? Makes me mad. Sorry. L
Lastly, kevieb, thank you for posting and telling me about your LO. I appreciate what you have gone through and you are obviously an asset to this forum. Furthermore, you don’t need to tell me about Laura… I’d be “over the edge” by now if it weren’t for her. So, again, your experience is much appreciated.
Rachel_Neocate: What an awesome job you have!!! That must be sooooo cool. I just work at UPS. You help so many people!!!! That’s just awesome. Thank you for your input. The Nutra… I’m having trouble getting that into him, but I only just started taking on the slow incorporation approach. I am mixing a little Nutra with Rice and his food and slowly increasing. He’s doing so/so with this, but I have a feeling that over time, he’ll get used to it. And yes, I really do think that I was hoping for too much, too quickly. He defiantly needs time to heal. What is really a relief in all of this is that my health insurance is covering the Neocate (but not the Nutra) and I just got our first shipment (relief). So, we are going to have plenty of time to get accustomed and hopefully get the results that we are looking/hoping for. So far, now that I am doing things right, he is doing really great. Finally, the Celtic Woman… I wish I could link video of that. I did take some that night… I couldn’t resist. Thank you for laughing with me. J
Pkkb: Thank you for your post… we are currently doing BufferBabies with Prilosec and from what I understand, we can administer meds regardless of meals. But clearly I have been wrong. Furthermore, I do believe you about things getting worse before they get better. That’s nature’s way I suppose… it’s just so traumatic watching it happen to your LO (I know you get this). So, thank you for the kind words and support. It means a lot to this mom. J
Ngarcia: Nice to hear from you… sounds like we are in the same boat (sort of). Like I mentioned earlier… I should have given the old formula in conjunction with the Neocate. Are you doing that? Yes… forever. Day after day seems to get longer and longer, eh? Another mom that feels my pain. Thank you and I certainly wish you the best. Please keep me up to date, I am certainly interested in hearing what happens with you. I hope it doesn’t take you as long as it is taking me to figure things out. God Bless. J Lastly, in all honesty, nothing has been ruled out. The ONLY diagnosis officially is GERD with Esophagitis (Barrett’s, I assume). As you can tell, I am feeling as though my GI’s office has been worthless at best. I am really hoping to turn things around and get some answers on Feb 2nd. If not, I have an appointment for Mason set up with my PCP. I know I will get somewhere with him. He hasn’t failed me yet. In fact, just last week, he sent me to a surgeon to determine what was wrong with me (massive pain since c-section). My delivering OB stated that I had PPD… lovely. So, I went to my PCP. Surgeon says that it is endometriosis resulting from c-section. WOW!!! After 6 months of fighting, I have a diagnosis. I wish I could finally get this for Mason. I know I will, but it’s a shame it is taking so long.
Ok, that is all for now. Please keep me updated and I will be doing the same.
Thank you all so very much, again. I don’t know what I would be doing now if I didn’t visit this site!!!
January 23, 2011 at 3:21 pm #67705In reply to: reflux or MSPI?
hellbennt
Keymasterwelcome back!I’m sorry you might be going through this again!start w/ diet and see how it goes?in the meantime, here are some of ‘her’ links, and other links, too:Erin’s sticky: https://www.infantreflux.org/forum/forum_posts.asp?TID=12948&PID=105126#105126
More Erin: https://www.infantreflux.org/forum/forum_posts.asp?TID=13175&PID=106395#106395
Erin post: https://www.infantreflux.org/forum/forum_posts.asp?TID=13576
Great anne post: https://www.infantreflux.org/forum/forum_posts.asp?TID=9242Exposure to foods & blood testing: https://www.infantreflux.org/forum/forum_posts.asp?TID=12993
Sheri’s allergy/intolerance explanation: https://www.infantreflux.org/forum/forum_posts.asp?TID=10223&PID=87638#87638
Another Sheri explanation- intolerance/allergy post:
https://www.infantreflux.org/forum/forum_posts.asp?TID=11579&PID=97442#97442
Accuracy of allergy testing & great post by sherri explaining IgE and IgG (intolerance/allergies) https://www.infantreflux.org/forum/forum_posts.asp?TID=10815
(sue again, replying to gina- breastfeeding info to (TED)https://www.infantreflux.org/forum/forum_posts.asp?TID=11324&PN=1January 21, 2011 at 3:30 pm #67688In reply to: Need some help reflux issues
hellbennt
KeymasterLinks to help you:(I realize that this is most likely information overload, but this really will help you…)
Erin‘s sticky: https://www.infantreflux.org/forum/forum_posts.asp?TID=12948&PID=105126#105126More Erin: https://www.infantreflux.org/forum/forum_posts.asp?TID=13175&PID=106395#106395
Erin post: https://www.infantreflux.org/forum/forum_posts.asp?TID=13576
Great anne post: https://www.infantreflux.org/forum/forum_posts.asp?TID=9242Exposure to foods & blood testing: https://www.infantreflux.org/forum/forum_posts.asp?TID=12993
Sheri’s allergy/intolerance explanation: https://www.infantreflux.org/forum/forum_posts.asp?TID=10223&PID=87638#87638
Another Sheri explanation- intolerance/allergy post:
https://www.infantreflux.org/forum/forum_posts.asp?TID=11579&PID=97442#97442
Accuracy of allergy testing & great post by sherri explaining IgE and IgG (intolerance/allergies) https://www.infantreflux.org/forum/forum_posts.asp?TID=10815
(sue again, replying to gina- breastfeeding info to (TED)https://www.infantreflux.org/forum/forum_posts.asp?TID=11324&PN=1hellbennt2011-01-21 15:31:39
January 17, 2011 at 4:25 pm #67639In reply to: Is there something I can make for my baby TODAY???
hellbennt
Keymasterok you could try 10 mg 2x a day and see how it goes?
if you have any zantac you can give that, too, spacing it 4 hrs from the prevacid…or you could try splitting the beads 3 ways…and still give zantac (if you have it)- it can take up to 14 days for you to see the effects of the PPI – how long has your baby been on PPI?when you get a chance
,please go to the upper right–hand corner of this screen and click on ‘Settings’ and, from there, you can edit your Signature and let us know how old baby is (can be month & year), name (or nickname if you prefer), breastfeeding, TED diet (or what you’re eating/avoiding), what meds and what doses and form of meds and how you’re administering-thanksJanuary 17, 2011 at 10:51 am #67625In reply to: Help solve Medical Mystery?
hellbennt
Keymastergood news about the ecxema & cough clearing up!
the neocate is doing it’s thing!feeding poorly = pain?I can’t recall is baby on meds?TELL dr to rx CARAFATE until you get things more comfortable for your lo (little one/loved one)…This is a medicine that is not a long-term solution at all. It is a ‘band-aid’ solution, but definitely helped my son at times. It’s like a teflon coating (it’s NOT teflon!) for the esophugus to help it heal- once it’s healed, he may eat better? It can’t hurt, that’s for sure. However, there are timing issues- you’d have to do a search to find out how far apart from PPI & zantac it needs to be given. But, we DID use it for jonah when we were trying to get everything all figured out…he didn’t have weight gain issues, but he SHRIEKED/HOWLED non-stop, poor thing. Once we got the meds ‘right’ he was so much better!As for allergy testing: truly, it’s not reliable until baby is 12 or really 18 months old, but if you want to ask for it, it wouldn’t hurt- it might be an intolerance- hard to tell w/ babies…Sheri’s allergy/intolerance explanation: https://www.infantreflux.org/forum/forum_posts.asp?TID=10223&PID=87638#87638
Another Sheri explanation- intolerance/allergy post:
https://www.infantreflux.org/forum/forum_posts.asp?TID=11579&PID=97442#97442
Accuracy of allergy testing & great post by sherri explaining IgE and IgG (intolerance/allergies) https://www.infantreflux.org/forum/forum_posts.asp?TID=10815
when you get a chance
please go to the upper right–hand corner of this screen and click on ‘Settings’ and, from there, you can edit your Signature and let us know how old baby is (can be month & year), name (or nickname if you prefer), formula (which one) or breastfeeding, TED diet (or what you’re eating), what baby is eating (if anything) & what meds and what doses and form of meds and how you’re administering-thanks
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I have a 3.5 months old diagnosed 2 months ago and taking Prevacid for his Silent reflux. He has been breast fed 100% til now but Im pumping at work and cant keep up with the appetite… we will have to give him some formula to supplement and my question is- is there a recommended formula/brand for Acid reflux babies, should we feed him smaller amounts since its heavier than breast milk- what should be the amount?
In addition he wakes up every 2 hours to feed at night- should we try to give him formula before bed time?Topic: Probiotics?
Hi 🙂 i’ve been browsing the internet looking for non-medicinal treatments for my 4 week old son’s colic/reflux. I’m pretty sure he has reflux, he’s my 4th child, my 2nd one had it too. The dr. wants him on zantac/prevacid but i’d like to try to control it more naturally, or at least find out if that is an option. I’ve read thru some posts on here about using them, but as my little man is really fussy I can’t keep digging thru them all. Here are my questions:
1. do they work for reflux? he does the gasping/choking thing. he’s been inconsolable these past few days with lots of painful sounding crying and arching his back when held…such a large change from my once happy easy-going little man.
2. what kinds/brands?
3. i’m breastfeeding, how do I administer them? Should I take them too as we are battling a mild case of thrush as well.
4. is he too young? i’d rather take my chances on probiotics than meds at this age though.
5. I currently have Solaray Acidophilous in my refrigerator, will that work?
thank you for your time and input. I truly appreciate it.

